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Geodon withdrawal symptoms

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Printed on: 10/31/2014

Topic:


Topic author: Leslie Van Houten
Subject: Geodon withdrawal symptoms
Posted on: 06/18/2005 19:33:37
Message:

I'm getting ready to come off Geodon. If anyone has come off this drug what were your withdrawals and how long did it last? How did you come off it, gradually or "cold turkey". From what I've read so far getting off Geodon is like going through hell and has cause some individuals permanent tardive dyskneia. I'm taking 120mg daily. I know when I skip a dose I start to feel like I'm going crazy and very irritable and restless. I can't imagine what it will be like to go off it completely. I'm alittle spooked, but I've been on Geodon for almost 4 years now and I'm ready to go off it. Please write me if you have any information for me, or have gone through the withdrawal symptoms already. e-mail is [Posting of personal identifying information, including e-mail address, is not permitted. Administrator]

Replies:


Reply author: tootsie
Replied on: 07/02/2005 08:02:38
Message:

My wife is coming off geodon. 80mg for 3 months. Last night was her first night without a pill. She had a tough noght. Woke up very early from "bad dream." She described, "electrical like pulses in her brain."

Since she has been feeling better and she is no longer at a stressful situation (Her job) we decided to try to eliminate the geodon. She is also taking zoloft 150 and xanax .5-1.0/day.

She was developing side effects that we think were related to taking the geodon. This is another reason we decided to try to eliminate it. She had been experienceing numbness and tingling in her hands and feet. I did some research and found this is a common side effect of geodon.

If she continues to have a difficult time with withdrawl we may try slowly decreasing. I think we can do this by opening the capsule, pouring a little out and re-closing the capsule. I'm going to do some more research online regarding withdrawl symptoms.

Good luck to you, maybe we can discuss our experience together through this web-site.


Reply author: itsjustmylife
Replied on: 07/29/2005 10:29:35
Message:

hi i am coming off geodon at this very moment and i only take it 2 times a day at 20 mg the withdrawls i am having are horrible. im dizzy,vomiting,fainting,shaking like crazy,and having serious head acheas..this med sucks i would tell everyone to get off of it before u are super adicted like me.


Reply author: chskjd
Replied on: 07/30/2005 18:21:07
Message:

i've been on geodon for 3 years and have been wanting to get off it but my doctor is reluctant for me to get off. i was on 120 but am now on 80 and am doing fine. i have some 60's but am afraid to go down because i have to work and i'm afraid of withdrawl side affects. i can't be going crazy and having emotional breakdowns. i wish my doctor was more supporive of me going off. she says it's ok if i cross taper with abillify the ne antipsychotic drug but i don't want to be on either one. who knows about the long term side affects.


Reply author: twine
Replied on: 02/27/2006 16:26:47
Message:

I have been taking Geodon for about a month to help me sleep. Not only did it not help me sleep, but as the doses were raised, I began to experience strange symptoms such as extreme teeth grinding and lack of facial muscle control. After cutting the dosage in half, in an attempt to ween myself off it, I had a full-blown panic attack while stuck in traffic, which scared the hell out of me. Trembling all over, hyperventilating, etc. Lasted for an hour or so until I was able to take some Klonopin. Since then, I have reduced to the point where I have taken none for the past three days. Although the teeth grinding has gotten better, I am a bundle of nerves, nauseas all day, and still feel mini panic attacks coming on. It feels like I stuck my finger in a light socket... A wave of heat comes over me, I feel like I'm going to black out, then it passes and I'm left shaking and dizzy. This drug has been an absolute nightmare, and I wish I knew when the symptoms would end, because quite honestly, it's ruining my life at this point. Seems to be the consensus from what I'm reading.


Reply author: HDLadyRider06
Replied on: 04/06/2006 21:25:09
Message:

I was prescribed Geodon in July 2005. I had been on Topomax which had sent me into a VERY pyhcotic state and extreme paranoia. They took me off the Topomax and sent me home from the hospital (UNC) with Geodon. I was unable to tolerate this medication and ended up back in UNC. It caused me to pass out and my husband was unable to awaken me. Since then they have been trying so many different meds that I have been up and down. These new docs don't seem to understand that I went through this **** for 7 yrs. Why don't they just put me back on the Lamictal & Ritalin which leveled me out after 7 yrs? Now they say I'm going into mania. What do they know. I think maybe I'll just quit all this physc meds.


Reply author: lusciousangel
Replied on: 10/25/2006 16:19:29
Message:

I was first prescribed 20 mg of Geodon around July of 2005. Ever since then I have been taking 20 - 40 mg doses once daily before bedtime. I used to pass out within an hour or two after taking it but i have gotten somehat used to that affect. For over a month I have been cutting down from 40 mg, to 20 mg, and now to 10mg a night. I've been taking the 10 mg dosage for only 2 days now and I'm having a few symptoms: very sensitive to light, light-headed, nausious, dizzy, fatigue, headaches, and periods from being very tired to having short bouts of energy. I also noticed that I was blinking a lot in the morning and have had a little cough. It's hard for me to tell if this is all from the Geodon withdrawal or if it has something to do with taking 12 mg of Thorazine for the past 2 days as well. I read online that Thorazine and geodon are never supposed to be taken together but I'm trying to be compliant with what my psychiatrist prescribes since I have been known to be non-compliant in the past. My dosages may seem to be very little to most but I am only 17, stand at about 5'1 and am 90 pounds. Originally the Geodon along with Focalin that I take during the day ( 7.5 mg.. that doesn't help my ADD at all by the way)was prescribed to help me recover from my eating disorder and it helped in the beginning but now my only problems seem to be taking all this medication. I'm really hoping this withdrawal won't last too long since my dosages are small. As much as I want to be off meds I'm not sure I'll be able to sleep at all b/c of my anxiety.


Reply author: Marilyn
Replied on: 12/01/2006 00:39:21
Message:

I was prescribed geodon in 60mg and have been taking it for a little over a month now. This drug is my ultimate nightmare. The side effects seemed to tear into my life after three to four weeks of taking it. I'm edgy, have a loss of facial control and severe slurred speech. It feels as though I'm having the bad effects of being drunk. I cannot balance well, I about busted my face wearing a pair of heels. I have problems with simple motor skills, pronunciation, etc.*it make me feel like an idiot, I have problems thinking clearly. I have difficulty swallowing, severe heat waves. I feel as though my flesh is disconnected to my body and crawling across it with the legs made of needles. I've almost crashed due to a horrid dizzy spell. After two weeks I developed swollen lymphnodes under my armpit. I actually felt like I was fine. I've blacked out the three times I've drank on this medicine. The second time I had two glasses of wine, got in a dispute and put two ciggarettes out on my neck. The third time I had two or three got in a dispute and punched myself in the eye five times. The next day my face was mangled. The whole time I've been told I couldn't control my speech, could barely stand and appeared to be an elderly drunk, I cannot recall a thing. I'm 23 folks, and I don't go around hitting myself.....the fact is you can't ****ing drink on it. I wanted to, tried, and about lost my boyfriend and several friends. I stopped taking it tonight. I've felt like throwing up all day, I have the sweats and chills, [Deleted] Just kidding about that, but seriously. Wise up with me and realize they are getting paid an amount for each single prescription they prescribe to us. They make ****ing commission off our mental health and put us through HELL. While they go and drink margaritas in the pool that costed us our sanity....I THINK WE SHOULD TAKE A DIP INTO REALITY. AND LEARN TO JUST ****ING DEAL WITH THINGS. And I know it sucks, I want to cry (due to the geodon...crying fits out of nowhere several times) right now about how sad it is that we just subject ourselves to this fake fix-all in a pill. How about next time we see the doctor....ask them if they take any pills themselves, or do their son or daughters. I'd rather face my demons than take a medicine like this ever again in my life. It wil be a horrible decision to take this drug. I'm sorry if you're currently taking it.

miranda


Reply author: Kingschild
Replied on: 12/06/2006 23:07:29
Message:

Wow - this drug started out being a wonderful help to me...then my doctor took me off of Zoloft and Wellbutrin. That's the side-effects starting hitting me. I'd list them all here but it would take too long. I decided last night that I was going to start tapering the drug. Could the withdrawal be any worse than my current side-effects? I'm up right now because I have insomnia...I feel like I'm going to puke and I was tossing and turning in bed.
My doctor prescribed Geodon to me to help with my Bi-polar. I have more mood swings and craziness going on in my head now than I ever did before. Did I miss something about this drug?
I'm calling my doc in the morning to start the weaning process. God help me. I have 3 kids and a wonderful husband. I hate to put them through this anymore.


Reply author: katie1
Replied on: 12/17/2006 12:58:04
Message:

GLAD TO FIND THIS SITE. I HAVE NEVER BEEN TREATED WITH ANY ANTIPSYCHOTIC MEDICATION. I FELL 3 MONTHS AGO AND THE DR. GAVE ME HYDROCODONE. I BECAME ALARMED THAT I WAS ADDICTED TO IT. I WAS HAVING ANXIETY ATTACKS. I WAS TAKING 2 1/2 10'S A DAY. I MAY NOT HAVE EVEN BEEN ADDICTED. WHEN I WENT TO THE DR. HE PUT ME ON 60 MG. OF GEODON FOR 3 DAYS (THIS IS DAY 3), THEN TOLD ME TO TAKE 80MG. A DAY FOR 10 DAYS AND COME BACK. HE DIDN'T TELL ME WHAT IT WAS AND CERTAINLY NONE OF THE SIDE EFFECTS. I AM SCARED TO DEATH. I HAVE READ A LOT ABOUT IT ON THE NET. CAN ANYONE GIVE OUT ANY POSITIVE FEEDBACK. HE SAID I ONLY HAD TO TAKE IT FOR 10 DAYS, BUT THAT REALLY DOESN'T MAKE GOOD SENSE. IS 10 DAYS LONG ENOUGH TO DEVELOP LASTING PROBLEMS. I AM 59 YEARS OLD, THIS MEDICINE ISN'T RECOMMENDED FOR PEOPLE IN THEIR 60'S. WHEN I WENT TO THE DR. I WAS HAVING ANXIETY ATTACKS BECAUSE I HAD NOT BEEN SLEEPING HARDLY AT ALL.
CAN SOME PLEASE GIVE ME SOME FEEDBACK?


Reply author: katie1
Replied on: 12/17/2006 13:21:19
Message:

I AM REALLY HOPING THAT SOMEONE OUT THERE CAN REPLY TO MY POST. I NEED TO TALK TO SOMEONE.


Reply author: AmyA
Replied on: 12/20/2006 08:45:24
Message:

I would love to get off of Geodon. I take 20 mg twice a day. I missed my morning pill yesterday because I need to pack for a move and Geodon makes me so sleepy. I felt weird all day and couldn't eat. Last night I took my dosage, but it was too late. I suddenly started vomiting a lot. Then I only slept one hour last night. I feel like I'm on speed or something. My emotions are out of control. My brain is buzzing, I'm seeing "trails" and pupils dialated. I can't eat, no appetite. I want to go to sleep, but can't. I'm hot and cold at the same time. I'm scared. I want off this drug and off of Effexor, but they both have horrible withdrawals. I have a child, I can't stay in bed for 2 months trying to get off this s***!


Reply author: katie1
Replied on: 12/20/2006 09:05:14
Message:

AMYA THANK YOU FOR RESPONDING. HOW LONG HAVE YOU BEEN ON GEODON? WOULD YOU PLEASE POST AGAIN I WOULD LIKE TO SHARE EXPERIENCES, I AM TERRIFIED. HOPE YOU SEE THIS POST.


Reply author: scootergirl
Replied on: 12/23/2006 13:31:56
Message:

I"ve been on Geodon for 4 years now. I take 40mgs am and 80mgs pm. I could see that coming off would be exteremly difficult (like when I came off of 10mgs of klonopin a day cold turkey) as when I miss a dose, I am panicked. But this drug works wonders for me so I don't see the need to come off. I've been stable for 4 years now with the exception of the ups and downs that come with substance abuse. I know not all drugs work for everyone and I know there are a lot of people who have problems finding the right medication. But I am replying for the benefit of Katie who was prescribed it and asked for anyone's good experience with it. What I don't understand, Katie, is why a doctor would prescribe geodon to come off of hydrocodone. Hydrocodone withdrawal will not kill you, but it will make you feel miserable and I don't see how geodon would help with that. Is there another reason you are prescribed geodon, did I just misunderstand?

Just for today,
Alicia


Reply author: scootergirl
Replied on: 12/23/2006 13:36:20
Message:

Katie,I reread you post and came to conclusion you were given geodon for anxiety. It usually takes a few weeks to get the full benefit of the medication. The only thing I can surmise, is that if you are on it for 10 days, he is helping your anxiety for those 10 days only. I assume the reason he didn't put you on a benzodiazipine is because you were concerned you were addicted to an opiate and he didn't want you to become crossaddicted. From my research and my experience, I don't see how short term use of geodon would help you in the long run with anxiety. Wishing you all the best.

Just for today,
Alicia


Reply author: jedimind
Replied on: 01/11/2007 15:31:11
Message:

quote:
Originally posted by katie1

AMYA THANK YOU FOR RESPONDING. HOW LONG HAVE YOU BEEN ON GEODON? WOULD YOU PLEASE POST AGAIN I WOULD LIKE TO SHARE EXPERIENCES, I AM TERRIFIED. HOPE YOU SEE THIS POST.

Katie1, i just saw your posts and I'm hoping you're doing ok by now. unfortunately you have good reason to be terrified, Coming off geodon was the Worst experience of my life, i thought i was gonna die. if you need any advice let me know.

Keith A Parks


Reply author: ScarlettA
Replied on: 01/23/2007 15:13:35
Message:

Hi all. I guess I'm a come lately here. My doc gave me Geodon to try on top of my Lamictal, which already helps me, but maybe not as much as I need.

Anyway, I did ask for it, but I was not warned about any withdrawal side effects. Even the bottle says nothing.

I took this for maybe 4 to 5 days: 80 mg the first four nights, then one night of 120 mg. It gave me insomnia and had me bouncing off the walls until 3 a.m. (Based on what I am reading, this is a very high dose, which is weird, because I'm a highly functional, non-psychotic bipolar.)

So last night, I figure I'll skip it. Like I could do with Seroquel.

HA HA HA.

I've been delirious since dawn, seeing the ceiling move, seeing "jellyfish," feeling utter and crippling exhaustion that I can't satisfy by sleeping (because I can't sleep), breathing like I'm on speed, night sweats, warm flashes (I'm 31!!!!!!).

I also constantly feel like something is stuck in my throat.

I've just put in a call to my doctor about getting OFF. Since it's only been five days, I'm not sure if cold turkey is an option for me. I do have the ability to stay home, since I work from here, have a supportive husband, no kids, etc.

I just want to say thank God I read this, you guys, and thank God for the Internet. (I'm a bit manic right now, if it's not obvious.) My heart goes out to all of you.

I swear once this is over I'm going to devote myself to educating others about medicines like these.


Reply author: jedimind
Replied on: 01/27/2007 05:18:37
Message:

Dear ScarlettA,

I just read your post and hope you get to see this response. I had a very bad experience like all of us and i try to get out all the info i can on this drug.

I wanted to clear up some depressing feelings i had so my doc gave me Geodon saying it would be perfect for me. I was never told about any side effects or told not to stop taking it, cuz it made me feel Horrible and i did stop, which was the worst mistake i coulda made. i ended up in the E.R. more suicidal than i ever imaginded and had to continue that same damn drug and ween off of it for a month.

It had me sitting in a corner all day hallucinating unable to sleep like you and thats just one of the many horrible things it did. i was on it for two monthes so it was very bad. anyway...Please please please be very very careful and ween down every couple days, tald to your doc but DONT let anyone convince you to stay on it of anything else you dont feel is right. Ween off it, ask for lower mg's until you're down to the 20 mg's and feel out when you dont need it, and PLEASE GET FREE AND CLEAR AND HEALTHY OF THIS **** AS SOON AS POSSIBLE, IT COULD HAVE PERMANANT SIDE EFFECTS! My best wishes are with you! Good Luck and be careful, feel it out.
Sincerely, Casey, [E-mail addresses are not allowed. Administrator]


Reply author: laurie91466
Replied on: 02/13/2007 13:32:50
Message:

I am just starting to go off of geodon and am having many of the side effects that people are mentioning. I am very restless, have the shakes, nausea, insomnia, and feel like I am having a constant panic attack. I was on 80mg a day and went down to 60mg. I called my Dr and she is going to put me on prozac while I wean off of geodon and this should help the withdrawal effects. The same thing happened when I went off of cymbalta and she put me on prozac then and the withdrawal went away. After I am off of the geodon, I will go off of the prozac. Maybe this information will help others who are having withdrawal. If I had known this would happen, I never would have gone on it.


Reply author: Dizzo
Replied on: 02/16/2007 07:43:33
Message:

quote:
Originally posted by laurie91466

I am just starting to go off of geodon and am having many of the side effects that people are mentioning. I am very restless, have the shakes, nausea, insomnia, and feel like I am having a constant panic attack. I was on 80mg a day and went down to 60mg. I called my Dr and she is going to put me on prozac while I wean off of geodon and this should help the withdrawal effects. The same thing happened when I went off of cymbalta and she put me on prozac then and the withdrawal went away. After I am off of the geodon, I will go off of the prozac. Maybe this information will help others who are having withdrawal. If I had known this would happen, I never would have gone on it.



Laurie - I've been off Geodon for 2 weeks now. The key to coming off is to do it gradually. I was on 60mgs when I decided to come off. I had read that while weaning off, you should do it gradually - a few days at each dose, however I wanted to get off it ASAP. I dropped from 60 to 40mgs the first day (Saturday). I wanted to drop to 30mgs the following day (Sunday). I recalled reading that people were 'opening the capsules and pouring some of the powder out'. I did this, but got to thinking, "how could I be sure how much I had actually poured out?". Then I remembered that I had read about 'liquid titration' on another site. Since I still had some 60mg capsules, I decided liquid titration would be the best way to accurately measure 30 mgs. I poured a 12oz can of fruit punch into a 16.9oz (empty) water bottle, I then emptied the 60mg capsule into the bottle of punch. Prior to this, I had measured 6 ounces of water into a glass and made a line at the 6oz level. I shook the fruit punch / Geodon mix for about a minute, then poured 6 ounces of the mix into the glass. I drank the mixture after eating. There was another 30mg remaining if I had wanted to do another day at 30mgs. I however decided to drop to 20mgs the following day (Monday) - not a problem, my doctor had given me 20mg samples, so I just took a capsule. The next day (Tuesday) I dropped to 10 mgs and did the same liquid titration ratios that I did for 30mgs, only this time using a 20mg capsule instead of the 60. I then dropped to 5mg / 3 ounces of 20mg solution. This was on Wednesday. Now I had a 2-day seminar at work the next 2 days, not knowing how I would react without having any of the Geodon in my system, I decided that I would also do Thursday and Friday at 5mgs/3oz. Saturday was my first day without the Geodon, I did ok. On Sunday and Monday and maybe Tuesady I had some of the usual withdrawal symptoms, lump in the throat, no appetite, nausea and hot/cold at the same time. By Wednesday I felt like I did pre-Geodon.

For anyone deciding to go off this stuff, I highly recommend you work with your doctor. If you decide to do the liquid titration, I recommend 12oz cans of fruit punch, easy to measure, completely masks the taste of Geodon (if there is a taste).
Good luck to all!!!


Reply author: kristi1333
Replied on: 03/02/2007 12:49:33
Message:

I have only been on Geodon for 2 weeks. It was a miracle drug for me. I was recently diagnosed with symptoms I have had for 13 years. However, I could not get my perscription refilled while on the road travelling. I had really bad withdrawals. However, I didn't know that was what it was from. If it really works for me, I don't know if I should start it again. Any advice from someone who really got better with this drug????


Reply author: Anamater
Replied on: 03/09/2007 10:51:02
Message:

This is scary and awful. I started taking Geodon at my doctor's suggestion, and it worked absoluetly text-book like for me. Literally, all the positive effects, and every one of the side effects, but hey, what's too high a price for something that works, right? I had told my doctor that I had finally gotten the last addictive drug out of my life (smoke-free two monthes now!) and didn't want anything that I would become dependant on, and incidently, I have never been on an anti-psychotic before, so what did I know? He put me on this stuff, and at first it did just what the label said. And then it didn't. So he upped the dosage.
I found out from a pharmacist that this is pretty typical with geodon, becasue after a few days the liver starts processign it into something completely neutral, so I'm like, hey, I don't want to have to keep taking more and more, and this doctor is a quack, so I change doctors. It's important for this point in the story to know that the doctor did not actually PROSCRIBE me geodon, he was giving me samples to 'see if it worked'. I swear, the government tries so hard to get drug dealers off the streets, to what, give them offices?!? So I found myself in a very scary position. I didn't have another appointment to see this doctor becasue he was going out of town, my appointment to see a new doctor will not be for a while, and the samples I have are running out. Meanwhile I have been on geodon for about a month and a half, a month at 40mg. The old doctor has since given me samples to last until the 19th, after which I am totally boned, and not really sure what to do. Everything I have read makes this sound worse than heroine, and THAT i wasn't addicted to when I quit. I am so scared.

I will storm the moral highground, and from there I will conquer the world!


Reply author: antipsycmed
Replied on: 04/30/2007 15:22:10
Message:

I took Geodon for three days at 80mg per day. I stopped due to what I read here and glad that I did. My withdrawal for only three days of taking this med was pure hell. I could not sleep, was very sensitive to sudden sounds, thought my heart was going to explode,cold and hot at the same time, goose bumps from hell. I would lay in a tub of hot water for as long as I could while wondering if I was going to survive. I also felt "out of body" THIS WAS FROM TAKING GEODON FOR ONLY THREE DAYS! It is day three of without and feel better. I only can imagine what everyone else will go through If deciding to quit after a therapy of this med for a long period of time. Docs dont realize the consequences of this med since they dont take it. I only hope the best for anyone deciding to stop taking this med! Please let me know how you are all doing and how long your withdrawal lasted.


Reply author: jennylynn
Replied on: 05/19/2007 07:49:16
Message:

Have you been able to come off of the Geodon and if so are you back to normal?? I am on day 3 and this is my second time to try and come off of it. I hate feeling this way. I wake up nervous and mid day I almost level out but by the evening I am having panic attacks. Have any suggestions for me?


Reply author: deannaaich
Replied on: 07/24/2007 06:54:20
Message:

Coming off of Geodon with Difficult Success so far:

Hi, I was only on Geodon for 2 1/2 months. I am not schizophrenic, but my doctor prescribed it with Cymbalta and Lamictal in hopes that it may help my bipolar symptoms. When combined with these drugs, he said that it can sometimes act as Lithium (which I was not able to take due to hypothyroidism).......We found out later, that while these statements were true that research has not shown this effective or safe beyond three weeks. It took about 3 weeks for the bad side effects to kick in: Extreme anxiety and panic attacks, to the point where I ended up in ambulances for suspected seizures, found now to be related to stress after many tests by the nuerologist.....Extreme facial tremors, hand tremors, hot sweats, shaking.......I could go on and on.........As I take care of a 22 month old daughter, I finally came to a point where functioning on this drug was no longer possible.

Due to the severity of my symptoms, they did a fast taper off. I was on 160 mg once a day at night for almost 3 months......they took me to half the dose for 8 days, then nothing. I have never felt so sick. So sensitive to light, nausea, but I could still eat a bit, headaches, and the most disturbing withdrawal effect was severe hallucinations, mostly at night, when I was used to taking my dose. Severe fatigue but I couldn't sleep.......FORTUNATELY, after last night, which was my 4th night without the drug, I have had no hallucinations. The fatigue has still been quite overwhelming. But, I am seeing everything that I hated about the drug when I was on it, especially the shaking, get much better. So, all in all, it has not been all bad. When I dropped to half a dose, I didn't see much change, it was when I dropped to nothing that I began to bottom out. I am hoping that time has passed and it will get better from here, we'll see. It's important to keep in mind that this drug drastically effects serotonin so you may see extreme changes in mood, especially depression, that is the hardest battle for me right now. I am praying that it will also pass. You need some serious support to get off of this drug, like I have family helping with my daughter. But, I think from what I have read, the faster you can get off the better, best not to drag it out too long unless the withdrawal is unbearable. I say, if it is, you ask the doctor to take you off in a hospital setting. That is what I may do if the hallucinations start again.


Reply author: deannaaich
Replied on: 07/24/2007 07:34:44
Message:

Other withdrawal effects I experienced were tightness in the chest. I even got the EMT's out here to check my heart, trouble breathing in and severe pain in my throught and chest. Even sometimes, at night, I would immediately feel as though I were coming down with a chest cold or bronchitis.


Reply author: Lukey T
Replied on: 08/20/2007 21:19:30
Message:

After reading these geodon horror stories, i feel very lucky. It was a godsend after years of dangerous drugs they tried on me, which all made me worse. I also drank alcohol occasionally with geodon and had no ill effects aside from slight difficulty breathing. Although its been good for me, its been 4 years now and i'm trying to get off it. Ive had alot of difficulty with my vision and this annoying nervous twitch in my right hand, but i'm finding i'm ok if i take one every few days if i feel mentally out of it. I don't support the use of meds at all, but if youre psychotic, i encourage you to give geodon a try. One lie my doctor told me was that geodon causes weight loss. Bull. I gained 100 lbs in 6 months on this drug.


Reply author: odinwise
Replied on: 10/02/2007 19:51:39
Message:

it seems there are a few common symptoms that people are experiencing as a result of withdrawal. I've been on geodon for a few months weaning up to 160mg daily now I'm at 120mg daily. it's very clear to me when I'm due to take my dose. within 2 hours of missing my dose I start to feel withdrawal symptoms which include:

nausea
feeling like I'm floating
-sometimes a near out of body experience
extreme anxiety
colors are brighter
shakes
paranoia
sensitivity to sound
hallucinations

honestly, it feels like I'm having a bad acid trip when I've missed my dose which leads me to feel like I'm having an acute psychotic episode. I get very skiddish. if psychosis is a result of too much dopamine in the brain, then when the D1 receptors are no longer blocked (as is the function of geodon) I can understand how it might seem like a psychotic episode whether it is or isn't.

needless to say, I'm very nervous about not being on this med. at this point I don't know if I'm prone to a sudden psychotic relapse if I stop taking it, or if it's just a result of withdrawal.

after reading through these posts I think it's safe to say that some common withdrawal effects that can be expected are:

nausea
anxiety
increased sensitivity to stimuli
shakes
possible hallucinations

as much as I wish I was med free, at this point it keeps me feeling normal and stable, and for that I madly respect it.


Reply author: daffygirl
Replied on: 12/14/2007 12:06:36
Message:

Hope someone can help me!!! I'm going through all the horrible withdrawal symptoms of GEODON. This is the drug from HELL!!! OMG! I ended up in the ER last Sat from dropping my dose of 2x a day at 20 mil to once a day. I had all the crap....hot from the inside out, panic, puking, more panic, can't sit still etc.. my question is does anyone know if there is help to wean from this nasty drug? I've only been on it for about a month and 1/2. God help me if the next stage is gonna be as bad as the first. Is there light at the end of the tunnel???


Reply author: bennymaxwell
Replied on: 12/24/2007 14:58:57
Message:

I have been diagnosed bipolar 1, although I disagree with the diagnosis. I have been taking Seroquel for approx 3 mos. and became increasingly depressed, until I was in a fugue state of anhedonia. Holidays with my crazy family pushed me over the edge and I had a psychotic episode and was remanded to PCH.
I was prescribed geodon at a state psychiatric hospital. Was on it for approx. 6 days. Started at 40mg for five days, increased to 80mg one day, started bugging out, and decided to leave the hospital and get off this drug. First of all, at 80mg I was becoming manic, which is unlike my natural personality. I had psychotic or schizo dreams with flashing lights, an alien, hostile presence anouncing its control over me. I knew I would lose it if I didn't get out and fast. Took last 40mg dose on date of release and was already beginning to get shakes, irritable, facial tics. Decided to quit immediately. Wow.
WITHDRAWAL SYMPTOMS:
First 12 hrs.
enlarged pupils, right pupil larger than left pupil. seeing trails, trees wiggle, basically tripping. Left hand twitching. Irritable and combative, unable to control outbursts. Restless, unable to stand still, sit still, concentrate...
Next 12 hrs.
Walking aimlessly in circles. Facial tics. Fear and anxiety. Skin crawling sensation. Culminating in full body convulsion straight out of the exorcist. Psychotic. Uncontrollable sobbing followed by insane rage and urge to violence. Afterwards, slurred speech, dragging limbs, depression, crying.
First 24 hours I kept taking Seroquel as symptoms became worse. I think it helped. 100 mg Seroquel in 24 hrs.
Second day
Still haven't slept. My mind is feeling clear, but I can still feel the drug in my brain. Writhing in bed and moaning. Shooting pain, skin crawling, muscle rigidity. A second siezure, from the waist down only. My legs were kicking like a temper tantrum. More sobbing.
Took 20 mg valium and managed to sleep 2-3 hours. Have been awake since. Most symptoms gone. Left hand can be controlled, but still wants to shake. At least the head-turning fits are over. My whole body is sore from all the cramps and spasms, but I can control my limbs, even drive. Pupils still dilated. Slightly tripping, but no big deal. I took 10mg Lexapro in morning to combat inevitable depression. My mood is stable, not manic or depressed.
I have only been on the drug for six days.
CAN ANYONE SAY CLASS ACTION LAWSUIT?

bennymaxwell


Reply author: bennymaxwell
Replied on: 12/24/2007 22:06:07
Message:

UPDATE day 3 withdrawal Geodon
Symptoms were minimal through daylight hours.
Even drove some, which I had been afraid to do with spastic legs. In evening, had another attack. Bad tremors, spastic, Parkinson's-like movements. Jaw clattering, eyelids twitching. Was able to "walk" poorly with substantial assistance - feet dragging, unable to lift legs, supported myself on person or wall - but was able to move, an improvement over previous seizures. Could not walk and talk at same time, too difficult. Difficulty breathing, panic attack, pain.
15 mg valium calmed my mood, somewhat reduced tremors.
30 mins after taking valium was able to regain partial control of limbs. Walked poorly and with some assistance a short distance, exhausting work to little purpose. At meal, had little appetite, was able to eat only sweet potato pie because unable to chew. Difficulty bringing spoon to mouth, but no major mishaps.
By 10:30 was able to walk unassisted to bathroom, urinate, smoke cigarette (harder than you would think, under the circumstances!)...
Feeling much better, close to normal by 11:10pm. I have slept 2-3 hours in past 3 days, am presently unable to sleep.
DO NOT START COURSE OF GEODON, THERE ARE OTHER DRUGS AVAILABLE. GEODON IS PURE POISON.

bennymaxwell


Reply author: bennymaxwell
Replied on: 12/24/2007 23:06:28
Message:

Pfizer's Harry R. Howard, John A. Lowe III, Arthur A. Nagel (Retired) for the development of Geodon®, an antipsychotic for the treatment of schizophrenia that has an improved side effect profile relative to other antipsychotics in clinical use.

This is the man responsible for all our suffering. Seek him out and force feed him some of his own poison. He should burn in hell.

bennymaxwell


Reply author: jggd1
Replied on: 01/06/2008 13:28:21
Message:

I just stopped taking 20 mg of geodon 3 days ago that was prescribed for my depersonilization disorder. I was only on the drug 2 weeks and it has been complete. hell. I lowered the dose from 60 to 40 then to 20 and got off 3 days ago. With each lowering, the diconnected feeling, sense of unreality, loss of time, horrible thoughts in my head, and depression and constant panick attacks would get worse. I feel a little better today. but definately not right. Does anyone know how long it takes to rebound from this hellish state?


Reply author: Louiesland
Replied on: 01/07/2008 18:44:42
Message:

I've been on 160 mg. of geodon at bedtime since august.
I take cogentin with it also. I started taking jusy 80 mg. a few nights ago, then i stopped completly. I'm a bit restless...but not to bad. The side effects of being on the geodon are 10 times as worse. I'm staying on my lexapro 20 mg. and my klonopin 1 mg. 3 times a day. i see a therapist once a month.

lou


Reply author: MistyDay
Replied on: 01/12/2008 05:22:10
Message:

I was on Geodon 20mg in morn and 20 at night until it was upped to 40mg morn and night. My therpaist told me to stop taking nightly dose for a week and then quite totally. Yesterday was the first day I quite totally and I ended up in the hospital. The prior week I have been an emotional wreck, fine one minute and crying uncontrollably the next and not sleeping at all while my 2 year old and 5 year old watched. Last night I got the shakes in my legs really bad and coudln't sleep once again. I got sick to my stomach. I finally opened up on of my 40's and took maybe a 1/4 of it just to sleep and get my legs to stop shaking. Surprise surprise I finally got some sleep. If anyone has any advice for me, please let me know and also how long the sypmtoms of withdrawal lasted. Thanks!


Reply author: daffygirl
Replied on: 01/12/2008 09:35:23
Message:

Hi MistyDay,

I too went through what your going through. It is NOT fun!! I stopped almost a month ago and still don't feel 100%. It seems to take about a week and 1/2 to get through all the bad stuff from this drug from hell. I will NEVER again take it. I was on 20's morn and night for only a month. Stopped the night one and the withdrawals started. All you can do is TRY to relax and tell yourself it WILL get better. I figured since I was already feeling like **** I would stop it all. Sometimes I still get really nervous and the flushing feeling throughout my body but I know this is better than GEODON!!! Take care and I hope this helps!
Daffygirl
(Laurie)


Reply author: daffygirl
Replied on: 01/12/2008 11:45:05
Message:

Hi,
One more thing I remembered...I took Advil about 5 hours and drank lots of water while holding the couch down. It seemed to help with the leg shakes.


Reply author: MistyDay
Replied on: 01/12/2008 13:58:51
Message:

Daffygirl, thanks so much for your honest answer and support. I am just at the beginning of this journey and all I can pray is that it passes quickly so that I can take care of my 2 sons. Thanks for the advice about the leg shakes. Unfortunately my psych put me on Depakote so I can't take advil. I really am doubting my whole diagnosis of bipolar 2 at all. Everything she has put me on has been hell and now I am going through hell getting off of it. I am getting a new psych asap. I know that I have a severe depression problem but have not had any clear cut hypomanic episodes. Just irritability. (Which is normal with a 5 year old and a 2 year old). Did this med make you an emotional wreck also? I have crying jags like crazy and then they go away. Not sure if I should take the tiny bit again to get to sleep tonight or if I should try to get it out of my system as quickly as possible. The panic attacks really suck too. At least I have clonapin to help with that. I hope you feel better soon too!


Reply author: daffygirl
Replied on: 01/14/2008 12:37:32
Message:

Hi,
Yep I had panic attacks, nervous days, the whole nine yards. Emotionally I was what you are. I cried too...ALOT!! I tried the Depakote, didn't like that either. I have Klonopin but didn't take it. If you can get away from Geodon completely, it would be the best thing for you. ( my opinion) Sleep will come. I take 50 mil of Serequel at night. I doubt my disorder too, so I decided to do none of that stuff. Started it for being grouchy (go figure) I take a small Xanax once in awhile if needed. I know this is hard but I know you will feel better...BE STRONG!! Emotional support from friends and family helps too if you feel like telling them. Hope your doing better and sorry I din't respond sooner. Take care!!


Reply author: MistyDay
Replied on: 01/14/2008 13:22:11
Message:

Thanks Laurie. I did quit it alltogether as of Friday night when I took about a fourth of some. I have finally been sleeping but still a wreck emotionally. I have always had a depression problem and my primary doc put me on an antidepressant so I just need to make it through the next couple of weeks till it starts kickin in. Still don't have my appetite back yet and lost 12 lbs. At least I cried less today than I did yesterday. Every little thing counts. My primary doc can't believe she put me on the stuff and thinks her diagnosis is incorrect. He also couldn't believe she put me on Geodon before trying other methods due to the fact it has so many potential side affects. I hope others read these posts and use this medicine as a last resort and get a second opinion if doubting a diagnosis.

Misty


Reply author: daffygirl
Replied on: 01/14/2008 14:35:31
Message:

I'm so glad you stopped!! I really feel that specific med should be banned. It's horrible and it does bad things to good people. I still don't have my appetite back and have lost 10 pounds. Isn't it amazing? I hate that drug!! I hope your new anti-depressant helps you. I hope to continue to not take anything. See my children are older (26 & 21) and I have a new grandbaby on the way and want to be healthy for when our new baby arrives. Stay in touch and let me know you are doing. I too hope people reads these posts. I know how it feels and lifelines out there are great!! Take care Misty...one day at a time.
Laurie


Reply author: MistyDay
Replied on: 01/15/2008 05:09:19
Message:

Laurie,
Thanks so much for the support. I don't know if I would have made it without having someone telling me that they did it too. It has been very tough. Thanks again!!!!


Reply author: MistyDay
Replied on: 01/18/2008 17:03:55
Message:

Well, it has been a week today and the withdrawal affects have started to subside. That was the worst experience ever and I seriously hope that anyone reading this and considering going on geodon to please think about it long and hard. It was the worst experience of my life and made me a wreck. I couldn't take care of my two sons for a whole week. I also think this medicine should come with a warning label if not be banned alltogether.


Reply author: daffygirl
Replied on: 01/19/2008 13:48:20
Message:

Hi Misty,

Glad to hear you are doing better!!! I agree with you about Geodon being banned or having a HUGE WARNING label on it. Horrible drug!! I hope you continue to feel better as that's what all of us want.
Laurie


Reply author: MistyDay
Replied on: 01/25/2008 03:54:37
Message:

Laurie
Just a question for you. You said after a month you still don't feel 100%. What symptoms are you having? I am still having trouble sleeping past 3:30 or 4:30. It is really a pain and I still have a lot of anxiety in the mornings. I also quit the depakote after tapering down. I certainly haven't gone manic like my therapist kept saying would happen. Still really down. :( Hope it passes soon. I think the bipolar is the illness of the year and people may be overdiagnosing it.


Reply author: daffygirl
Replied on: 01/26/2008 09:59:20
Message:

Hey girl,

I've had TONS of nervousness, anxiety and flushing. The anxiety (nervousness) is especially bad in the mornings. My therapist told me I was having an "anxiety reaction" Which to me makes sense. You never said how long you were on geodon. I can only explain the flushing as warm or hot feeling in my arms and legs from the inside out. It's bothersome but that's about all. Like I said I took a small xanax (.25) and that helped my anxiety. My doctor also told me some people have anxiety about having anxiety. LOL I told her that's me. You just have to think positive because it will pass. I haven't had any episodes either, (thank God) I still look at one day at a time. As for sleeping I still take 50 mil of Seroquel. If I didn't I'm sure I wouldn't sleep. Sleeping is the most important part. I've realized that geodon stays in the brain for quite awhile. Your not alone in this bump in road as I call it. It will get better and so will you!! I hope this helps and if you need anything else....don't hesitate to ask. I'll do my best to help you.
Laurie


Reply author: MistyDay
Replied on: 01/27/2008 07:31:19
Message:

Thanks so much Laurie! I am having the anxiety really bad in the mornings too. I usually settle down by afternoon unless I haven't been able to sleep. Some days I sleep ok, others I am restless and can't sleep past 3:30. I was on Geodon for a little over a month which makes it amazing at how bad my symptoms have been. But I do have an appt with a real psychiatrist on Monday rather than an AARNP (nurse practitioner who can prescribe medicine) This person was recommended to me by my primary doc. Hopefully we can get a clear answer as to what the root of my problem is and wether or not bipolar is part of it. Like I said, I still have my doubts about that. I think I must get anxiety over getting anxiety too! Hah, guess it could be worse. Thanks again. We'll just take it one day at a time.


Reply author: daffygirl
Replied on: 01/27/2008 13:16:46
Message:

Your very welcome! Let me know how your doing. Good luck tomorrow. Just remember the anxiety will get better.


Reply author: MistyDay
Replied on: 01/28/2008 15:34:14
Message:

Thanks again Laurie. I saw my psychiatrist today and she really doesn't think that I am bipolar. She thinks that I was put on the different meds for no reason. I am just glad that I don't have to worry about taking such strong and potentially harmful medications anymore. I guess now I just need time to get back to myself. I appreciate all your help!


Reply author: Gio1975
Replied on: 01/30/2008 11:50:38
Message:

I have been taking Geodon for about 6 months and the side effects are getting to me. I was on 100 mg and i just went down to 80 to ween off. i wasnt able to sleep last night and i had bad dreams. I was given a months worth of 80mg but i think i'd like to go down to 60 and then 40 .
Any advice for someone coming off of this stuff? i have heard many horror stories and not too many success stories.


Reply author: MistyDay
Replied on: 02/02/2008 06:16:36
Message:

It seems like no matter how you do it, cold turkey or tapering, you are going to get the withdrawals. I went cold turkey but I was only on 40 morn and evening. I did have severe withdrawals and still have lots of anxiety and not sleeping well and it has been almost a month. I guess it just depends on each person if you can take the worse withdrawals with going cold turkey or if you would rather prolong by tapering it but have less severe withdrawals. I wish you luck. It seems to be a long road but it does get better every day.


Reply author: wayno
Replied on: 02/05/2008 13:56:54
Message:

I am withdrawing from 45 mg of Geodon daily. That's one 40 mg tablet, and 5 mg suspended in the universal psychiatric solvent: orange juice (a 40 mg tablet diluted with 8 tsp of OJ = 5 mg dosing)

I am going in for cardiac surgery soon, and decided to quit the Geodon, because of the weird dosing. I went cold turkey. It has been a week. I am pretty unable to function. The headaches are the worse. I have been at home pretty much in bed for a week. I get marginally better every day.

Have had some very odd dreams coming off of this. And some nausea as well.

Wayno


Reply author: Johnny D
Replied on: 02/06/2008 11:26:59
Message:

Hi i've been on Geodon since May and i started tapering off from 160mg to 120mg then to 80mg and im currently on 60mg, this is not my doctor's wishes but from what i've learned over the past few months is that the side effects are just unbearable to me anymore. i would much prefer to face my demons as someone diagnosed as bi-polar than to ever be on these types of medications ever again. i felt like a lab rat at the hospital and refused medication only to be held down and injected with haldol benadryl and ativan which put me out of it for quite some time. i would like to return to the motivated, ambitious person i once was before i had my nervous breakdown and i believe i can achieve that once im free of these medications. i hate feeling like a drug addict and the depersonalization that occurs from these meds (lexapro and geodon) is simply too much to handle. i will storm the moral highground and be free of these medications whether or not my psychiatrist advises it or not. he doesn't really care about my health or person in general anyway. before i even talked to anyone about how i felt they shove pills down my throat and threaten with injections if i dont comply. there's something very wrong with our healthcare system and i refuse to be a prisoner anymore. if anyone has had a successful story with coming off these medications please post a reply and let me know how everything is going . to all who read this i appreciate it very much


Reply author: wayno
Replied on: 02/07/2008 14:25:02
Message:

I hear you -- I had to go back onto the geodon after a week of tortorous withdrawal. I take 15 mg/day so I can function for a few hours. Doctor's appointments, getting groceries, things like that. I need to be off this drug for upcoming cardiac surgery.

I have a very good relationship with my shrink, so I look forward to the visits. He does give a damn.

I am a very hard patient to treat, since the lithium intoxication episode, July, 2007. I have some horrible side effects. Lamictal was the worse.

Wayno


Reply author: Johnny D
Replied on: 02/07/2008 16:45:02
Message:

wayno, what other medications did they try with you? what were your side effects? im very interested in learning more about this poison they serve us, i dont care if i go into mania again i actually look forward to it.....anything is better than apathy... let me know how your doin'

Jon Dobson


Reply author: daffygirl
Replied on: 02/08/2008 09:25:30
Message:

Just checking back in to see how my friend is doing. I'm still AMAZED how many people are still being prescribed this drug from hell. Wayno...if you read this please try again to get off this horrible drug!!! It will be safer for you for your upcoming cardiac surgery by far. I've now been off for 2 months. Thank GOD!!! It seems to take a really long time for it to get out of our system, no matter what the doctors tell us. I'm still somewhat nervous but I'm beginning to think that is just my personality. I can live with it. But I NEVER EVER want to experience what Geodon withdrawals feel like ever again. Just know there are people out here that care and it is a long road but it's worth it!!!


Reply author: Johnny D
Replied on: 03/01/2008 14:09:28
Message:

Finally... im 100% clean off Geodon and Lexapro and im feeling great, i've been drinking more than usual but im in college so i guess its somewhat of a norm out here. nobody has posted anything in awhile so i figured i should throw somethin' up. i feel for the first time in a long time that im back to feeling myself. my problem in the beginning was they hypo-mania but its been good to me since i go to the gym everyday and train very intensely to keep the mania at bay. i hope all of u are doin' well on your quest to come clean of these nasty meds and hopefully ill be med free for the rest of my life whether ive been diagnosed as bi-polar or not. ive never been depressed and they force u to take pills that actually make things worse. its great to be in control i wish u all the best.


Reply author: erbiumfiber
Replied on: 04/01/2008 19:01:09
Message:

This thread has been really helpful. I have had recurring bouts of depression my entire adult life and was prescribed Geodon 6 years ago. I was taking a "*****tail" of Wellbutrin, Effexor, Klonopin, and Geodon. I weaned myself off Effexor and that was a TOTAL NIGHTMARE. I weaned myself off most of Klonopin and now take a toke .25 mg at night. I have weaned myself from 80 mg down to 40 mg of Geodon and now want to do the rest. I have a $10,000 deductible health insurance policy so the cost of Geodon is a factor given that I am now paying college tuition for my daughter.

One psychiatrist tried to pin the "bipolar" label on me, using "irritability" as the "hypomanic" episodes. Well irritability is also a sign of depression!! I ditched him and found a much better person. I live in Japan so I can't really see the psychiatrist very often but she wants me to ditch the Wellbutrin and go up to 100 mg of Geodon!! NO WAY!! I have been stable since moving to Japan five years ago and plan to stay here because my job is very good and not stressful at all.

So I am going to take it really slowly. I think I'll do 10mg in the morning and 20 mg in the evening, followed by 10 and 10, 0 and 10 and 0 and 0. I admit that I don't titrate and just estimate the geodon by dividing up the capsule. They are WAY too expensive to throw any bit away!! I was dividing the 80's by 1/3 which is exactly the amount that fits into the little blue part of the capsule. Now I am doing a little less than the blue part so that 1 80 mg capsule gives me 4 doses. I ran up a lot of credit card debt due to meds and I am just now beginning to see the light at the end of the tunnel. But mostly I want to get off because who knows what the long-term side effects are?!?! It can't be good for the liver, that's for sure.

I think I'll wait until the Geodon is finised to get off Wellbutrin. She says I can just go cold turkey on the Wellbutrin but I will taper off gradually.

Then it will be down to the .25 of klonopin which is nothing, really.

By the way, since quitting effexor, I have lost about 12 pounds (I was not overweight but it is nice to be quite slim as I am now). I do think all these drugs pack on the pounds.

Well, thanks in advance for any advice you can give me. I will keep you posted on my progress in case anyone else tries to get off this drug.

Mostly I think the thing that helped me the most was moving to Japan and that none of the medications really did a thing for me.

Oh and the symptoms that I have had from withdrawing from Geodon have been anxiety, sleeplessness, and a prickly feeling all through my body (a little on the electrical side as some have described).


Reply author: Writer Chick
Replied on: 04/10/2008 16:20:34
Message:

Hi everyone. I wanted to share my Geodon (horror)story. It's been one year since my experience and to this day it still makes me angry to have had to go through it. It makes me even more upset to see how many people had similar or almost identical withdrawal symptoms as I did and yet the medical community has no clue about the horrible things this stuff can do to a person.

I was diagnosed with bipolar 1 in May of 2006 after a major breakdown and hospitalization. I have been on many meds since my diagnosis with Lithium and Lamictal helping the most. Last spring I was slipping into a depression and was prescribed Geodon by my psych NP (who I like and trust).

I was only on it for about 6 weeks at 40mg (I think). I couldn't sleep and lack of sleep is a major trigger for mania for me. I talked to my NP and she advised me to stop the Geodon. I don't remember now if it was the next day after stopping it or the day after, but I remember feeling really weird. Out of touch with reality, sensitive to noise etc.

I was afraid to get out of bed. Then I'd feel hot and change my clothes. Then my clothes would feel annoying, so I'd change them again. I would do this without any real thought behind it, so sometimes I was surprised I was wearing different clothes. I kept showering but I wouldn't remember getting in the shower at first, it's like I'd realize halfway through that I was in the shower.

I've been living with my parent since I got sick in 2006 and they had no idea what was going on with me. The first night the symptoms started I saw a lacy pattern in front of my eyes and long strands of silver trails coming off my finger tips. I felt like I was moving in slow motion. I could not sleep for about 3 or 4 days. I was paranoid. I put a blanket over my window because I thought the neighbors could hear my thoughts.

At one point I thought my parents had shrunk my bedroom and made the rest of the house bigger. Then the suicidal thoughts hit me and I couldn't stop crying.

I finally ended up in the psych ward and started to feel better after a few days there. When I got out I Googled Geodon withdrawals and this was one of many boards where people posted about their nightmare with this med.

My psych NP had never heard of Geodon causing these symptoms and just assumed that I'd had a severe bipolar episode.

Sorry this is so long. I've needed to share this story for a year now & I hope that there is a way for the "establishment" to be told about this and for them to listen and to yank this garbage off the market, or at the very least put strong warnings on the label so people know what they're getting into.



Sharon...


Reply author: marchiquita
Replied on: 04/12/2008 05:55:11
Message:

Hello, im a frequent reader of forums bot not a frequent at posting, but for this one i have to. I was diagnosed bipolar since last november , i was taking 300mg of wellbutrin and 1000 depakote an i stopped because my doctor somehow quit the psych clinic or something and anyways i didnt like the feeling of depersonalization, if i spelled it right, spanish is my first language..anyway, I didnt think the meds were doing much, until i had another extreme depression episode lost another semester of school, and decided to try a new psych. doc.

To cut the story short..this doc prescribed me abilify which was awful. and then changed me the next day on depakote, wellbutrin, klonopin, geodon and ambien because of the imsomnia of course. BUT IM ONLY 23!! this is way too many pills for me...last night i was late to the pharmacy and couldnt buy my refills, i had only been on geodon for 7 days, i felt this horrible chest pain, i still do. A feeling like floating or weird paranoia, im having constant fights with my family, i feel flashes of warm and cold, my blood pressure is higher than usual and my heart beats are crazy, my stomach feels weird,i couldnt sleep except for some 30 minutes in wish i had a dream where i was trying to kill myself and then i was dying and scared i woke up because of the increasing heartbeat.

This is only day one and this withdrawal is a horror!, and judging by your experiences its gonna last some days. I have a job, a school and a life to get back to, i cant beleive i was tricked in to this drug market.....anyway, what if im not even bipolar!!?

please anyone reply to this if you have any advice, i will have someone buy my medicines today, well, i decided just to stick to the klonopin to help me with this, but im too afraid to take anything else, except for cranberry juice, to see if i can get this stupid drug out of my system.
thanks


Reply author: marchiquita
Replied on: 04/12/2008 07:12:06
Message:

by the way i was already taking depakote 1000mg, wellbutrin and klonopin when i was prescribed geodon...i never took the sleeping pill, and the cogentin i was suposed to take for abilify's side effects...


Reply author: daffygirl
Replied on: 04/13/2008 07:51:15
Message:

Hi Marchiquita,

Hang in there.....Geodon is wicked as you have found out. I don't think this drug cares how long you've been on it. You have experienced about most of the withdrawal signs from this drug. It's just plain nasty and I don't think the docs that prescribe it have a clue what it does, taking it or not taking it. I feel docs make the bipolar diagnoses too easily nowadays. They said that about me too but in my experience, or opinion, the drugs made me like that. Hopefully you can continue without taking the Geodon. I agree....you are too young to be taking this many meds. Good luck!!


Reply author: erbiumfiber
Replied on: 04/15/2008 21:03:07
Message:

Hi Marchiquita,

Yup, sounds like classic Geodon withdrawal to me. And you were only on 40 mg. Some people are on 120 mg and have been for years, so you can just imagine the withdrawal. Since you're already having such awful symptoms, I would just tough it out. I finally tapered down to nothing and the first three days were hell but now I'm feeling pretty good- still some tingling feelings but I know that will die down with time.

If you can get a second opinion, do it. Just sounds like WAY too much medication.

I took an over-the-counter sleeping pill (Unisom) to deal with the insomnia side effects of getting off geodon. It was a huge help and I also felt calmer by the morning.

It seems to me that doctors get a lot of free samples from the pharmaceutical companies and that's how people get started on so many kinds of drugs. And if one patient has a good response, then the doctor is more likely to prescribe it to other patients, in my opinion.

Also I don't think the effects of interactions of many types of psychiatric drugs taken together has been very fully researched so I feel we are kind of human guinea pigs in that regard.

Good luck finding the right person and the right treatment.


Reply author: marchiquita
Replied on: 04/22/2008 13:46:06
Message:

Hello,

Thanks for your responses,I can still feel the effects of this drug, I am more paranoid than I usually am, and also having constant panic and anxiety attacks. I stopped taking almost all the medicines except for wellbutrin cause I have been consumed by a bigger depression.

I had an appointment with another doctor today, and she couldnt believe the amount of meds I was prescribed at a time. She did not jump and make any conclusions and diagnosed me. She wants me to take lab tests...i have done that before, but she just wants to make sure. She also believes in and gives psychotherapy, and prescribed me a small dose (2mg) of abilify...and will take that, and that only. Hope this all goes well because I really do feel out of control.

I have hope,though, I will overcome this and if in fact this third opinion concludes that I am Bipolar I will learn to live with it.

Thank you so much.


Reply author: daffygirl
Replied on: 04/22/2008 14:26:25
Message:

I felt the effects of this drug for A LONG time also. Anxiety was really bad. Give it time, it will get better. Hopefully the Abilify will work for you. Keep posting as we all care how you are doing.


Reply author: Renee2008
Replied on: 06/11/2008 17:55:26
Message:

I've been on Geodon, 60 mg & Lamictal 250 mg for about 10 mo. I have been feeling sooo depressed I can barely function, and am really wondering if all these meds are only making things worse. I am going to see a new Dr. next week...hopefully she'll see that coming off may be tough, but benefical in the long run. Any suggestions? Cold turkey or slowly tapering off (I've been told tapering off is the best way to go) All I know is that I cannot live like this...I wake up in the morning feeling very bad, kind of lost and anxious, and the rest of the days are just ruined; I can't seem to feel good and laugh anymore. Any input, anyone?


Reply author: Gio1975
Replied on: 06/12/2008 11:25:02
Message:

I was on 100mg of Geodon.I told the doc i wanted to come off. I went from 100 to 80 to 60 to 40. and then i did every other day.
the nights i didnt take it i wasnt able to get any sleep. i am now completely done with Geodon and wellbutrin. i dont believe i was ever bipolar. docs throw that diagnosis around too easily and hook people onto meds they dont need. i feel totally fine now. my only issue is the insomnia i am experiencing from the geodon withdrawl. its been less then a week. thanks erbiumfiber,i will try unisom. i tried melatonin and benadryl and either of them worked.


Reply author: jane_m
Replied on: 06/19/2008 03:05:00
Message:

I was put on Geodon starting with two 20 mg doses twice a day. One in the morning and one at night. Changing every five days until I am at my full dose of 80 mg in the morning and 80 mg at night which is today. I feel more normal than I have felt in a long time. I might have what someone called post psychotic depression. I have depression from just getting a pacemaker on April 9 on top of that. Something I just want to cry. I will see what I'm like when I have been on Geodon for a week. I have a therapist appointment tomorrow and my second pyschiatrist appointment on Wednesday.


Reply author: Johnny D
Replied on: 06/25/2008 19:19:41
Message:

i highly recomend that you DO NOT up your dosage to 80mg morning and night time, this drug causes severe parkinsonian symptoms at doses such as that and i have experienced them. one day my jaw moved about 4 inches to the right and got stuck there for quite some time until i got a hold of some congentin. once again you should really reconsider your dosage and stay at the absolute minimum you need to function

Jon Dobson


Reply author: Gio1975
Replied on: 06/27/2008 12:49:11
Message:

It has been 2 weeks now that i am off of Geodon.
I can't sleep. I have the worst insomnia. Does anyone recommend anything for insomnia? my doc said to try Benadryl but that did not work. I need something strong.


Reply author: Johnny D
Replied on: 06/27/2008 16:07:41
Message:

do you actually fall asleep ever or have u been sleep deprivated for 2 weeks now? i've tapered down to about 10mg and it takes me awhile before i eventually pass out but once i do im out for a good amount of time. i will soon be off of it entirely but it seems that this medications takes awhile to get out of your system but who knows. i would recomend lorazipam or ambien but both of those **** me up too good so i just stay away. let me know how everything goes... peace


Reply author: doxie1064
Replied on: 07/11/2008 12:40:20
Message:

I am not having a bad time at all with Geodon. I am on 180 mg/day along with 100 mg/day Topomax 90mg/day Cymbalta 1mg/day xanax and 20mg/day Ritalin. This seems like a lot of meds but I'm a highly functioning Bipolar Disorder ADHD Panic Disorder diagnosed person managing to hold down a full time job so something must be working right. I'm the most stable I've been since I was in 8th grade and I'm 24 now. Don't get me wrong. I know when I have missed a dose of my medications. I get chills and feel like overall crap, but these medications are meds that work in your brain. Common sense will tell you that missing a dose is going to have an effect. Thats why you aren't supposed to miss doses. I'm generally compliant with my med regimen. I'm just saying that Geodon isn't all bad. Some meds work with some people some don't. Its all a matter of finding what works for you.


Reply author: daffygirl
Replied on: 07/11/2008 13:15:33
Message:

I couldn't sleep either. Even now I have trouble and it's been since December that I've been done with Geodon. Thank God by the way. I take Seroquel (script) about an hour before I plan on going to bed. Does the trick. I have gone off it too and had NO ill effects. :-) I did that to see what would happen as I know stopping Geodon is HORRIBLE!!! So now I don't worry if I decide to stop taking it. Which I'm not planning, everyone needs sleep. Hope this helps!


Reply author: rachael111
Replied on: 07/26/2008 02:15:32
Message:

My name is Rae and I'm sixteen. I'm on 160 milligrams of geodon in the morning and 160 at night.


Reply author: rachael111
Replied on: 07/26/2008 02:23:03
Message:

please help me im 16 and im on 160 geodon in the morning and 160 at night i stopped today cold turkey and now im hallucinating im shaking i cant breathe i cant control my facial movements i dont know what to do does anyone know if its ok to just start taking it again in the morning??????

quote:
Originally posted by itsjustmylife

hi i am coming off geodon at this very moment and i only take it 2 times a day at 20 mg the withdrawls i am having are horrible. im dizzy,vomiting,fainting,shaking like crazy,and having serious head acheas..this med sucks i would tell everyone to get off of it before u are super adicted like me.


Reply author: rachael111
Replied on: 07/26/2008 02:26:20
Message:

please help me im 16 my name is rachael im on 160 geodon in the morning and 160 at night i just stoped cold turkey today and now im hallucinating and i cant breathe and i cant sleep and my thoughts dont make since adn im shaky my jpupils are dilated i dont know what to do does anyone know if its safe to just start taking it again?????


Reply author: Johnny D
Replied on: 07/27/2008 23:39:59
Message:

i highly reccomend that you go back on your dose but not that heavy at all 320mg per day of that garbage is twice the maximum daily dosage i do believe. i had 160mg at one point and right now im down to about 5-10mg at the most daily just to fall asleep. make sure you have cogentin when you take it or you will suffer greatly. what happened that made you get stuck on that dose at only 16 years old? nobody deserves that kind of punishment, i wouldn't wish it upon my worst enemy. let me know how you're doing, i'll reply as soon as i can. either way, get back on A dose but not THE dose you have been taking.that's truly deadly to your mind and body without a doubt. once again let me know how things are going, i can only help.... later on


Reply author: rachael111
Replied on: 07/28/2008 05:08:16
Message:

Well, a couple of months ago I was hospitalized as an inpatient for four weeks, for attempted suicide, cutting, hallucinations, all that stuff, and so ever since I got out my doctor has been playing with my meds. Right now I'm on Prozac 30mg, Geodon 160mg, Xanax 1mg, Klonopin 1mg, and Thorazine 50mg. It's so many meds and I keep trying to stop taking them but I get caught and people threaten to put me back in the hospital. I don't know what to do. The other night I ended up just taking the 160mg of Geodon at like four in the morning, and then I passed out and slept until four the next day. I was twitching like crazy the whole time and my tongue kept doing these wierd movements. I didn't take my pills today because I have an appointment with my psych and I want to be awake. Ahhh.....


Reply author: Johnny D
Replied on: 07/28/2008 19:50:23
Message:

well first off you need to be taking 1-2mg congentin with your geodon or else you will suffer from the muscle spasms, teeth grinding, and tongue twisting movement. i doubt you need thorazine along with the 160mg (maximum dose) of geodon. i was on 160mg and 20mg of lexapro, i ditched the lexapro almost 6months ago and i've felt much beetter since. right now i'm on barely anything and i feel much better and more sane than i ever felt on medication, i don't believe i was ever bi-polar and the hospital made me feel more crazy than ever. take it day by day but don't cold turkey anything just because our bodies do withdrawl from these drugs worse than illegal drugs. be easy, let me know how your appointment went, but overall i think you should be ok once you wean yourself off... just be careful and get that congentin immediately.


Reply author: rachael111
Replied on: 07/29/2008 01:09:02
Message:

I ended up getting the stomach flu today, so I've been throwing up all day. I haven't slept since 24 hours ago. 160mg of geodon plus the thorazine doesn't help me sleep at all. And the thorazine knocks me out for like 18 hours after I take it so it sucks. It feels like my head isn't even attatched to my body (i mean that in a bad way). I definitely have the muscle spasms and the teeth grinding and the tongue movements but whenever i try to tell my mom she says that I should just get through it; that its not that big of a deal. My appointment with my psych went okay today. We didn't change any meds. I told him about stopping the geodon but he doesn't want to and im sure if i decided to stop it on my own theyd put me back in the hospital. next time ill ask him about the congentin. so you take geodon to sleep at night?


Reply author: daffygirl
Replied on: 07/29/2008 15:03:03
Message:

I hope you have read all these posts about stopping Geodon. Throwing up in one of side effects of stopping this drug from HELL. Like I said before, I was only on it for a month, topping out at 80 mil. Made me feel really weird so I lowered it to 40, twice a day. Since they cost so much I dropped it even more and eventally went off. Not without all hell breaking loose. I still feel the makers of this drug need to take it and stop and see what it does to people. They would ban it from the market. I hope you can get along with other meds and quit this one...just remember when you do get off of it.....IT WON'T BE EASY. Wish you all the best!!


Reply author: Johnny D
Replied on: 07/29/2008 23:06:29
Message:

nobody can possibly understand the effects of this drug unless he/she has taken it for themself. its very powerful stuff even at low doses and the muscle spasms/ teeth grinding / tongue twisting is mainly the worst of it all, it can also cause panic attacks as well i know first hand. and yes i do take about 5mg per night right now because if i don't i get serious nightmares that wake me up in a prety aggrivated state. you should not take this medication at all if you are not also taking 1-2mg of congentin along with it because i was taking it without congentin and my jaw moved 4 inches to the right and got stuck like that for almost an hour before they realized something was seriously messed up. get the congentin asap and stop taking the thorazine for god sakes, that stuff is poison from back in the 60s the only good thing about thorazine is if your on acid or mushrooms and you get yourself into a bad trip it will bring you back to earth immediately. either way. you don;t need 2 antipsychotics plus the anti-depressant plus that other crap on top of it. stay positive because you will make it through this. i finally did pretty much i feel so side-effects whatsoever to this day so take it easy and all will be well... later on


Reply author: rachael111
Replied on: 08/01/2008 03:18:26
Message:

Thanks Daffygirl and Johnny. I got the congentin yesterday and its been working mostly. We stopped the thorazine too because there were way to many dangerous side effects. I look lunesta last night to sleep but it only worked for like 3 hours and now I'm awake again. also my doctor won't prescribe me any more sleeping medications, which im mildly addicted to. I don't see him again until two weeks from now. I tried Ambien a couple of weeks ago, but it kept making me hallucinations and I was sleep walking. I feel better today now that the thorazine is out of my system, but I don't know what to do about sleeping. Does anyone have any ideas? oh johnny i forgot to tell you that when i saw my doctor he moved all of the geodon to the morning instead of half in the morning and half at night. we'll see how that works out...


Reply author: rachael111
Replied on: 08/01/2008 03:25:50
Message:

I just uploaded a picture of me. Its not my best but whatever lol


Reply author: Johnny D
Replied on: 08/01/2008 23:47:12
Message:

i honestly feel like taking it at night is much better because you're not all drugged out during the day, but that's just from my personal experience, im glad they kicked the thorazine and im surprised they didn't give you lorazepam.... its very addicting to i suppose you're better off... ambien is no good either. but either way i'm glad things have been getting better for you, try taking your medication at night, it may help you out during the day. i know i could barely do school wrk if i took that stuff in the morning. but either way.... stay on track keep the positive thought i'll talk to ya soon... later on


Reply author: daffygirl
Replied on: 08/03/2008 17:09:14
Message:

Your welcome Rae!!

How are you doing today??? I'm hoping you have finally gotten some much needed sleep. Just remember...were here for you!! Take care!!!! :-)


Reply author: rachael111
Replied on: 08/04/2008 05:41:05
Message:

Hey daffygirl adn johnny,

I decided to stop taking the geodon for good. I've been off of it for 24 hours and dont have any withdrawal symptoms except for insomnia. Last night I took four xanax and it worked at first but then i woke up at 3am and couldnt go back to sleep. so now im on the computer lol

I'm not going to tell my parents or my psych that I stopped the geodon because they will put me back in the hospital. i was originally prescribed geodon because of the hallucinations i was having and the racing thoughts. im on the maximom dose and its done nothing for me. all it does is make me really loopy. the prozac is helping with the withdrawal side effects, which i read it can do. ive tried all of the antipsychotics but none of them worked. the seroquel and risperdal made me so tired that i would sleep all day and all night. and the abilify was the worst. i felt like i was crawling out of my body i couldnt sit still i was constantly shaking my legs and hands and it made me manic. the only antipsychotic i havent tried is the zyprexa, but im not willing to go on that. it wouldnt matter anyway because all of those meds have the same side effects. im a bit manic right now if you hadnt noticed. i im schizoaffective, which is a step down from schizophrenia.

i love the prozac it has helped me alot.

oh johnny i also forgot to tell you that another reason i was in the hospital was for an eating disorder. i got down to 100 pounds. right now im 125. i still struggle everyday with the eating thing. my mom basically has to force me to eat because i wont do it on my own.


Reply author: daffygirl
Replied on: 08/04/2008 13:35:36
Message:

Hey,

4 Xanax???? Wow, be careful!! I'm glad the Prozac is helping with withdrawal symptoms. I hope that continues. Never heard of the other med you mentioned. The seroquel makes me sleepy too, but I don't take much. Like 1/2 of a 50 mil, just enough to relax me. Or I won't sleep either. I bet the larger amounts could make someone act like a zombie. Not my thing. I hope you continue to eat, that's very important!!! Sounds like you got this under control for the moment. Take care Rae, and I'll keep checking back here to see how your doing!!


Reply author: Johnny D
Replied on: 08/06/2008 23:44:52
Message:

once again let me remind you that going off geodon without tapering can be very dangerous... it can most likely lead you straight back into the hospital. sleep is very important and if you don't sleep well you will go straight back into mania then become paranoid and back to being sick again. you must slowly taper off the drug. i know it sucks really bad but that's what you got to do if you want to do it the right way. don't give your doctors or your parents any reason to think you're doing harm to yourself because i'm sure they are watching you like a hawk. be careful, be safe, and just stay very aware of how you are feeling from moment to moment. have a cigarette if you have to or a nice cold beer that does the trick for me... i'm going out of town for awhile but i'll be back next week. until then take care of yourself


Reply author: Jacurutu22
Replied on: 08/07/2008 15:18:14
Message:

If my post is bad, I'm sorry but I've never posted to a site like this and have little to no idea what I'm doing but here goes:

I'm 28, if that matters. I've been on Geodon for 16 days (today would be 17 if I take it). I was initially prescribed 20mg at night for bipolar/mixed episodes. For the record I also take Catapres for blood pressure twice a day, though I'm supposed to be gradually stepping down off of that. The Geodon makes my pressure drop more than usual, but once it stops dropping it gradually goes up to higher levels than it used to, and more quickly. Moving on...Every afternoon, around 3 or 4 o'clock, I'd get really animated, restless, and irritable. I had a therapy appointment on day ten and my therapist said I was manic, and she agreed with me that this was an unusual state for me to be in (we don't think the diagnosis is right, btw). The diagnosis is a first for me, though I've been diagnosed with so many things I didn't even question it. I don't know why I didn't question the medication, too, but I'm questioning it now. Anyway, last Saturday (day 12) I felt nearly hallucinogenic, and was reminded very strongly of what benzo withdrawal felt like. The recommendation was to increase the dosage to 20mg BID, as apparently the side effects are worse on low doses. Adding the daytime pill dealt with the agitation (an understating word for it) but I found myself losing a lot of other aspects of my life, like laughing and being able to read (I have to read a sentence three times for it to sink in and I still end up not remembering much of what I read, which is drastically different from the way I usually am). I started mixing my words up and stuttering, my hands have been getting tingly and numb and my neck is tense and stiff throughout the day. I skipped my noon dose on Tuesday (day 15) because my blood pressure was pretty low and I didn't want to risk bottoming out. I had an appointment with the prescribing doctor and, long story short, it went badly. The nurse, with whom we speak after an appointment, suggested I take it as directed until Thursday and if I still didn't like it to call. To be honest I didn't feel too bad even though I had skipped the daytime dose, but I figured I've gotten myself into enough trouble in the past trying to figure this stuff out myself I should do what the nurse said. So I took one that night, took the two yesterday, and decided I'm done with it. I fancy myself a writer and with an inability to read and speak properly I can kiss that goodbye. I can't emote properly and I have no patience, so I can't play with my son. I felt like laughing at something last night and it just wouldn't happen, like an emotional impotence. I haven't taken a daytime dose today and I feel a little rough...elevated heart rate and blood pressure (so much for coming off of the Catapres), and the flushed feeling in my shoulders, neck, head and face. There's some nausea that comes and goes, I feel kinda weak and shaky, and my fingers are numb and cold. All of this sounds pretty normal after reading the thread, but I'm not sure how much worse it's going to get or when it's going to start getting better. Somehow, this medication manages to, instead of treating the problem, become the problem. I've only been on it a little over two weeks and I haven't been taking it at the 40mg/day for very long...should I still bother to gradually taper my doses? Both the (different) nurse at the psychiatrist's and the pharmacist said I could probably just stop. I don't mind going through a few days of hell, it still won't top the months of getting off of benzos, but I'm just not sure. It seems like doing it gradually will just elongate the process, and I'm much more for getting it over with. It seems that, with the low dose and brief time frame, I should be ok but I'm just not certain and the Anxiety that this doctor didn't diagnose me with (even though 6 shrinks over 16 years did) keeps me doubtful. Sorry if this was too long or I left anything out, I'll check back and fill in any details asked of me.


Reply author: daffygirl
Replied on: 08/07/2008 15:47:15
Message:

Wow! Emotional impotence is exactly the right words!! I couldn't read either on Geodon so your not alone. As for just stopping cold turkey? If your like the rest of us, (even tho some of us didn't take it long either) you might experience the bad withdrawals. Doctors have even said there isn't any withdrawals effects. WHATEVER!!! Been there. I don't know anything about blood pressure meds so I can't post on that. If you can, read all the posts about stopping Geodon and be careful. I'll check back here later.


Reply author: Jacurutu22
Replied on: 08/07/2008 16:07:54
Message:

Thanks for replying. I was worried I was either going to wait days for a response, or go completely without. I just did some more researching and found out that Geodon can interact with Prednisone, which I was on for a 12 day taper for asthma when I was prescribed the Geodon. According to the Wikipedia page on Geodon CYP3A4 inducers (like prednisone) lower blood levels of Geodon, so that would explain why I was flipping out so badly in the afternoon. Someone in another thread said it was you had to take the pill just for the withdrawal, and I totally understand that now. Grapefruit Juice, which inhibits CYP3A4, can make levels higher by slowing the breakdown. I might try some of that to see if it helps ease me off. My math has me at a little over 4mg in my system right now, it seems silly to bring it back up. I went through Klonapin withdrawal, I think I can handle this for a few days, but man oh MAN does this medication suck. Sorry for yet another long post, thanks again for responding :)

Update: Pharmacist said Grapefruit Juice was a bad idea. I took a Benadryl a little while ago for the jitters and it REALLY helped. The Pharmacist seemed to be under the impression my experience should peak soon if it hasn't already, which makes me optimistic even if I don't totally believe him. So far so good, though. I feel a lot better than I could have expected, so maybe I've lucked out. This forum really helped me understand what I was going through, thanks to everyone who posted their experiences. I know withdrawal sucks. When I was getting off of Klonapin my motto was "The pain means it's working." Hopefully everyone can work through this Hell and find themselves whole on the other side.


Reply author: daffygirl
Replied on: 08/07/2008 17:35:57
Message:

I'm so glad you re-posted about the grapefuit juice! That's about the biggest no-no so they say. At least that's what I was told when it was prescribed. It seems all the docs here lately are saying bi-polar to all of us. I hope your evening doesn't get any worse. I was told to take a xanax, that it would help. This was AFTER all the bad stuff happened. Fine time to tell me. LOL So if you get sick to your stomach, dry mouth, feeling disconnected, flushing, aaaa,let me think what else..... vomiting, not being able to sit still, (pacing) and big anxiety. It was a long week, let me tell you. It sucked to be honest. Not a problem with the long posts. When you need help and want to know about stuff, it REALLY helps to put stuff out there. I hope it goes smoothly for you. I also took a larger amount of Serequel at night to help me calm down. I really hate meds,(especially Geodon) I know their supposed to help but sometimes they just make things WORSE. Let us know out here how your doing!! :-)


Reply author: Jacurutu22
Replied on: 08/07/2008 20:13:10
Message:

It's been 23 hours since my last dose. According to the half-life math I've got about 3mg left in me. I don't know if it's the Benadryl, the knowledge that I'll be ok, or just plain luck, but I'm doing really well. My face feels a little funny, and I'm a little shaky, but more weak-shaky than convulsion-shaky. I feel a LOT better "inside", where it counts. I checked my blood pressure and it's a little elevated but nothing the Catapres won't take care of when it's time to take it. I think I'm going to take the Benedryl every four hours until I fall asleep instead of every six, just in case it's the reason I feel so OK. I feel guilty when I think about the people here who have been on much higher doses for much longer periods of time. Thanks to the Klonapin withdrawal experience I can completely imagine how much worse it could be, and what it would be like day after day. I forgot to add in my last post that the pharmacist said that although Geodon supposedly has the lowest occurrence of side-effects compared to other atypicals, it also has a much higher occurrence of withdrawal syndrome. Funny how that never came up at the doctor's. They look at things so narrowly, it's no wonder they never bother too look at a patient as a whole person. At any rate, I'll check back tomorrow with an update. Thanks again.


Reply author: rachael111
Replied on: 08/08/2008 08:23:59
Message:

Hey Jacurutu22,

I've been on Geodon for about four months at 160mg a day, and all it seems to have done is make things worse. The doctors kept saying the side effects will go away with time, but guess what? they HAVEN'T. a week ago i tried to go off the 160mg cold turkey and it was like hell. i was hallucinating like crazy, i couldnt breathe, my thoughts weren't making any sense. I kept doing these wierd tongue and facial movements. I'm only 16 and I've already tried every antipsychotic there is. I'm also on prozac, xanax, and klonopin, and like four different sleeping meds. I've only slept one day in two weeks because nothing works. Ive tried lunesta, ambien, xanax, klonopin, trazedone, thorazine (don't ever try thorazine i almost died while i was on it). ive also tried melatonin and benedryl but those do nothing for me. last night i had to take SIXTEEN xanax to fall asleep, and after that i only slept for three hours and was up again. also, never take congentin with geodon because i took it and it put me basically into a coma for 12 hours. the reason i took the congentin was because the geodon was making me twitch, and the congentin was supposed to stop that. it did nothing except knock me out. i almost had to go to the emergency room. im also bipolar, although my original diagnosis is Schizoaffective disorder. hope that helps...


Reply author: Jacurutu22
Replied on: 08/08/2008 12:57:27
Message:

40 hours since my last dose. I've less than half a milligram in my system if my math is accurate. I'm still on edge, but it's much less hostile than I had expected, more scared. My heart's kind of pounding, pulse is fast. I feel a little nauseous but unlike last night it feels much more connected to the anxious sensation than a stand-alone problem. I've been taking one Benadryl every four hours and that helps loads, but I couldn't remember exactly when I took it last so I waited what has definitely been a little longer and I'm feeling it. I slept longer last night than I had since I started on the Geodon, and I'm looking forward to a day on the couch. I'm a little weak and shaky, but still, I feel loads better in my head. Last night I not only managed a full blown conversation about something meaningful but I sat down and wrote a 1,000 word essay in about ten minutes that I could easily expand, and I couldn't write a single sentence in the past two weeks. So I feel like I've got the flu, but I feel good about it...the pain means it's working.


Reply author: daffygirl
Replied on: 08/08/2008 15:57:12
Message:

Hi Jacurutu22,

Congrats on your essay!! What a great thing to be able to do that again. Happy for you. :-) The being scared and heart pounding is all part of it. Hell I got so scared I went to the ER. This still could take some time, so don't be discouraged or surprised. I wished I'd known about taking Benadryl. But this is another new thing that just might help someone else. God forbid people even start this drug. Are you having any appetite at all? I didn't, I had to force myself. I think I lived on applesauce for a bit. LOL Never got hungry. Keep doing what your doing, seems to be working!! Hope your weekend is relaxed.


Reply author: Jacurutu22
Replied on: 08/08/2008 16:35:58
Message:

I've dealt with nervous lack of appetite for more than half my life, so as much as I've noticed a decrease it's not too hard to get my meals down. I'm dealing with a wicked bad headache and now that's what's making me nauseous. I get goosebumps every now and then, but it's nice to actually feel it...those two weeks seemed so much longer than they were. I can't describe the night and day difference in the reading/writing department. I'm still verbally stumbling a bit but it's happening less often. The best part is that the "essay" is about revelations I had regarding my overall psycho-emotional predicament and rereading it today it looks like I've made a lot of progress...so it's on with life after all. I spent so much time this year trying to get free of drugs and they put me on something seemingly just as hard to get off of, it cracks me up in a sick way.


Reply author: daffygirl
Replied on: 08/09/2008 12:17:23
Message:

At least you can look at this with a sense of humor. I don't understand why they prescribe this drug anyway. If it helps someone fine, but it seems that it does more harm than good. "In my opinion." Each day should get better for you. I hope your headache has gotten better, and the nausea. I hope you continue with your wtiting because even your posts are interesting. Take care and Good luck!! :-)


Reply author: SullenLotus
Replied on: 08/09/2008 13:15:09
Message:

Hi everyone and big hugs to all. My name is Deb. And it's wonderful to meet you. I'm 43 years old, 'labelled' Bipolar about 5 years ago. Dxd with clinical depression since 1987 which then become Bipolar about 5 years ago. I have taken every kind of psychotropic drug known to man....even went off Paxil (very difficult to do if you've done so you'll know what I mean) Geodon is by far the absolute WORST psychotropic medication on the market. I began taking it about 4 or 5 weeks ago prior to a 4th psychiatric hospitalization as a result of suicidal ideation that had been going on for months. I'm on a plethora of meds and am considering "high functioning". I've been married almost 19 years, have 2 children and a professional career in law. Bottomline is I've come to realize that I don't know where the label Bipolar stops and the "Deb" begins. I'm tired of defining myself according to a label that's place upon me. My symptoms have only worsed with the diagnosis and the addition of drug after drug after drug. I used to think that anti-psychotropic drug advocates were wingnuts. Now, I'm beginning to side with their camp. For years, I've been drugged. I haven't dealt with my real basic issues in psychotherapy which I have recently started to do via a good therapist trained in PTSD (I was sexually abused multiple times as a child). I've been labelled Bipolar, Major Depressive, Borderline Personality Disorder, ADD and Anxiety Disordered. What I realize now is that I did better with nutrition, exercise, lots of self-care. I bought into the logic of drug companies and was led to believe that thinking outside of the psychiatric mode of thinking was somehow 'dangerous' and a sign of my illness. I have now started to question EVERYTHING. Are these meds making me worse? My first symptom ever was in 1987 - panic attacks resulting from PTSD. Instead of dealing with these issues via therapy I was drugged. If I knew then what I know now. Christ, things would be so different. My husband and I are in marital counseling and that counselor has made more sense to me than my psychiatrist of 6 years who has repeatedly given me drug after drug after drug in order to manage my symptoms but I've come to believe that the drugs are causing the symptoms. Too many drugs. I don't know what drug is making me feel what way. There are too many factors involved.

Back to the GEODON.......DRUG FROM HELL. Place on this med prior to hospitalization, dosage increased during hospitalization....nightmares began, horrible nightmares awakening me. I noticed that I was experiencing withdrawal between dosage when I came out of the hospital (at this point psychiatrist had INCREASED the dosage)..symptoms worsened.....everyday at about 3pm through bedtime I experienced debilitating dizziness, headaches, nausea and fatigue. I mentioned it to her which she attributed to too high a dose. So we went down from 120mg to 80mg of Geodon -all taken at night. Despite my concerns she wants me to continue this medication. She's doing all of the driving here. Well, I have decided that 6 years of this bull**** is enough. I'm going to start driving. I am currently "shopping" for a new shrink with the eventual goal of cleaning out my system of the meds: trying exercise, intensive psychotherapy, nutrition and orthomolecular vitam therapy as a means to deal with my emotions and mood swings. Currently, with respect to the Geodon I am weaning off very, very slowly AMA. Today I am down to 40 mg.....the dizziness, the shakes, the tics, tremors, fatigue, nausea are killers. I recently (and I'm not kidding here) have had all of these things go down in my life. "Normally" I am an 'in shape" 43 year old woman; however, the bottom seems to have fallen out. First of all, let me tell you the drug put 20 lbs on me in one month which has left me feeling achy and lazy.

Since 7/14, I've had a psychiatric hospitalization (these things are worthless and only serve to keep you 'safe' for a few days); 12 stitches put in my right arm (and removed 11 days later), a sebaceous cyst removed, oral surgery, cervical polyps dxd and removed. I feel as if everything is falling apart. But, I'm on my way back to help and am determined to remain in the driver's seat and be an advocate, taking control of my emotional and physical well-being. In spite of all of this I'm back to work but barely functioning after 5 o'clock. Somehow I push myself through the work day because I have to but all defenses go down after 5.....having a real tough time with this nasty Geodon.

I've read every single post in this thread and realize just how scary this drug is - not just to me but too many, many people as well as multiple other psychiatric drugs.

I could go on and on finishing my entire story but I'll save the other parts for later. Any advice on finishing up the withdrawal would be helpful. It becomes awfully tempting to take a dose of the Geodon when the withdrawal is pushing my limits and testing my sanity.

Deb

Namaste


Reply author: SullenLotus
Replied on: 08/09/2008 13:21:40
Message:

i didn't realize my image would appear so large....i'm sorry everyone.....

Namaste


Reply author: Jacurutu22
Replied on: 08/09/2008 13:55:20
Message:

It has to be done carefully because sudden withdrawal from large amounts can be dangerous. The pharmacist recommended the same step downs I've read here, where once you're taking 20mg a day for about week you space it to 20mg every 2 days, then every 3. Eventually, though, you get to a point where you stop completely. I know that with the fear the withdrawal brings it feels like you're stepping off a cliff blindfolded, and while in that state it seems impossible to believe it's going to end in anything but splat. But it DOES end, and without the splat. I'm still taking the Benadryl just in case but I feel much better already. A little weak and shaky, a little dazed still, but I can definitely see that I'm progressing towards feeling better. I've even pulled off laughter genuine enough to chase away some of the weakness for a moment. I don't know about how it would feel had I been on more, or for longer, or while also taking other medications. I still feel guilty that my experience has had so few variables and has gone so quickly and smoothly, because I know people who read this are suffering more than I did at the peak of the withdrawal. One bit of advice is that expecting the worst helps bring the worst about, especially when psychoactive drugs are involved. It's difficult to read all of these posts and not come out expecting to die from the experience, but the truth is that we can make it through to the other side. It takes support and guidance but mostly determination, not only to complete the task at hand but to make it to our feet when we're done. I hate using Nietzsche's quote, it's so overused, but "That which does not destroy me only makes me stronger" applies so perfectly to these types of situations. I believe very strongly that we CAN survive, we can learn from the experience, and we CAN move forward with our lives. The only way we can lose is to give up hope, to give up in general. If we give up, we let everything we've been fighting against our whole lives win, everything but us. Keep trying, keep hoping, keep fighting. Long live the fighters.


Reply author: daffygirl
Replied on: 08/10/2008 07:25:10
Message:

Jacurutu22 and Sullenlotus...HATS OFF TO BOTH OF YOU STRONG WOMEN!!!! :-) Being strong and postive is taking control. Each day it WILL get easier, just getting there sucks.


Reply author: Leslie Van Houten
Replied on: 08/10/2008 19:45:52
Message:

Hi everyone! Wow how awesome to read some of your e-mails! I think is so great that you are supporting one another. That certainly helps! I'm Leslie, I am the one at the very beginning of these replies which started the "how do I get off Geodon? thread" I wrote that in 2005. Wow how time flies - I can't believe it is already 2008! I just to notify all of you who are taking on the challenge to come of Geodon and other psyhiatric meds, I have now been off Geodon since July 2006. I do feel so much better. It took me alittle over 2 years to come off. It certainly is a horrible drug to be on and to come off as well. This drug mad me act very wacky, werod and not myself. I use to be on 8 different psych meds all at once which added up to over 30 pills as my daily total. I was barely functioning (surprise, surprise) and could not be the Mom, wife, and person I needed and could be because of all that "stuff". Amazing,I cannot understand why psychiatrists do that to their patients, well, I do know why, but I'll go into that at another time. In two more weeks I will completely off everything (with the exception of the occasional sleeping, which I am also weaning myself off of as well. I have come off all these meds by reducing it by 10% every 10 to 15 days depending on what my body was telling me it could handle. This way is by far the "easiest" on your mind and body. Of course comming off any mood altering psych drug is like suffering with a chronic illness for a time because you are so miserable most of the time until your off. I came off each med, one by one. My last one that I will be off in about 2 weeks, if my body will allow, is Klonopin. I now how frustrating it is when others. who have not been there. just can't understand no matter how hard you to try to explain it to them, over and over, but they just don't get it. This is another very hard one to get off too. Whew, I can't believe I can finally see the end of the tunnel to my "hellish" experience trying to get free from all those posionous psych meds. I've been working on the Klonopin on and off for the last 3 years. I listen to my body to tell me when it is ready to made another decease. It may sound kooky to some of you, but I will explain later. I have to say how proud I am that all of you are working hard to come of psych meds that actually can do more harm than good to most of us. Wow, how you support each other is amazing. I wish I would of had all of you supporting me way back in 2005 when I was in "hot pursuit" to get off the Geodon. God bless and strengthen all of you. I will write more later, I have to finsh packing for my family as we will be leaving for vacation tomorrow. Be blessed, Leslie V. H.


Reply author: Markus
Replied on: 08/11/2008 01:10:08
Message:

Hi All, I have been on Geodon 40 mg at bedtime for 2 weeks. I have been thinking about getting off it even before I saw this site, and now I wish I had never heard of the stuff. My question is, should I taper? To the layman, 40 mg per day and 2 weeks says just stop, Taking less for longer would hurt more than help.. I am not strong enough to do a whole lot of suffering right now, so what in your opinions is likely to happen?


Reply author: Markus
Replied on: 08/11/2008 01:24:59
Message:

By the way, I am also taking Lamictal 200 morning, 100 midday, and 200 at bedtime. I also take something to sleep, but don't remember what it is.


Reply author: daffygirl
Replied on: 08/11/2008 07:41:12
Message:

First of all...THANK YOU Leslie for starting this thread! If it wasn't for what you did you, where would the rest of us be? It does help to put our stuff out there for others to learn from, and for us to learn from them. I know it helped me ALOT!! I'm glad your finally getting to the point where you are, been along time huh? Congrats!! Keep going. :-)I wasn't on Geodon all that long but it was LONG enough. Same getting off results, no matter how long one has been on it. Seems it grabs a hold immediately. Best wishes!!!



Laurie :-)


Reply author: daffygirl
Replied on: 08/11/2008 07:48:38
Message:

Hi Markus,

Tapering would probably be your best bet. There has been alot of good things posted on this site that should be able to help you decide which way to go, or how to go about it. It seems to be different for all of us. Hope your doing alright today. Take care.

Laurie :-)


Reply author: Leslie Van Houten
Replied on: 08/11/2008 09:29:12
Message:

Hi Markus, I certainly admire your courage to begin that journey of coming off the Geodon. I can certainly understand why you would not want to take as long as I did to come of the medication. Either way it is tough, its somewhat easier with the smaller doses because it allows your mind and body to have time to adjust. Any kind of psyh drug, to put it in lay terms, takes over chemicals in your brain and introduces an "artificial" chemical that your brain may be alittle deficient in. The problem is that once the drug is in your system your brain then stops producing it naturally and allows the drug to do it for you. So, when you come off that medication your brain then is "shocked" that you no longer are no longer giving it what you were and the brain has to then "learn" to produce that same chemical once again. It takes time for the brain to heal from that kind of "realizaton" that it now has a job to do and begin producing what the drug was given it at one time. Since each person's mind and body make up is different you will need to listen to what your brain and body tell you when you begin to decrease the dosage. You don't necessarily have to do it as slow 10% every 10-15 days. It depends on how well you can "function" with your day to day responsibilites as you decrease at a larger dosage, and how your body will respond through withdrawal symptoms as you are coming off. Try a larger decrease, but from experience as well as the counsel I have received, you might want to consider when you reduce the Geodon, at whatever level you want, try to make the decrease on same day every week. because your body needs that 7-10 days to start realizing that it needs to "wake up" and start producing what you are taking away. Depending on the person, it can take around 7-15 days, you might be able to get away with a decrease every 5 days, but again it depends on your own body, so listen to what it is telling as you decrease. You know you best, so just be sure you are taking care of yourself as you go through this journey. I have found from experience that eating healthy is very, very instrumental in helping to minimize the withdrawals. Reduce or eliminate caffiene (aww, I know that one is hard, atleast for me it was), highly processed foods, sugary food, etc.. Try to eat more protein and veggies that are fresh whenever possible, and take a good grade of fish oil and omega 3's (that's brain food and aids healing). Well, I hope I didn't overload you with information. If you have any questions, if I can I will try to answer them. What's important is to proud of yourself that you are taking this step! Whatever you decide to do in regard to the amount you reduce, just be sure you take good care of yourself and be kind to "you" during this process. Be blessed with strength, peace, and courage. Leslie


Reply author: Jacurutu22
Replied on: 08/13/2008 14:10:07
Message:

It will be one week tonight since my last dose of Geodon, and for the most part I think I'm through experiencing all those wonderful leftovers. My blood pressure's still a little jumpy but it's actually kind of low, which might mean I picked up a virus sometime last week and it's catching up with me. Between just having finished a 12 day Prednisone regimen for asthma problems and the stress of the Geodon withdrawal I figure my immune system has to be roughed up just a bit. It's been getting a little better each day, though, just like the Geodon withdrawal did. If it stops improving I'll need to get some blood work done, but I think I'm pulling through all of it pretty well. Thankfully I'm disabled/jobless, so I have time to lay around when I need to. I've pretty much been resting, eating what I can, trying to get some Vitamin C. (I noticed today that I start to get nauseous and flushed after applying my Nicoderm patch, and those are typical side effects. I'm not sure why it's hitting me so hard, but it's definitely the trigger. So YAY it's probably not anything too serious) Today's the first day I've felt REALLY withdrawal-symptom free, with just a few tinges of anxiety (probably from the Coca-Cola I drank with my lunch). So, although I don't know how it would go with any other situation, having not been on any other meds and having only taken 20mg a day for 2 weeks, it looks like the withdrawal takes a full week. That'd be the bare minimum, and I would guess anyone on more for longer would experience a longer withdrawal. That's all the info I have from my experience, hopefully it can help someone out there. Keep fighting!


Reply author: Johnny D
Replied on: 08/25/2008 08:02:09
Message:

Hello everyone, i just returned from my vacation up north and while i had been taking about 5-10mg of geodon a night for awhile now, i didn't bring my medication with me on my trip and i've felt completely fine. i'm able to go to sleep at night without nightmares and feel more refreshed than usual in the morning time. last year in may, the doctor had put me on 160mg geodon 20mg lexapro, 2mg cogentin and 200mg seroquel. i took down each drug one by one and now i'm feeling much more sane and human. the lexapro dried out my skin and has strange sexual side effects. the seroquel gave me very disturbing and very vivid dreams / nightmares and left me feeling drunk several hours after i woke up. each med came with withdrawl side effects but you must take them down one by one and take everything one day at a time until it's all over and done with. i havent seen or heard from my psychiatrist in over 4months and i feel perfectly fine to have that robot pill prescriber out of my life. these ppl basically want you on meds the rest of your life and you will be if you don't take a stand and remember who you are or were before meds took over. these doctors don't know the real you, only you do. nothing beats being self aware of your physical, mental, and emotional well-being. years ago there weren't pills for ppl to just pop when they felt down and out or stressed out. being mentally tough is very important and also staying positive can do a lot of good. although i'm off the meds now, i'll still be around checking in and making sure that you guys can gain back what you had lost in a safe and healthy manner. good luck to all and i'll be in touch.... later on


Reply author: Miss E
Replied on: 10/14/2008 20:57:17
Message:

I have a teenage relative who takes Geodon 20mg twice a day. The biggest problem with the medication has been it makes him tired. It seems better to give it in the afternoon, and then before going to bed. This medication should be taken with food. He has been on this for seven months. Sometimes he will refuse to take the medication and goes into a real tailspin. He gets very angry, can't sleep, gets very aggressive. I would never suggest going cold turkey with this medication. It has really helped him with the mood swings. He has taken many other meds, and this is the only one that seems to help him.


Reply author: cmsoudant
Replied on: 10/23/2008 14:00:13
Message:

quote:
Originally posted by katie1

GLAD TO FIND THIS SITE. I HAVE NEVER BEEN TREATED WITH ANY ANTIPSYCHOTIC MEDICATION. I FELL 3 MONTHS AGO AND THE DR. GAVE ME HYDROCODONE. I BECAME ALARMED THAT I WAS ADDICTED TO IT. I WAS HAVING ANXIETY ATTACKS. I WAS TAKING 2 1/2 10'S A DAY. I MAY NOT HAVE EVEN BEEN ADDICTED. WHEN I WENT TO THE DR. HE PUT ME ON 60 MG. OF GEODON FOR 3 DAYS (THIS IS DAY 3), THEN TOLD ME TO TAKE 80MG. A DAY FOR 10 DAYS AND COME BACK. HE DIDN'T TELL ME WHAT IT WAS AND CERTAINLY NONE OF THE SIDE EFFECTS. I AM SCARED TO DEATH. I HAVE READ A LOT ABOUT IT ON THE NET. CAN ANYONE GIVE OUT ANY POSITIVE FEEDBACK. HE SAID I ONLY HAD TO TAKE IT FOR 10 DAYS, BUT THAT REALLY DOESN'T MAKE GOOD SENSE. IS 10 DAYS LONG ENOUGH TO DEVELOP LASTING PROBLEMS. I AM 59 YEARS OLD, THIS MEDICINE ISN'T RECOMMENDED FOR PEOPLE IN THEIR 60'S. WHEN I WENT TO THE DR. I WAS HAVING ANXIETY ATTACKS BECAUSE I HAD NOT BEEN SLEEPING HARDLY AT ALL.
CAN SOME PLEASE GIVE ME SOME FEEDBACK?



Reply author: cmsoudant
Replied on: 10/23/2008 14:13:12
Message:

[quote]Originally posted by katie1

GLAD TO FIND THIS SITE. I HAVE NEVER BEEN TREATED WITH ANY ANTIPSYCHOTIC MEDICATION. I FELL 3 MONTHS AGO AND THE DR. GAVE ME HYDROCODONE. I BECAME ALARMED THAT I WAS ADDICTED TO IT. I WAS HAVING ANXIETY ATTACKS. I WAS TAKING 2 1/2 10'S A DAY. I MAY NOT HAVE EVEN BEEN ADDICTED. WHEN I WENT TO THE DR. HE PUT ME ON 60 MG. OF GEODON FOR 3 DAYS (THIS IS DAY 3), THEN TOLD ME TO TAKE 80MG. A DAY FOR 10 DAYS AND COME BACK. HE DIDN'T TELL ME WHAT IT WAS AND CERTAINLY NONE OF THE SIDE EFFECTS. I AM SCARED TO DEATH. I HAVE READ A LOT ABOUT IT ON THE NET. CAN ANYONE GIVE OUT ANY POSITIVE FEEDBACK. HE SAID I ONLY HAD TO TAKE IT FOR 10 DAYS, BUT THAT REALLY DOESN'T MAKE GOOD SENSE. IS 10 DAYS LONG ENOUGH TO DEVELOP LASTING PROBLEMS. I AM 59 YEARS OLD, THIS MEDICINE ISN'T RECOMMENDED FOR PEOPLE IN THEIR 60'S. WHEN I WENT TO THE DR. I WAS HAVING ANXIETY ATTACKS BECAUSE I HAD NOT BEEN SLEEPING HARDLY AT ALL.
CAN SOME PLEASE GIVE ME SOME FEEDBACK?

Hi Katie,
After reading some of the posts regarding Geodon, I can see why you would be nervous about taking it. While I am sure it is different for everyone, Geodon has personally changed my life. I was extremely sleepy for the first week so I started taking it (60 mg) with a light meal at night. The only side effects I have been experiencing are positive ones. The impending sense of doom I felt for so many years (especially when I was in my depressed phases) no longer consumes me. I was afrais of losing my "manic" side because I am in the creative field and depend on my creativity to make a living. Not only is my creativity still strong, but I find that I am able to complete projects easier now. Before Geodon, I did everything based on how I "felt". I never wanted to commit to anything because God only knows how I would feel at the time. The biggest change I have noticed is that I just do things. No drama. The little tasks like opening my mail, working out, returning calls, I just do. I don't feel like I am waiting until I feel like doing them, or putting them off because I'm in a funk and don't feel like doing anything. I went to visit my sister in New York for 10 days and she said that I was the most even keeled and productive to be around. She didn't feel like she was walking on eggshells wondering when I might spiral up or down. Anyway, for me, Geodon has been wonderful. I also got off my Lexapro and switched to 75mg of wellbutrin which has also made a big difference. For the first time since I can remember, life seems manageable. I'm sure I will continue to have mood swings, but I don't live in fear of my life spinning out of control as a result of them. well, I hope this helps a little. I wish you the best of luck in finding what works for you.


Reply author: cmsoudant
Replied on: 10/23/2008 14:21:04
Message:

Re: Geodon and Effexor...
Effexor is an SNRI which basically means that it works on both serotonin and norepenephrine. Norepenephrine can be very activating, especially for someone prone to mania and insomnia. (I used to be a pharma rep so I had to learn all this crazy stuff). You're right about effexor having some of the worst withdrawal symtoms among antidepressants. If you taper off of one while titrating up on another, it shouldn't be too bad. (ie. switching from effexor to lexapro). FYI, Cymbalta is also an SNRI.
I've read several reports that antidepressants in these classes can trigger mania in those with bipolar. I had my doc switch me from lexapro to wellbutrin. That in combo with 60mg of Geodon seems to be the magic mix for me. Also, Geodon's half life (how long it stays in your system) is long enough so that you only have to take it once a day. I take my Geodon at night with a half a sandwich before bed, and then my wellbutrin in the am. No sleeping problems and hardly any side effects. Anyway, hope that helps! Best of luck to you...


Reply author: adyoung
Replied on: 11/19/2008 13:28:30
Message:

GEODON IS THE DRUG FROM HELL.

I was on Geodon for 2 months, working my way up to 100mg a day. (A 40mg at lunch and a 60 mg at night). These are all samples from the doctor in an attempt to eventually get me to 120mg a day for a prescription.
While on the medication at lower doses i was starting to feel better so i was encouraged to work up to 120mg. The trouble started when i started noticing problems when i was late taking a pill... i would get bad anxiety and the shakes. Then the problems started happening more and more frequent around the times i was taking the medication (then the geodon would finally kick in and i would be ok).
I finally realized my body was addicted and dependent on geodon to even function halfway normal and i realized i needed to get off this stuff. My body should not be going crazy if i am a half hour late in taking a pill.
I went down from 100mg to 60mg right away and was hit with the worst withdrawal symptoms ever. Constant shaking, anxiety, it felt like i was crawling out of my skin. Of course i couldnt sleep like this... i couldnt do ANYTHING in this state. I was taken to the doctors office, med-express and even the hospital many times. (They would usually give me one ativan and send me home... it would work for a little while but then the withdrawls would come creeping back).
Finally my psych prescribed me ativan (hes still not totally convinced my problems are from the geodon, just like a lot of the other stories i've read online) to take during the day as i tried to go from 60mg to 40mg to 20mg to nothing. Currently, i have been off of the geodon completely for a month and while a little better, i still get the withdrawal symptoms and i still have to take the ativan at least twice a day.
This has probably been the worst experience of my life and i pray everyday that the shakes and the anxiety and horrible feelings i get will finally go away for good. I'm still scared that it wont ever go away.


Reply author: Viktor
Replied on: 11/29/2008 19:21:12
Message:

I started getting severe headaches. I have been on 180mg Geodon for about 6 years and even with the side effects, it was successful in controlling my symptoms. The doctors ran all the tests, everything... to rule out the most horrible. And the headaches kept coming. Day after day. I've had chiropratic help and Acupuncture. I've changed my diet and the headaches kept coming, day after day. Some days were at a 5, and I could at least deal with the pain, other days they were at a 8 or 9 and I had to go to the emergency room. Even being given pain pills for pain management, they rarely take the pain away or below the 5. My physical doctor, along with my Psych doctor decided it was the Geodon.

So, after months of headache pain, I've finally tapered down and stopped the Geodon two and a half weeks ago while I've upped the Seroquil I've been on (and it's controlled my psych symptoms) but the headaches are still here and still as bad as ever. The pain meds aren't helping as I try not to go over 5 a day, less if I can get away with it and some days I've only had to take one, but the pain is always there.

When will this crap be out of my system? When will the body aches and pains be gone? People need to know the horror side of this medication. Do the doctors even know how bad getting off this stuff is? And I understand that it doesn't matter if you take 20mg or 180mg that the side effects are as severe.

I panic when I think that maybe this Geodon headache is a permanent side effect. Geodon IS the drug from Hell. I had trouble finding a drug that would control my Psych symptoms and this one worked until the headaches started. But my God, the neverending pain is just not to be believed. My life is on hold. The emergency room staff think I'm only after the narcotics. All I want is relief from this never ending headache pain.

BTW, my Psych doctor was incredulous when I told her about how much pain I was in and for how long and all the tests I've had and all the other treatments to stop the headaches. All she said was "That doesn't make sense"!!! WAKE UP DR. LADY! This stuff is dangerous!
Please pray for me that the headaches go away... that's all I'm praying for so I can get my life back. Vik


Reply author: Chris Knight
Replied on: 12/05/2008 11:40:11
Message:

I am a male, 33 years old with a wife and kids. I am coming down off Geodon 40mg twice a day. Although diagnosed with bipolar disorder it was only by my family practitioner. I'll see a psychiatrist on Monday. Originally prescribed 60mg twice a day the side effects were unbearable. After each pill I was dead to the world for about eight hours. I would just sit at my desk unable to do any computer programming with a cloud over my mind. After 1.5 weeks I went back in and the doctor agreed to reduce me to the 40mg dosage. A few more days of that and I just had to stop - couldn't work, couldn't "be there" with my wife and family. If I had only known I could take it just at bedtime and skip the daytime one like some other posters I would have tried it. I am about 36 hours off the pill. Last night was my first night off the pill and I was awake all night shaking with a cold sweat. I am still shaky today, weak and lightly sweating. But I am functioning. One interesting withdrawal symptom is that the last two mornings I have been literally scared to leave the house to go to work.

I like what I have heard about self-care and nutrition. Exercise for the anxiety. All of it sounds really great. I think I have just got bored and lazy with life. My new antidote to the depression and mania is to relax, laugh, work (instead of just sit and watch TV every night). I feel like I have a second lease on life. With Geodon I felt like I was at death's door, watching everyone else around me go on with their lives experiencing at least some measure of joy.

I have had a supportive wife. I am in my third session of counseling. I want to see how far I can get with that. Maybe the psychiatrist will prescribe me something just for the occasional anxieyt. I feel like I am getting my life back. I just need to wait while my brain and body adjusts to no Geodon. Thank you for this great board and everyone's input. I went out and bought grapefruit juice and will try taking a Benadryl now and then to see if it relaxes me or helps me sleep.

Right now my mind is still off. I am alert but I have all these feelings of sadness and dread. I spent 15 minutes last night curled up in my wife's lap just bawling. Given that some posts have talked about not stopping cold turkey I may take a 40mg tonight to see if at least I can get one night of sleep. I'll keep you posted.


Reply author: Johnny D
Replied on: 12/08/2008 22:43:06
Message:

Alright it's been almost 4months since my last post and i haven't taken ativan, geodon, or lexapro for around 6 months or so.... i feel completely normal. i feel better than normal. i'm 23 years old and finishing up college next year. Geodon basically put my life on hold for close to a year until i finally took control and stopped seeeing my psych. they diagnosed me as bipolar but who knows? maybe i'm just passionate about things and sometimes a little overzealous with my ambitions in life? maybe i like to speak my mind instead of hiding behind the shadows of fallacies and falsehoods. i have come to the conclusion that geodon is used to control those with some emotional distress in their lives, but we all must learn to overcome. we're all put here for a reason and it is certainly not to be controlled / put to sleep by some doctor who has spent half his / her life learning about the brain. after all their schooling, degrees, licenses, PHD, MD whatever it all is.... the TRUTH is that human beings still DO NOT know 95% of what the brain is capable of. That is what it all boils down to... go watch Star wars if you don't believe me..... "Paranoid Delusions of Grandeur"..... a so called nervous breakdown..... **** HAPPENS! don't ever let a doctor put you under their spell of drugs such as Geodon... i got sent to the hospital because my behavior was so called "out of control and i was a danger to myself or others" all i did was go on a walk with my dog for 8 hours wondering what it was i wanted to do with my life..... i then got baker acted... i spent 5 days with completely psychotic / homeless people or drug addicts that are back within there 3 days after their discharge.... i refused to take the 160mg (max dose) of geodon because it had me crawling around on all fours with my lower jaw stuck 4 inches to the right side of my face.... couldn't eat/ speak or do anything just cry. i refused to take it so therefore i got sent back to the hospital and then against my will was held down by 4 security guards while they shot me up with haldol / benedryl / ativan.... all at the same time right into my buttcheek.... i spent the rest of the day drooling on myself unable to speak... a co-worker of mine came to visit me (i've been a certified personal trainer for 3 years) and he was showing me pics from his bodybuilding show and i couldn't even give him any feedback.... since i've been off geodon i've been able to train regularly with him and he just won the 2008 NPC nationals, which earned him his IFBB pro bodybuilding card. this opens up many doors and if i were on this medication still, i would be a zombie to life itself..... i hope this post opens up some minds as to what's been going on in our AMERICAN society... u think ppl in the jungle get geodon? you think starving kids in Africa get lexapro because they are depressed....yeah i didn't think so either..... stop feeding the machine and enlighten yourself.... key word here is OVERCOME....someone always has it worse than you do, so get over being lazy and do your thing. Geodon is not to be taken lightly or gone off cold turkey... take it day by day and sometimes ativan is necessary... don't smoke weed anymore. Geodon is only for full-blow schizos that are completely STUCK and have no family support or recollection of the REALITY over what really is... thank you for reading let me know how you think about my beliefs on the subject because i have experience and i feel i overcame a great deal because of this medication..... Bi Polar or overly passionate? you be the jury.....


Reply author: Viktor
Replied on: 12/14/2008 14:54:36
Message:

It'll be four weeks on Wednesday that I've stopped the Geodon after about 6 yrs. I still feel horrible most of the time. Headache is still there and now I'm trying (with my physical doctor's help) to get off the opiates they've prescribed for pain maintenance. I'm down to about 2 a day, sometimes 1 and those side effects are also hard to deal with along with the headache pain, which is still there. I was up to about 7 or 8 a day to cope with the headache pain. I hope it goes away soon. This has been worse than awful.

I agree with one poster that said that Geodon should NOT be prescribed for depression or for insomnia. I also have read extensively that most people with Manic disorders don't respond well to Geodon, however, in my case (Schizophrenia) it was a Godsend when nothing else got rid of the symptoms. Without it, many schizophrenics would have to be hospitalized and permanently cared for. With it, life is much better even with the symptoms that come with it.

Someone wrote that they knew the name of the individual that created this drug and would like to pin them down and make THEM take it and then take it away so they'd understand exactly what it's doing to us. I'm with you man... but can I also add to the list those psych doctors that have no clue what this drug is for or what it does?? I'd love for them to REALLY understand what they're prescribing.

I'll check back again. Hopefully I'll FINALLY have some good news. After almost a year of this headache pain, life will so sweet when it's gone.


Reply author: chad1978
Replied on: 12/18/2008 22:11:34
Message:

i have heard some pretty bad stories on here. i had been on geodon for 1 month. 80 mg every night. everyone on here seems to be saying that tapering off this medication is the best way to go about getting off of it. my psychiatrist says this drug is paradoxical in nature and actually the best way to go off it is to quit cold. i quit cold two days ago and havent had any withdrawal symptoms. i have taken 1mg klonapin and 50 mg seroquel, but havent experienced anythiing everyone has discussed here. i want to say it is because i was only on it for a short while, but i have read people on here who were on it less than me having crazy withdrawal. i just wanted to throw it out there. my doc is very cutting edge and updated on new studies. so i trust that this medication for unknown reasons is better to go cold turkey. just some advice. hope all who are suffering get better soon. all these side effects can be horriffic.


Reply author: Viktor
Replied on: 01/06/2009 14:15:06
Message:

I've now been off Geodon for almost two months and off all opiates and pain relievers for three weeks. It's still very tough, but I'm glad that what I'm feeling is no longer masked. Headaches now seem to be coming and going with some breaks where I feel better for a few hours and then I'm slammed with another headache. I'm hopeful that with time it'll be more times when I feel better than not, and then a gradual fade away of the Geodon headache. I'm hopeful because I'm finally seeing some change, only time can tell, and I pray that having taken Geodon all this time won't result in a permanent headache.

Everyone is so different with this stuff. I was warned by more than one doctor not to go off this stuff cold turkey, that despite the side effects, it would not be a good idea. Even though it was extremely hard, cold turkey would not work for my situation anyway as titration of another psych drug was important so as not to expose any symptoms of my underlying illness, and in that regard only, it worked beautifully.

If anyone is saying a prayer out there for any of us, it's truly appreciated, and to those posters who have lived through their nightmare and emerged from the other side of this hell feeling good again, I salute you and wish you a lifetime free of pain and illness. Vic


Reply author: bckrch
Replied on: 01/11/2009 06:09:03
Message:

Hi I am new here and my dr just took me off geodon at 80mg for 3 days then 60 for 3 days then 40 for 3 days then stop. I was wondering how you got off the geodon and how long did the withdrawals last? I tried to taper myself but had a couple weeks of withdrawals. Was there anything you took to make it better? The dr is now putting me on something called invega.I haven't started it yet but was also wondering if that will help with the withdrawal if anyone knows.

Becky


Reply author: Irvinisgettingthere
Replied on: 01/15/2009 18:19:45
Message:

Hi!
I'm a seventeen years old student at a high school, and 6 days ago I was given "professional" samples of Geodon which where 20mg and 40 mg a day, I was suppose to go from 20 mg to 40mg after a week, but since day one I felt unhuman, I did not like it. Ok I have to admit it, it felt nice that I didn't have any mood swings. But the drug is just weird, I wanted to stop right after day 3, but I didn't, later in day five was my last dose, and then I did it cold turky. OMG!!!!!!


THIS IS HELL!!!!
I used to take it around 8pm, not a precise time or something....Day 6 was ok, until after 8pm.... it went so weird. I starting feeling so talkative, and happy, and I since I had to go to school I was supposed to sleep early.... I couldn't. I felt this restlessness when I was lying down...at first since I didn't know the effects of cutting the drug out like that, I was freaked out, I thought I was about to get a heart attack, I read the labels on the drug and there, there are some heart problems related to GEodon, I freaked out. but know it couldn't be that, I came to think I had Vertigo, but I keep searching in the internet until I found this. This is how I exactly feel, I've read the posts and it was the same thing I felt, and those panic attacks are awful, Let me tell ya, I would prefer endurance pain than this crazy thing in my brain, I think this is as terrific as painfully and slowly dying, while you try to ask for help, but they can't help you for some reason, and you see this happening, its just amazingly overwhelming. I was a lot better off this drug, I wasn't all like this before. I hate it. Anyway, I went to the doctor today day 7, and she told me that I shouldn't have stopped taking the meds, and that the reason I was feeling those reactions was because my dose was too small, and that she should have given me a larger one. Which I think is insane, THANK GOD!!! I didn't take the larger dose, 20mg is good enough, and from what I have seen, the larger the dose the harder it is to take it off, I took those 20mg for 5 days. I want to sleep and I can't, last night, was even worse, I had those shaking and twitching things, even in my pelvis....It felt weird. Currently, I want to sleep, I'm tired and cant sleep, I lost weight, I feel dizzy, my jaw and teeth are really sensitive, I feel like swallowing my own tongue, get really emotional and feel like crying from the nowhere, and if I see something I think its funny I laugh insanely, ouh and things are in slow motion, even thoughts.....I can't speak or write correctly (sorry for any mistakes)

But, at the same time I think my symptoms are less than many people in here, I just hope they don't get worse, I hope I got off it on time, and that in at least three days from the last dose I'll be ok like before. (tell me what you think)

What really helps me though, is to calm my self of any emotional stimuli. Reading something that interests me helps me a lot. I'm not planning in taking more drugs of any kind in order to get off Geodon, but I've been drinking herbal teas (tell me if I'm doing wrong) they do get me really calm that well, I least I slept 2 hours, I've been awake since day 5 at 6:00 am. I try to think of things that will take my attention off any anxiety, even the one that I get from just thinking about taking Geodon. So my advise is just to relax as much as you can, try not to think of the symptoms, do something that will induce you to concentrate, even though its hard for me in this situation.

I hope everything goes ok, and at least tonight I get some sleep. Or I hope I just collapse into a long sleep and when I wake up I'll be fine. I just think of the heaven in the other side, its so beautiful and its waiting for me, when I get there all the anxiety will be gone. I wasn't this anxious ever in my life like this. We are all going to make it, and will get there, its going to be so amazing.

Remember, some years ago Psychiatrists would open up the heads of their patients in order to help them heal from their disorders, and mess with their brain until many turn into a vegetable stage. I don't see how they aren't doing this now, but this time with drugs, I believe that everyone in the world has a "metal illness" which a Psychiatrist can subscribe some like this.


On the other I see just heaven waiting for me. I'll get there, it's just a matter of time.


Reply author: area24
Replied on: 01/15/2009 21:02:54
Message:

I took low dose Geodon for a couple of weeks and I got tired of crawling up
four flights of stairs getting to my apartment after leaving work early
b/c I couldn't move or keep awake. The p-doc just kept saying "give it
more time" or "raise the dose". I felt like checking into the morgue.

I was very passive and wanted to do whatever i could to get better.
He switched me to Zyprexa and Haladol. Couldn't eat, couldn't drink,
constipated, and this guy just wanted to raise the dose b/c that
is all a Pharmacologist MD does. I didn't know that as long as I saw
him that was all he was ever going to do.

Don't be noncompliant and DON'T BE PASSIVE.

There is a blog called "Post Meds" that is run by a very knowledgeable
woman who is getting off meds herself. There is probably a lot on Geodon.

For people with headaches and anxiety I would suggest magnesium
chloride taken in a footbath. It also has potassium chloride.
It is extremely relaxing and it will last at least 24 hours.
You can google it under Transdermal Magnesium.

(Not to be confused with Cal/ Mag supplements or plain
magnesium pills or powders or liquids. Mg supplements don't work
for anything except constipation.)


Reply author: Francesca
Replied on: 01/16/2009 16:16:03
Message:

I was on Depakote and Geodon in early 2007 before transitioning to Lamictal and then stopping that. I was initially on 60 mg of Geodon twice a day, but that dose was reduced to 20 mg twice a day when I kept complaining about weird random pain all over my body and an elevated heart rate. When my dose was reduced, I went from feeling terrible to feeling even worse. My resting heart rate was 120 bpm and I felt like I was going to die. I have never had a real panic attack other than on Geodon. The doctors thought *I* was the problem, not the medication. Instead of caring about my symptoms, my doctor told me that my preoccupation with the side effects I was experiencing was a symptom my illness. Going from 40mg/day to nothing was not as tough as going from 120mg a day to 40mg a day, but it wasn't easy either. I reduced the Depakote then I reduced the Geodon, and so on, until finally I was on nothing. I had a lot of anxiety from the Geodon and even more during the withdrawal. When I lowered my dose of Geodon relative to the Depakote, I felt elated and inspired. I also had a little difficulty going to sleep and had to take Temazepam a few nights. Finally I was on just the Geodon, then I was on nothing.

I yearned to die and was afraid of killing myself. I was afraid of killing those around me. I was afraid of something happening to my husband and children leaving me all alone. All I could see in life was suffering and pointlessness.

I got through this because I kept my eyes on Jesus and reminded myself to see the beauty in life. I remember having so much anxiety that all I could do to cope was to say "Our Father" over and over--and I'm not even Catholic. I don't know if the withdrawal anxiety would have gone away if I had just waited, but my doctor prescribed Lamictal at that point. The Lamictal made me cry for the first week and still feel depressed, but I could cope. I was concerned that I might lose my mind when I got off the Lamictal, but instead it was as if the sun came out from behind the clouds. I have never taken happiness for granted since being on those medications. If you are determined, you can get off these meds and stay sane. I am always careful to get enough sleep and take Unisom Sleep Tabs when I have insomnia. I absolutely believe God carried me through that dark, dark time. I'm closer to Him now than I ever was before my "episodes." I have learned that if left to my own devices, I will absolutely stumble and crack. Keep your eyes on Jesus and your feet on the ground!

"Let God take care all da stuff you guys worry bout, cuz he get big heart fo you guys." (Numba 1 from Peter 5:7)


Reply author: Irvinisgettingthere
Replied on: 01/17/2009 20:02:50
Message:

I AM FREE!!!!!!
I went cold turkey, and now I am free of Geodon.....I am so happy, after about four days of suffering, I am free. THank GOD, I am free, I knew I was going to arrived to this side.
IF I can do it, you can do it also!!!!! just be patience, and relax as much as you can.

On the other I see just heaven waiting for me. I'll get there, it's just a matter of time.


Reply author: daffygirl
Replied on: 01/28/2009 08:44:21
Message:

OK so after reading a lot more of these posts it is safe to say I HOPE PEOPLE READ THIS THREAD BEFORE EVEN STARTING ON GEODON!!!!That way they too won't have to experience the horrific withdrawals symptoms that go along with taking it. Doesn't matter how long one has been on it, one day or years....IT SEEMS (NO IT IS) TO BE THE DRUG FROM HELL AND I HOPE ONE DAY THE PERSON WHO DESIGNED THIS DRUG WILL TAKE IT SO HE/SHE KNOWS WHAT IT'S ALL ABOUT!!!!! I pray all of you are doing fine now. Sorry to the newbies who have experienced the same stuff we already have.


Laurie :-)


Reply author: stacygirl
Replied on: 01/31/2009 22:08:42
Message:

I've been reading through these posts and I think you all can help me. I have been on Geodon for about 15 months. I started at 40 mg, my doctor wanted to raise it but I said no. I decreased down to 20 mg back in April, it wasn't too difficult however I am currently experiencing chronic daily headaches, vertigo, extreme sensitivity to sudden sounds, I look at objects and they move, I feel light headed and dizy like I'm going to pass out. If I take a Geodon it all stops. My question is this: Do you all think the Geodon is helping my headaches and the headaches are not caused by the Geodon but migrains maybe, or do you think I'm experiencing withdrawel when the 20 mg wears off. I'm so torn on what to do right now. I feel bad all the time!!! I would hate to not take the Geodon if it is somethinkg else going on and the Geodon actually helps but if the Geodon is what's causing my problem then I need to get off of that stuff! Has anyone else experienced any thing like this where you feel crapy all the time, take the Geodon and feel a whole lot better? I am guessing I'm experiencing withdrawel when it wears off. I want to be off of this drug if it is the problem but if it's actually helping another problem then that would suck to stop. Please Help! Thanks!


Reply author: daffygirl
Replied on: 02/01/2009 07:49:27
Message:

Hi Stacygirl,

From all the posts I have read, people have had this issue when they are on Geodon, then resume to take it again and they feel better. From my experience, I went through those feelings when I was withdrawing. As we all know everyone taking this crap is different. The sensitivity to loud noise was horrible!! So I'm guessing that what your feeling is the withdrawal. Remember it happens almost instant. That's why it's hard for people to get off this drug. It's a long scary road but once you get off of it it's WAY better. Geodon plays many tricks on a person. Some people have taken other meds to help when getting off. Everyone is different. I hope this helps. Good luck with whatever choice you make. We are here for you!!

Laurie :-)


Reply author: stacygirl
Replied on: 02/02/2009 00:51:28
Message:

Thanks Laurie. I decided today to come off. Hence the reason I am wide awake right now. This sucks! Things are moving when I look at them, big time. I feel crazy. I just want this drug out of my system. How long will that take?


Reply author: daffygirl
Replied on: 02/02/2009 14:51:39
Message:

Hi...

Well for one thing, you ARE NOT crazy. I know it feels like it. For the time it takes? It's different for everyone. Give it a few days to a week, it should be better although the anxiety will remain if your experiencing that. Plus you have been on this piece of **** drug for awhile now. I had to take something to help me sleep or I didn't. I did alot of pacing. Just try really hard to not to let it win, it will get better. If you have to gradually stop it like by cutting it in half and then skip a day that might help you also. I just stopped and it wasn't pretty. I know this sucks but it's really worth NOT being on this drug. I hope this helps, if you need anything else just post and I'll do what I can. Take care girl!!

Laurie :-)


Reply author: Ittoowillpass
Replied on: 02/09/2009 14:38:46
Message:

I tried getting off all of my med's, weaning myself slowly (starting from Geodon 60mg, Celexa 20mg and Trileptal (lots of it can't remember how much, it was 4 pills a day though). I was off both the celexa and trileptal without any problems. Reducing Geodon from 60 to 40 was easy...going to 20mg was also not to bad. I then began taking 10mg and started noticing being a little down, anxious and irritable. Then I quit altogether. I too could not sleep for probabally 3 nights in a row...but sleep was beginning to get better with benadryl and cal/mag supplements...however after a bit of time I got depressed bad, irritable, anxious and thought only of how nice it would be if I could just sleep forever...not kill myself...just sleep. That scared the crap out of me so I went back to 20mg of geodon, 3/4 of one pill of trileptal and 20mg of Celexa. I was doing ok I guess, functional. Then our insurance changed (temporary, job change) so I had to switch to the walmart 4.00 med's. I was given trazodone (I take 50mg at night), kept on Celexa and given carbamazepin (200 mg-400mg). I have taken only the Celexa and trazodone since reading all the side effects of Carbamazepin. The first night(last Tuesday, one week ago) I had horrid nightmares and felt drunk and hungover from the trazodone. But then I halfed the dose and I slept great all through the night and I actaully wake up before the alarm goes off (With Geodon my husband had to practically force me out of bed each morning) But I was just really anxious and on the verge of tears, and tired after about 2 oclock during day until I took the trazodone again that night (which seemed to relieve all those symptoms...I looked forward for the temporary relief). On Saturday I was a wreck in Walmart with extreme anxiety so my husband bought me some wine. So now, every day when the anxiety hits (and it hits pretty hard) I drink a glass of wine and it takes the edge off...not completely but enough to keep my mind off of "feeling better" and cook dinner and all the things I need to do for my family. Each day gets better and better and today was the first day I did not have that feeling like tears were about come (I didn't cry during that time, but damn did I have to fight the urge). Anyways the Trazodone is a antidepressant and a sedative all in one and it has worked wonders for me at night. Also, since being off Geodon I am starting to feel like myself again. Geodon at first and for a long time gave me slurred speech and an inability to say what I really meant. I lost friends and ticked people off without knowing what I did or said. I am so glad to be getting off this med.

I am considering going off the Celexa because I am already taking trazodone which is also an antidepressant. Why do I need two of them? It makes no sense to me.

All I can say is that I hope the anxiety eventually subsides...anyone else have success with this?


Reply author: daffygirl
Replied on: 02/10/2009 06:45:33
Message:

Sounds like you pretty much have it under control. Good for you!!! I too had lots of anxiety, still do but not as bad. After I got off the Geodon the doc prescribed me 100 mil of Seroquel to help me at night and sleep. I so welcomed that!! That was a year ago and that was all that I took besides the occasional Xanax, small dose. Anyway, I still take the Seroquel but I cut a 50 mil in half and it does the trick, if I didn't I still wouldn't sleep. One of the reasons I cut it in half too is because it is very expensive and this way I have one script for 2 months instead of one. My doc understands. I have come to the conclusion I just don't sleep without it, or very much anyway. I now take 10 mil of Celexa, because to be honest I am just a nervous person to begin with. I wish the 10 mil was on the $4.00 script list since we have no insurance due to job loss. Isn't it sad that we have to worry about all that stuff on top of everything else? Life goes on I suppose. Hope whoever reads these threads are still doing well!!

Laurie :-)


Reply author: Ittoowillpass
Replied on: 02/10/2009 10:16:58
Message:

Daffygirl...walmart has celexa in the 4.00 generic version. It's called citalopram. It comes in 20mg or 40mg pills so you can half or quarter to your current 10mg dose and it will cost almost nothing.


Reply author: Tom1919
Replied on: 02/11/2009 01:55:33
Message:

I've been on geodon about two years. I'm on 80mg. The doctor had me on double that early on but it was horrible so I went back down. When I felt the meds taking effect I had to stop what I was doing and lay down and curl up in bed and feel sorry for myself. That should have tipped me off that this wasn't good stuff but I stayed on 80mg till now. At that dose it doesn’t really do anything good or bad for me, unless I forget to take it. The reason it's not helping I figure now is because it doesn't even appear to be for the disorder that I have. Thanks Doc.

Anyway I think it's time to rid myself of the horrid stuff. I told my psychiatrist about the withdrawals and he just ignored me (really). I told my therapist and he guessed that the bad stuff (which he didn't know about until I told him) might last a few days. It's comforting to know the shrinks are knowledgeable about the drugs they're dispensing and supervising.

I have some things going on now that I'll need all my wits with, so I'm going to take the geodon for a little while longer. I think I'll buy some sleeping pills in the mean time.

I'm wondering if I should taper it off or just quit taking it. I remember reading in Stephen King novel where two brothers were talking about getting off heroin. The older brother says something like "Before you go cold turkey you got to go 'cool turkey.' (Meaning taking less of the drug than what you need) "But in some ways cool turkey is worse than cold turkey because with cold turkey you know you're gonna shake, you know you're going sweat until you're drowning in it. But cool turkey is like, the curse of expectation."

I'm saw on wikipedia that you could conceivably die going cold turkey. Anyone know about this? I didn't see it mentioned in this thread, but I suppose if someone did die they wouldn't be posting their story here. The way things are going it doesn't actually scare me that much if it was potentially fatal, but I'm still curious about it.


Reply author: daffygirl
Replied on: 02/11/2009 07:16:35
Message:

Hi..Thanks Ittoowillpass! I appreciate in the info. Next time I will my ask for the larger dose. I guess my daffygirl name fits me to a tee huh? LOL
Now to answer the question to Tom 1919.....your point makes sense and I hope know one died from coming off this stuff. I know I felt like it, it was horrible but I'm still here, thankfully. I wish you the best in your trial with this. Take care.

Laurie :-)


Reply author: Viktor
Replied on: 02/11/2009 15:20:52
Message:

In a week or two, it will be one year since I developed Geodon headaches. It will be around 2 or 3 months since I've been off Geodon completely. The symptoms have shifted around but the headache is still there. It ebbs and flows now and I had two weeks when I didn't hurt much at all, which was a first. I completely went off painkillers and have been off them over a month and a half. Withdrawal from them was nothing compared to withdrawing from this cursed drug. However, the pain seems to have receded from an 8 or 9 to about a 5 or 6, sometimes 7, so I think they are lessening.

The doctor said that my brain is still adjusting to being off the stuff. He said 'still racing' and he's right. Titrating to Seroquel wasn't as smooth as I thought and I'm still adjusting in order to cover symptoms, but things in that regard are just about there and I'm happy to announce that it's working well.

A year of headaches is just too much for anyone. Withdrawal from Geodon has been Hell. Anyone reading this needs to fully understand this drug before agreeing to taking it. And the doctors that prescribe it need to fully understand what it is they are handing out. Most don't. My original doctor had no clue and told me the headache couldn't possibly be from the Geodon (I have another Doctor now that is very familiar with this horror). This drug should not be prescribed lightly. It should be not be prescribed for a long duration (like my 6 years). It should not be prescribed for migraines or sleep disorders. IMHO it should be a drug of last resort for serious mental issues that have no where else to try.

Think long and hard before taking this drug.


Reply author: chelle25
Replied on: 02/16/2009 19:25:56
Message:

I have been on geodon since October 28, 2008. I had a bad reaction to Prednisone which was prescribed to me for bronchitis. The prednisone caused hallucinations. I was seeing things on myself and could feel things. Weird situation. Anyhow they started me on Geodon 40mg 2X a day and that did put the hallucinations in check. Prior to Geodon they did try other things but I was highly upset with the parkinson like side effects. The whole time on this stuff it's been like a feeling of it is suppressing me who I really am. I am grateful it took away the hallucinations but I miss being me. I talked to the psychiatrist about weaning down as they told me I would not need meds long term. So I started weaning gradually (with docs permission)taking a 20mg in the AM and a 40mg in the PM. One month later I took it down another notch to 40 mg at bedtime and thats where I am at today still at 40 mg in the PM. I noticed as I was weaning that I was getting a sick feeling, felt very cold and felt I can't get warm . Other times a hot flash feeling. Just overall sick flu like feeling until I get my next dose. This is when I figured out this stuff must be addicting to the body not to mention it is messing with the chemicals in the brain. I called the psychiatric hospital and asked the nurse if it's addicting or can cause withdrawal she says no. I call my psychiatrist and she says no. I called the pharmecuetical company and they put me on with the pharmacist he checks and tells me yes the things I was reporting to him have all been reported before. He also told me that yes it can cause a withdrawal syndrome. Now I'm reading these posts and I'm really worried about this drug. I assume the Doc will taper me to 20mg at bedtime when I see her in March.This is all some scarey stuff here. I mean have those of you who have finally kicked this stuff ever returned to absolute normal? Any suggestions or info would be much appreciated.


Reply author: daffygirl
Replied on: 02/17/2009 11:58:02
Message:

Hi chelle25,

I'm sorry you now have to go through this. Don't worry...There is light at the end of the tunnel. I just love it when docs all say there isn't a withdrawal effect. Whatever!!! All of us that have gone through it from this particular piece of S*** drug knows better. Just once I wish they would take it to see exactly how it makes one feel. Your experiencing some of the effects already. Try and do something that helps you relax, a glass of wine (one of favorites, it helped me :-)I drank a lot of water and tried to keep myself busy. When it really hit I paced, held down the couch and got very anxious and nauseated. But it will get better, slow tapering might help. But overall it's gonna suck!! Keep reading all of this thread to see if maybe someone else's way can help you. Were all here for you. Take care!!

Laurie :-)


Reply author: kat2009
Replied on: 02/18/2009 09:30:08
Message:

I have been off Geodon for 9 weeks and have still been having side effects of muscle spasms mostly in my arms and legs. I have to take valium at night just to control the spasms so I can sleep. Has anyone else encountered this problem? I know that this can sometimes become permanent.


Reply author: All4One
Replied on: 02/19/2009 00:15:11
Message:

I can't believe you people are encouraging others to get off their medications without consulting any medical help! Aren't you aware that self dosing can lead to permanent brain damage not to mention death?!! Why are you condoning this type of self destructive behavior? If you are thinking of self dosing or stopping meds altogether GET MEDICAL HELP! Do not attempt something this dangerous without being monitored!!!!


Reply author: stigmastomper
Replied on: 02/19/2009 01:19:27
Message:

lesli

try going to utube.com type video's geodon withdral in the utube.com search engine. you might also try typing the same in your regular search engines. further internet mental health may also be of some assistance , in the mean time , i suggest and encourage you to explore our web site my therapy.com and look for more information relating to geon withdrawl.

i hope this helps. take care and if you need us we are here.
we are familiy here at my therapy. your never a bother and you always help us when you share.


i love everyone red,white,blue and every other frequency and spectrum to.


Reply author: stigmastomper
Replied on: 02/19/2009 14:08:21
Message:

welcome everyone. i just noticed you all here.

i love everyone red,white,blue and every other frequency and spectrum to.


Reply author: hercules21
Replied on: 02/21/2009 15:41:27
Message:

I experienced Geodon withdrawal by only decreasing my dosage from 40 in the am and 80 in the evening to 40 in the am and 40 in the pm.
I experienced insomnia on the second day after the decrease and missed an important day at work. I wish I had been warned so that I could have reduced more gradually. That happened three weeks ago. To this day it now it takes me nearly three hours every night to fall asleep but after reading some of the posts in this thread I guess I should be counting my blessings that at least I get some sleep.

I am at a crossroads with this pill. It has helped me lose weight from the weight I put on with olanzapine but it has left me dysfunctional in the workplace from drowsiness. I have since reduced to 20 mgs in the morning with no side effects but while it has improved my situation at work ( I was taking naps in the washroom ) I am still not able to stay awake in meetings.

I want to reduce to 10mgs in the morning but I doubt my doctor will say yes and secondly I think 20mgs is the smallest dose that it comes in orally. I read in these boards about people just taking it at night time that sounds appealing - but officially the half life is only 12 hours so my doctor will not support me doing that. What to do?


Reply author: chelle25
Replied on: 02/21/2009 16:47:50
Message:

Thanks Daffygirl for the comforting advice. Today I had an episode at work felt so tired was shaking cold and nauseated for 2 hours then it went away. I also started feeling anxious and had to talk myself into that I was not losing it that it's just from the med withdrawl. I got home and took a visryl which really helped calm me down. I feel okay now no anxious feeling and at 10 I will take my geodon. This is some serious medication. I'm kind of scared to wean down anymore until these symptoms stop. To hercules21 as for taking your meds all at bedtime this is a possibilities as my doctor told me because I was having a hard time at work being tired. She said I could take it all at bedtime. Just depends on your situation and doctor I guess. They do make the pill in 10 mg form but I think you took too big a jump from the 40am 80pm then to only 40pm probably would have had an easier time if you did it in 20mg increments. In fact my doctor suggested I do it by cutting mine in 40mg and I said no only because of the research on the internet that I have been doing. I just felt more comfortable to do it in 20mg increments and a good thing I did because I'm still feeling some effects that are quite bothersome


Reply author: Viktor
Replied on: 03/09/2009 16:23:40
Message:

I don't recall seeing ANYONE tell anyone or even infer to them to get off their medications WITHOUT conferring with a doctor.

All of us here are extremely well aware that medical help is crucial, VITAL in this circumstance. To never go off anything without a doctor being fully involved~!! I think that many of us have been a part of this for so long that it is an assumption that no one would change their meds, or go off of them without a doctor.

In the case of Geodon, even my psych doctor had no clue about this drug. Especially someone like me, who's been on it for six years! She said it was probably okay to just stop taking it, but to play it safe, we'd go down slowly. Well, all my instincts said to go down slowly... and it was still Hell.

I'm back to square one. Been back to the ER with a headache so bad again that I couldn't stand it. After all this time without any narcotics, I have to start taking them again just to get through my day. I have a NEW psych doctor and a new physical doctor who are now working together. And my Psych doctor is far more informed about this drug (so are his nurses) than anyone I've seen before. He said that this stuff may linger in my body for a year or more....

Great. But at least I'm off the crap.


Reply author: fated2pretend
Replied on: 03/11/2009 23:44:37
Message:

Hey all, just found this forum after doing a little digging on stopping Geodon. I know it's been said before but I wish I read this before I started taking it. After taking it for a few months I'm starting to get unpleasant side effects.I'm taking 60mg twice daily. I tried cutting it down to 60mg once daily but started getting flu like symptoms and dizziness. After doing a little reading I'm going to taper it and wanted to thank you all for posting all this info. Wish me luck in quitting =)


Reply author: daffygirl
Replied on: 03/15/2009 11:26:08
Message:

Of course all of us wish you the best in stopping this drug. It won't be easy but you can do it. Sorry you have already experienced some of the stuff that goes along with it. Glad you found this thread!!!

And Viktor....Sorry you have the headaches again. It's great to hear that the new docs are well aware of this POS drug. Take care and keep us up to date on how your doing!! I too agree that we haven't done or said anything wrong to hurt people in our posts.

Laurie :-)


Reply author: Viktor
Replied on: 03/15/2009 18:24:53
Message:

Thank you Daffygirl, I wish you the best as well.

I hate being back on the narcotics to stop the pain, but that's just the way it'll have to be for now. My new doctors seem to be much more on top of things and better researched concerning the drugs, especially Geodon so I'm very hopeful. I really thought it was on its way out after Christmas with about two beautiful weeks. I've noticed that if I don't sleep well, or stay up too long (2 days), the headaches are worse the next day. There may be a correlation between the sleep center and the residue.

Thanks for the thumbs up. I'm (at least) about three months into not taking this drug anymore. And I feel that having been on it for six years and on such a high dose (180 a day) that I may be able to offer someone coming onto the site some information.

I do not have any withdrawal symptoms left from the Geodon and they more or less stopped after a month. It's the headache that is the problem. And my new doctors (both of them) are familiar with the headache syndrome associated with Geodon, so I'm very hopeful....


Reply author: hercules21
Replied on: 03/27/2009 14:53:55
Message:

I am thankful that I wasn't on a high dose for too long after reading through your post Viktor. I thought 160mg was the max. I was on 160mg for a few weeks but decreased it due to drowsiness. Just as well I guess.
Chelle25 thanks for your post. My update is that the doctor let me take all of my dosage at night time to combat day time drowsiness and it worked. He said that going from 40 in the evening to 60 in the evening would help with the lack of sleep. It did a bit but I have a bottle of sleeping pills beside my bed for the tough evenings. I guess that I will never sleep as consistently as I once did.
One side benefit of removing my morning dose all together is that I had a tremor in my right hand that would come on from time to time from this medication. And it has stopped now.
My weight has continued to go down on this med - I am down nearly 30 pounds in 4 months - but I am worried for when the time comes for coming off this medication after reading through all these posts.
I am finding that alcohol doesn't mix well with this med. Puts me to sleep very quickly.


Reply author: amberly
Replied on: 04/08/2009 08:32:22
Message:

i have been on geodon for 8 months at 180mg a day alonf with 60 mg of prozac a day. while on goedon i experienced teeth grinding and when i talked my jaw would move around tou much to the sides and i would blink constantly. i tried to quit both cold turkey once and i experienced withdrawals that were horrible. i experienced panic attacks, lack of sleep, vomiting, extreme shakes (almost to the point of little seizures) and paranoia. after about 3 days i decided to start taking the meds again because i couldnt stand the withdrawals. now recently in the past few weeks i have started a taper off of the geodon and prozac and im once again experienceing panic attacks, lack of sleep, nightmares, shakes, and paranoia. the only thing that can make it go away is a few xanax bars and to help me sleep i take a xanax and a shot of vodka ( i know this isnt reconmended, but it helps alot). i would never recommend geodon to ANYONE, it is the worst drug ive ever taken out of the 12 years ive been on medication.


Reply author: hercules21
Replied on: 04/12/2009 22:18:17
Message:

Hi Amberly,

Sorry to hear that you are suffering so much. As you can see from all the posts on this topic you are not alone. Some drugs can be withdrawn from quite quickly. I came off a heavy dose of Seroquel in only a few days with no side effects. Geodon is not like that as you have discovered.

Everyone seems to agree that tapering off is the way to go vs cold turkey. If you are getting symptoms of paranoia back etc. I would take it very slowly and maybe stop your tapering for a while until this stabilises.
I am glad that you are able to get some sleep that is a good news story.
I first found out about this site through this particular thread and I wished that I had've read the posts before I tried decreasing my dosage.

My own personal two cents on the topic - is that taking it slow is key - otherwise some of the withdrawal effects can take many months to clear up. I think I have permanent impact to my sleep. This is my opinion only so take it with a grain of salt.
Keep us posted on how things progress we are here to listen. And I will keep my fingers crossed for you that things improve.


Reply author: raphael12
Replied on: 04/15/2009 19:56:22
Message:

ive been on geodon for about 12 months of 80mg twice a day. i came off it before reading this discussion. i went on to solian(thats the name of it in australia anyway) i suffered severe insomnia, anxiety, headaches, and strange sleep if i did get some. anyway it thought it was the effects of solian and after 3 days of it quit taking the solian. i thought it was the solian because one of the side effects stated insomnia. anyway i started taking the geodon again until i could next see the doctor. he prescribed me seroquel at my request(because it is the only anti-psychotic i hadnt tried). anyway that night of my first dose i started reading this discussion and realised the insomnia was due to the withdrawal. anyway i got 7 hours sleep that night. im pretty sure because of the seroquels effect of sleepiness. 7 hours isnt much for me but at least it was something. anyway i have just woken up and dont feel to bad so far, maybe seroquel maybe the answer to weening of it. its to early to tell as yet but i will keep u posted.


Reply author: ivorywire
Replied on: 04/16/2009 15:59:34
Message:

I've been taking Geodon for years. It used to cause me to lose control of my face, as some of you have described. It was like a permanent smile went on my face. At the same time, my heart would start beating faster and my breathing would become difficult. If I was out somewhere and someone else was driving, I'd have to go sit in the car; if I was home, I'd just lay down). The doctor called this a panic attack, which is something else some of you have described. The doctor put me on a full dosage of Temazepam 45 mg, but that stopped working. The Parkinsinisom and anxiety attacks continued. Then my new doctor put me on Cloneazepam (Klonopin), keeping it in my system at all times. Since the Klonopin, I have only had one panic attack, and it's been several months. Now I'm quitting the Geodon. I went from 160 mg to 80 mg. Then I cut the Klonopin from 2 mg to 1 mg. I feel that funny sensation in my fingers that some of you described. I've been getting to sleep. I'm going to try quitting the 80 tonight. Then, after that, I'll quit the Klonopin. I'll come back and let you know how that goes.

What I take as of yesterday:

300 mg Seroquel (for sleep)
80 mg Geodon (sleep)
1 mg Klonopin (sleep/anxiety attacks/Parkinsinisom)

What I took before I started to quit medications:

40 mg Prozac (for depression/OCD)
300 mg Seroquel (sleep/mania caused by the Prozac)
160 mg Geodon (sleep/mania caused by the Prozac)
2 mg Klonopin (sleep/anxiety attacks and Parkinsinisom caused by the Geodon)


Reply author: daffygirl
Replied on: 04/17/2009 08:51:06
Message:

It's been a while since I've posted but I can see the docs are still prescribing this horrible drug. All of you that are having the paranoia feelings and the panic issues I'm guessing are all due to coming off the Geodon. It was that way for me. The xanax helped (not sure with vodka lol but hey if it works?) The seroquel did help me to sleep, and while coming off of the Geodon my doc had me go up in mil but never as much as you. I still take a very small amount now to sleep or I wouldn't sleep at all. By very small I mean 1/4 of the 50 mil. It works for me. But no more Geodon EVER for this girl!! I pray all of you have good luck and let us know when you feel better. Remember....It will get better!!! Take care!!

Laurie :-)


Reply author: omggg
Replied on: 04/18/2009 14:38:57
Message:

Omg. I am in so much pain right now. The keyboard typing noise is vibrating through my head, my jaw and teeth hurt so bad. And I can't sleep more than an hour at night because I hallucinate. I was only on 80mg of geodon a day - one in morning - one at night, only for a bit over a month. It made me so over emotional and suicidal, so I flusshed the rest down the toilet, and the past 3 days have been hell. Nighttime hallucinations, extreme clinching of my jaw. And now this noise killing me and my head muscles and bones feeling like they're being grinded into dust. How long does withdrawal useually last for?? I feel like i'm going to break from sanity if this keeps up or gets worse.


Reply author: daffygirl
Replied on: 04/18/2009 16:41:24
Message:

Hey omggg,

I'm sorry to hear how your doing. It is hell!! Give it a few days, it will get better. I agree it is horrible, been there , done that. I remember the noise how it was so loud or scary. Weird isn't it? I too was only on it for a month but it was a month too long. I had to take a small xanax 3 times a day to help and drink alot of water and try very hard to sleep. Doc gave me seroquel and at least then did I sleep. I know this post isn't much but I hope it helps just knowing we are out here for you. Stay strong and it will get better. Take care!!


Laurie :-)


Reply author: Viktor
Replied on: 04/19/2009 14:32:36
Message:

NEVER NEVER EVER go cold turkey off any medication!! Period.

Everyone is different, but yes, the possibility of dying from the shock of total withdrawal is always there. And reduce the dosage WITH a doctor, so there are check ups, blood pressure, blood work, whatever.




Reply author: Viktor
Replied on: 04/19/2009 14:48:49
Message:

For those just coming into this discussion, I've been on 180 mg Geodon for SIX years. For a short period it was upped to 200 mg then back down to 180 mg. I've had what the docs call a Geodon headache for over a year. Had all kinds of tests done to rule out other things, all okay.

I finally was able to wean off Geodon as I titrated up on Seroquil. Been off Geodon for a few months now. Headaches are still there although I had a quiet period where I was able to stop all pain meds and was hopeful it was going away, but it didn't, came crashing back and that's where I am now. Meanwhile I am still suffering from the headaches, body aches, random vomiting, nausea.

But listen to this....

I just read a report that the drug Clonazepam/Klonopin can produce symptoms of withdrawal for up to TWO YEARS! If that's possible with that drug, there are NO assurances that Geodon does not linger for that long, or longer, especially for those of us who were the test subjects when Geodon came to market??

It's a fact that coming off 80 mg a day will produce the same severity of symptoms as coming off 200 mg. The doctors distributing Geodon STILL do not know much about this drug, and it's often prescribed for sleep issues.

I for one think that this drug WILL stay in the system, in the brain for a very long time after withdrawal.

I'm living it.

My best to everyone suffering....


Reply author: ivorywire
Replied on: 04/19/2009 21:40:50
Message:

Viktor by quitting at 80 mg I was basically quitting cold turkey. Anyway, it didn't work. I couldn't sleep at all. Have to wait and ask the doctor.


Reply author: butterkup
Replied on: 04/21/2009 18:55:30
Message:

HI! My doctor just put me on Geodon today. I have to take 3 40mg pills a day. I have been on Seroquel for years and that medication just hasn't worked. It would hit me like a ton of bricks within 30 minutes and I was only taking 50mg, but they wanted me on 300mg! By the way you guys talk I am not sure if this medication is good or not! Has anyone had any good experience with it? I am at the end of my rope with all these medications and no results!


Reply author: hercules21
Replied on: 04/22/2009 00:08:32
Message:

Hi butterkup,

My therapy has a general discussion on Geodon which you may find helpful
http://www.mytherapy.com/discussion/forum.asp?FORUM_ID=207

As an fyi - to check out the entire site (in case you googled this thread directly like I first did) you can use this url
http://www.mytherapy.com/discussion/

Hope this helps


Reply author: koolgirl3178
Replied on: 04/23/2009 15:06:59
Message:

Geodon is the drug from hell. I personally would like to slap the one who made this drug and would have pleasure doing it. It makes me feel like I am out of touch with reality like I am some kind of zombie. My Doctor has me on 80mg 1 in morning and 1 at night but I am taking only 60 mg one in the morning and night. I wish I would have never started taking this drug I was so foolish to ever let him put me on it. Now I feel like hell. I'm going to get off of it cold turkey if I can. I will keep you guys informed on the updates if I don't get too sick.


Reply author: suzyq99
Replied on: 04/27/2009 05:09:59
Message:

I've been on 20mg 2x a day for just about 8 years. I'm trying to get off because I'm starting to have "weird" sensations in my face. I've read some of the side effects and don't want to start having tardive dystonia (or whatever that is). I tried to go down to 1 pill a day but had horrible side effects. Felt like I was going crazy, nausea, back aches, headaches, loss of appetite and others. I work full time so it's not like I can stay in bed for a few months while getting off this. I feel like I'm going to be on this forever. I want to get off all meds.. I mean it's been 8 years, shouldn't my problem be fixed or something. I hate this feeling. I ended up taking the pill but 2 days later still don't feel "normal". Can anyone please help! Is there an alternative that I can speak with my dr about?


Reply author: daffygirl
Replied on: 04/27/2009 10:57:18
Message:

This is in response to the last 2 posts. Be careful doing this cold turkey, it could be dangerous and quite scary. I have always said this is the drug from hell. It is gonna be a tough road and as you know everyone is different coming off of it. So as far as an alternative? All I can say is read all 11 pages of this thread and hopefully something will help the both of you. I still think the maker of this particular drug needs to take it and see exactly what it does to people. Good luck and let us know how it's going. Stay strong!!



Laurie :-)


Reply author: kat2009
Replied on: 05/01/2009 10:42:49
Message:

I agree this medication is a nightmare to come off of. It took me two months. I reduced my dosage very slowly I even would open the capsules and dump some of it out so by the end I was having only a few granules in the capsule. My doctor precribed valium to help with the dyskenisia and dystonia symptoms but I was also having bad dreams where I was screaming in my sleep for the last few nights I was withdrawing so the valium seemed to help with that also. I'm not recommending valium as a withdrawal treatment but it did help for me. I still have the dyskenisia and dystonia symptoms and I have been off Geodon for 4 1/2 months. I wish all of you luck coming off this medication.


Reply author: MomOfBipolar
Replied on: 05/02/2009 18:23:18
Message:

Anyone else have horrible nightmares while taking Geodon?

What about severe DECREASE in blood pressure? When my 13 yr old went from 20-40 mg, she passed out cold 2 mornings in a row. The 2nd day I could barely find a pulse. Doc lowered the Geodon & everthing was OK.

Now she's coming off of Geodon after 6 months -- just in time for Finals. I know it's going to be bad, but it can't be worse than taking it.


Reply author: koolgirl3178
Replied on: 05/11/2009 09:32:52
Message:

MomofBipolar, Yes I had nightmares while on Geodon. I would wake up screaming and sweating they were that bad. It has been 2 weeks since I have stopped taking the Geodon. I was put on Abilify immediately after taking the Geodon. I have since quit taking the Abilify because I feel that I do not need it. The Withdrawal symptoms I had from the Geodon was flu like symptoms sinus problems and stuffy head. Geodon is the drug from hell. I urge all of you that take it or have come off of it to never ever recommend this drug to anyone or do not let a doctor give this to any members of your family. In my opinion I would urge everyone to try to get off of this drug. But that is just my opinion though.


Reply author: Viktor
Replied on: 05/13/2009 16:11:47
Message:

I'm still going through Geodon withdrawals and I thought they were over. The last month and a half has been horrendous with nausea and vomiting off and on for days at a time (7 - 8 days was one of the worst). I'll be fine and them BAM. Don't even have time to run to the bathroom it's so violent. It feels different from regular nausea too, hard to explain, like it's coming from a switch in my brain. I still have the headache but it's evolved since the beginning, comes and goes in waves. I've learned to deal with the headache but this other sh*t is really laying me low. I lost ten pounds in one week. I can't afford to lose the weight so I spend the time when I'm feeling better eating enough calories to try and put the weight back on.

This has been 5 months now since I quit. Most of the research I've read, including the doctors who advise on the websites say that withdrawal will only last a week or two. No biggee!! That someone can wean off in a few days. Bull. I'm so disgusted.

I'm reiterating here that IT'S NOT NECESSARILY TRUE. Wean off very, very gradually and don't expect this stuff to leave your body immediately, especially if you've been on high doses and for a long time. My research with these drugs tells me that it may last in the body a very long time, and now I'm praying very hard that this isn't permanent.

I've also been looking into suing the maker of this drug.

NO ONE KNEW ANYTHING ABOUT IT when it was released in 2001, and the maker kept a lot of what they knew quiet and the doctors dispensing it now don't know much more. How frightening is that?? I can't recall the mental drug I just read about that stays in the system (after stopping) for up to two years!! I'm trying to remember which one it is, it's probably one some of you are familiar with.

Mass testing these products on the public is NOT ethical!!

I tell you what tho, when all this is over.... no more headaches, no more withdrawal symptoms... I won't ever have a bad day again. NOTHING will ever get me down again. When this is over and I feel decent again, I'll be so grateful.


Reply author: Viktor
Replied on: 05/13/2009 16:34:05
Message:

Someone asked if Geodon worked for them.

I have to say that yes, it worked great for me up until the last year. Five years of controlled symptoms and my life back. The doctor had a tough time finding a medication that covered my symptoms. So we were getting to the bottom of the barrel. When it worked, it worked very well. I had an EKG baseline but after that no attention was made to the heart problems associated with this drug.

So yes, it worked, and I was very grateful while it worked, however my symptoms are now covered completely by Seroquil, which was given to me at a low dose (with the Geodon) to help the insomnia, no one every tried to up the Seroquil to see if it would cover the symptoms. This is a far better drug than Geodon. If I had known it would work, I would never have taken the Geodon. But our care is only as good as the doctor we have. And not all doctors are good.

Aside from the label warning regarding heart problems, it worked in my case in what I thought was a last ditch effort to find a med that would be successful. Unfortunately, the doctor didn't pursue the one drug I was already on at a low dose that would have worked very well at a much higher dose.

AND the side effect warnings were not alarming at all. That's because no one knew about them .... yet. The public mass testing had only just started.


Reply author: chelle25
Replied on: 05/15/2009 10:38:25
Message:

Hey all, just wanted to give you an update. I decided not to go down to 20 mg back in March. I told the doctor I wanted to wait because I was still getting the hot flash/chills and withdrawal symptoms. The doc suggested instead of me taking the whole 40mg at bedtime to take 20mg at around 5pm and the other 20 at around 10pm. Things did get better after that so now all of those symptoms slowly subsided. I just went to the doctor this past Monday and I am now taking 20mg at bedtime. I was told by the doctor if I start thinking strangely (like when I was in a Psychosis state) to up the dose back to 40mg per day and call her. So far it's only been a couple days but I notice around 5:00pm I start getting really tired but a hyper feeling at the same time. I am staying up later at night wanting to sleep in, in the morning. so far no psychosis. That is my worst fear is going back into a psychotic state. even though they told me that my psychosis was due to the prednisone I still have that fear and doubt that what if I do have a mental illness. If I do I surely do not want to walk around unmedicated. Anyhow I'll keep you updated to how this all ends up.


Reply author: koolgirl3178
Replied on: 05/20/2009 11:32:02
Message:

I have been off Geodon for quite some while now. I had nausea and an upset stomach plus and severe headaches. But I'm slowly coming through. I hope you all are getting better and coming off of the drug well. From now on I will do research on a drug before I let my doctor put me on it.

Koolgirl3178


Reply author: corpuskristen
Replied on: 05/24/2009 13:19:06
Message:

Hi all just registed here so i could share my experience with Geodon withdrawal. Hopefully it will help someone. The first time I skipped a dose I had all the classic symptoms of withdrawal; body tremors, heat flashes, nausea and diarrhea. I was on 160 mg per day and attempted at first to taper down but the aweful feeling of doom and anxiety was too much to bear. So yesterday I just quit cold turkey but this time I only had some mild nausea. I slept just fine quitting my evening dose. So why was it different this time? Trazodone and benadryl. I normally take 50 mg trazadone a night and i bumped that up to 150 mg last night and I have been taking 50 mg benadryl every four hours. So far so good. Hopefully I just skipped almost all withdrawal symptoms. I will let you all know if anything changes for the worse.


Reply author: Taylorgirl
Replied on: 05/30/2009 12:40:49
Message:

I am trying for the 3rd time now to come off of Geodon and for good this time. I have been on 80 mg for two years and I think I was misdiagnosed with bi-polar when in fact it was depression after losing my brother. This has been a struggle. I have been able to completely wean myself off of Effexor and lorazepam and now the only drug left is Geodon. Why is this one so difficult. Any suggestions?

Taylorgirl


Reply author: sunkiss36
Replied on: 06/25/2009 11:19:47
Message:

Hi everyone, what a wonderful site [thank you to those who run this site] my sister who i love so much has been told most of her life that she is bi-polar, she has had thoughts all her life, but she also has had long period of times where she is GREAT!!!!!..her Doctor put her on GEODON 5 months ago, 120mg aday..WOW! i have been close to my sister all our lives, we are only 2 years apart, i am no Doctor, BUT..i have NEVER thought my sister needed to be on the drug that i call the drug from HELL!!! GEODON...she has been staying at my house for the last 7 days [her hubby, and my hubby] are wonderful men, and at times they say PLEASE just stop it, you are OK! but they understand more than most , and they are wonderful about helping..anyway i wanted to let you guys know how she has been after getting off GEODON.. COLD TURKEY!..she has had NO side affects, NO WITHDRAWLS thank GOD..i couldnt believe it, nor could she.. she has been off it for 5 days now, and she said she feels just fine.[but GEODON isnt a good medication IMO]we called her DR cuz she also told my sister to take 10 2mg of klonopin aday..WHAT..please i know and understand some have to take medication, and alot more then others, but i said HELL NO..no way are you going to give my sister 10 2mg of those pills aday, when she didnt feel like she needed it..now she does take 2 1mg aday but to jump her up to 10 2mg pills aday and then that Doctor said, i NEVER gave her a RX for that many pills..i told her yes you did, she tried to blame it on the person that filled it at the drug store,saying they [the drug store got it wrong] so i went to the drug store got them to make a copy of the RX that, that Doctor wrote, and took it to her office to show her OH YES YOU DID!!! she couldnt say a word cuz she knew she was BUSTED..i know there are some great doctors out there, but most think they are little GODS.. back to the GEODON that medication had my sister sleeping for 2 days at a time, and it would take us afew hours to really get her up, than she would talk like she was a drunk! and she would be very mean, and hateful at times,it was like she didnt have any kind of life anymore. it wasnt helping her, so i said why?? are you taking a drug that you say isnt even helping you, that is DESTROYING your life..so she said i am just going off it..i didnt think that was a very good ideal, i had her come stay with me so i could watch her, and make sure she ate right, and got all the sleep she needed, i did have her GEODON on hand incase she needed to taper off it, but she never needed to, she didnt feel anything bad from going off it at all..i just want to let everyone here know, i am praying for you, i hope this HELL DRUG gets out of your system FAST..and i wish only the best for you all..thanks for letting me post at this wondeful site


Reply author: sunkiss36
Replied on: 06/25/2009 12:05:13
Message:

quote:
Originally posted by chelle25

Hey all, just wanted to give you an update. I decided not to go down to 20 mg back in March. I told the doctor I wanted to wait because I was still getting the hot flash/chills and withdrawal symptoms. The doc suggested instead of me taking the whole 40mg at bedtime to take 20mg at around 5pm and the other 20 at around 10pm. Things did get better after that so now all of those symptoms slowly subsided. I just went to the doctor this past Monday and I am now taking 20mg at bedtime. I was told by the doctor if I start thinking strangely (like when I was in a Psychosis state) to up the dose back to 40mg per day and call her. So far it's only been a couple days but I notice around 5:00pm I start getting really tired but a hyper feeling at the same time. I am staying up later at night wanting to sleep in, in the morning. so far no psychosis. That is my worst fear is going back into a psychotic state. even though they told me that my psychosis was due to the prednisone I still have that fear and doubt that what if I do have a mental illness. If I do I surely do not want to walk around unmedicated. Anyhow I'll keep you updated to how this all ends up.



Hi, i hope you are doing well this is what happen to my sister [i posted about her right above this post] come to find out we all have some kind of thoughts from time to time, and in my sister's case she would run with them, and think something was awful wrong with her, she is now in a group where you think positive thoughts when you feel bad thoughts or fears coming on [that is what she had fears] like of death, sickness etc etc...the group helped her through each person sharing their feelings, and they would teach you to tell yourself to say i am ok, i will be great, i can do it, and after time her brain just got use to knowing she was going to be ok, it's like all those years of making her brain think the worse, she now thinks the best. it is like programing you brain to think positive, telling your brain when neg thoughts come in to go away, she said you have to keep saying it to yourself, and bingo..one day she just got better..i hope everything works out for you


Reply author: Coryorth
Replied on: 06/26/2009 16:41:26
Message:

Okay. I really need some help here guys.
It's a long drawn out story, so please oh god please bare with me.
I started taking Geodon for about a week and a half ago, about the 19th or something. My doctor wanted to put me on 40 mgs at night before bed. I misplaced the bottle so I started on the 80mg on accident (Stupid I know). I had a horrible night, my mother had to console me to help me relax. The following day I had the 40mg's refilled and I was back to my pattern of one every night. I was okay, infact I was good, except in the mornings. I felt very drowsy and unable to do ANYTHING. I would lie in bed miserable. I didn't catch on. So after say 4-5 days of taking it I decided to take the actual dose, thinking I was ready for it. 2 40 mg's at night before bed. And 1 40 mg in the morning. By 7 am that morning I was in the ER over a severe panic attack. The doctors at the ER gave me xanax and sent me home. I was fine. Next day, I took one geodon 40mg in the morning, and had an appointment with my psych. I told him what had happened. He advised me I should stop taking it. Not wene it, just stop taking it. So I did. Now I am going through hell. Can someone please oh please god tell me how long these withdrawals will last. My brother, my mom, and all my friends are scared and praying for me. ive been taking xanax to calm the side effects, could this be bad?


Reply author: Coryorth
Replied on: 06/26/2009 18:07:54
Message:

Oh and the Xanax does help. Unfotunately I cannot sleep. I am getting a ride to a clinic now where they might perscribe something for the sleeping as the insomnia is terrible. I almost feel like I want to sleep my entire way through these side effects.
One thing I must note, xanax+darvocet=good for 6 hours. With me some side effects still work through, but the pain meds make you not worry about them. Which is nice. But don't listen to me, consult your pharmacist, ask if there will be a reaction. Get some off the street, who cares, because to be dead honest this is the worst experience in my life and thank god I see light at the end of the tunnel. ONly thing keeping the light alive is the fact I only took it for a week, and I am strong in my faith. My heart goes out to those of you who have been on it longer, you brave souls.


Reply author: sunkiss36
Replied on: 06/27/2009 06:14:34
Message:

hi coryorth, like i said about my sister, she too was the same way you are when she was on GEODON!!!!!..we could not wake her up in the morning, she spoke as if she were drunk..almost all day everyday, she really had no life on GEODON...gosh my heart goes out to those here that are having withdrawls, like i said my sister was on 120mg anight, and 40mg in the morning for 5 months, and she went off it COLD TURKEY....cuz thats how she wanted to go off it, but i was worried after reading what going off GEODON would do to you if you didnt taper off...so i made sure i had her GEODON on hand incase she went through this nightmare that most here seem to be going through...i can tell you one thing that helped her go cold turkey, she went to another Dr..after she saw that the Dr she was seeing was just a drug dealer, and she got on 40mg of prozac aday..she had been on the prozac for 2 weeks before going off the GEODON..her new Dr told her that is why she didnt have any withdrawls, going off the geodon, i know everyone is not the same, but it helped her. prozac doesnt make her sleepy, drugie, or mean, i mean i know what you are living, we had to be with my sister it seems like 24/7 while she was on GEODON...i know prozac is a older medication BUT it does work for her, and after having it in her system..for 2 weeks when she got off geodon..did the trick for her.. she also takes 2 benadryl anight for sleep, and they WORK and benadryl is SAFE you can take it every night for the rest of your life and it will NOT hurt you, even the vet that i take my dog to said i could give my dog benadryl every night if i needed to..i wish you the best..and you are in my prayers, i hate GEODON so much after seeing it destroy 5 months of my sister's life, that i would not NEVER NEVER what to see her take that HELL DRUG AGAIN!!!!


Reply author: Akirea
Replied on: 07/16/2009 00:31:36
Message:

I decided Geodon was horrible before I had a clue of what it did. I'm 16-years old, and for two to three weeks my mother has literally forced me to take this. I'm already addicted to it, the only good effect that has come from it is the fact I can't sleep; before I started taking this, I was almost always exausted. I had no energy. That's not the reason she's forced me to take it. There is no reason. The doctor perscribed it and had me start out taking one pill a day.. started with 60mg when it should've been 20mg. After the first three days she made me take two. The doctor didn't really talk to me even, when he should've been talking to the person he was giving the Geodon to. He went by everything my mom and her boyfriend said, and honestly, they lie. I guess his reason is he thought I was going to do something stupid like commit sucide, which I'm am extremely against. I've heard the Geodon starts working as soon as you start taking it, though. What it does to me is this; it takes one to two hours to start making me tired. For about four hours after it does that I can do nothing but sleep. After that I wake up and I can't go back to sleep until I take it yet again. I'm going to go ahead and list all of the side effect I've experienced: drowsiness, restlessness, Nausea, dizziness, indigestion, constipation, feeling lightheaded, stiff muscles, horrible pains in my legs, arms, and back(it feels exactly like someone is sticking hundreds of needles in them when it happens), increased amount of headaces, being unbalanced sometimes, difficult swallowing. I've even had weird electric pulses every now and then? If that even makes sense?

Since I started skipping the one at night, and since I wasen't able to take one yesterday morning, these apply to me: I'm still restless(if not more), stomach cramps, increased dizziness, I feel lightheaded even more, more muscles being stiff at once, the pains in my limbs and back occur more often and keep getting worse, migraine, extremely unbalanced, expecially after getting up from laying on my side, and I've had a fever almost all day.

All I know is this stuff is horrible. I hope my withdrawl dosen't get any worse. The doctor who gave it to me in the first place told me that there were no withdrawls? You would be taking it from a 16-year old, but I would not suggest taking Geodon. I'm quitting myself. I'm trying to debating on whether to slowly come off it or just to throw the bottle away and take the withdrawls... it's tempting.

I would like to know about this, though. I've read that if you or possibly someone in your family has a history of heart problems, hear attacks, heart disease, all that stuff... that you shouldn't be taking it? My dad just died a few months ago. He died of heart disease, never knew he had it. He was only 36 years old... had a massive heart attack. I have problems with heart burn and things like that myself. I don't think it's normal for me to get heart burn as often as I do. Not normal unless I was a lot older. It's something that runs in my family though, my grandfather has heart disease as well.

-Is it even safe for me to be taking this? Obviously my doctor isn't much help. It seems to me that he dosen't know much about Geodon.


Reply author: hercules21
Replied on: 08/01/2009 01:15:37
Message:

Based on what you have posted with all the side effects and I would find a different med to go on to. Try to go off it slowly I have permanent damage to my neurons by decreasing too quickly.
I am not sure if heart burn counts as a heart problem or not. But I would discuss it with a doctor. I think you need to talk to someone in the medical profession who can help. you are saying that your current doctor can't help. So you will have to get creative about who you can consult with. I think even a GP could offer some general advice. I think even a pharmacist could probably help with your question about if heart burn is a reason to discontinue geodon. You can also tell them that it runs in your family and ask about that.

I have a question for the users of this discussion thread who posted much earlier. Many of you posted about having insomnia and having to go onto sleeping pills temporarily due to the withdrawal problems.
Did this improve over time. Do you still have to take sleeping pills.
I have to take a sleeping pill once a week. And my partial withdrawal was 6 months ago. I have no signs of improvement in my sleep. Has anyone 100% recovered in terms of sleeping after initially having troubles.


Reply author: Guava
Replied on: 08/10/2009 08:29:29
Message:

I have only been on Geodon for 2 weeks. 60mg for sleep. I really didn't like the way it was making me feel, so I decided I wasn't gonna take it anymore. BIG mistake. I only missed ONE dose, and it was the worst night of my life. It was like mania had been induced, and I was having a really bad acid trip. Seeing trails, hearing music, totally strung out. I had to remind myself that it was just the medication, and that I wasn't going crazy or about to die. I am terrified to go off of it now, cause I don't ever want to feel that way again. I see my psychiatrist in a few days to talk about weening off of it. Until then, I have been taking it without food as that decreases its affectiveness. Also, DO NOT use with alcohol. I had 2 glasses of wine last night with dinner and was up with the same symptoms until I finally caved and took a xanax. I wasn't sure about mixing meds, but I was desperate and the xanax was a godsend.


Reply author: airwin433
Replied on: 08/12/2009 21:25:14
Message:

I,m withdrawing off this med right now. I've had a horrible exp with this med. Made me sick with flu like symptoms and nausea. There are quite a few more side effects I'm having but I'm gonna keep it short. STAY FAR AWAY FROM THIS MED.

quote:
Originally posted by katie1

I AM REALLY HOPING THAT SOMEONE OUT THERE CAN REPLY TO MY POST. I NEED TO TALK TO SOMEONE.


Reply author: angelskt
Replied on: 08/26/2009 07:39:01
Message:

Hi, I too am comming off Geodon and suffering the crazy side affects! Reading all your comments makes me feel I am not alone and I am not really going crazy! What a terrible drug!!! This is the worst thing I have ever gone through. I thought giving up drinking wine was the hardest depression I have ever felt. I thought I am still in PAW's stage after many months and all along it has been the geodon. Last night was my first night off of it and I took a natural sleep aid. Got to sleep but in a concious sleep with withdrawls going from 1:30 am on and woke up feeling crazy this am with the worst headache. I took 60 mg of Cymbalta for fibromyalgia and now that it has kicked in, I am feeling a little better. I will get through this after reading all of your notes. I know what to expect and know I am not really going crazy here, so I WILL get through it. My dr will be mad but I am not bipolar, I suffer depression only. Thank you all for your input!!! Good luck and hang in there and get off this horrible drug safely!
thanks,
Kathy


Reply author: Chris
Replied on: 08/28/2009 00:50:58
Message:

Anyone on here ever develop an allergic reaction to Geodon? If so what was it like could you describe it to me please?

Anarchy and Peace


Reply author: Chris
Replied on: 08/29/2009 12:38:44
Message:

ok so I brought this on myself. I went on Geodon about a month ago because I had to get off Seroquel. It was an effortless and positive transition period. I had read the withdrawal threads here but I had no choice I was getting extra pyramidal symptoms from the Seroquel and anyway I had run out of it and only had the prescription for Geodon my doctor had given me.

ok anyway after two days of being on the full dose (120mg) of Geodon with no more Seroquel in my system I developed an allergic reaction, a severe alleric reaction. I broke out in angry red hives all over my body I was getting akathisia and chest pains, insomnia, I was punching myself in the head the night before the really bad stuff happened.

I had to go to the hospital because of the hives and they told me to stop taking the drug immediately. I went to see my head shrinker and told him about this and he concluded rightly that it was an allergic reaction and switched me that day from Geodon to Perphenazine I'm on day two of no Geodon and last night I wanted to take a pipe to someone's head actually went so far as to bring a retractable baton outside and tried to pick a fight with some noisy jokers on a patio in the next building... I"M A FCUKING PACIFIST PEOPLE, I scared the living wits out of my wife and could have gotten seriously hurt also I broke my retractable baton and (thankfully) had to toss it in a dumpster.

I'm wooly headed and very irritable, noises outside the apartment are making me angry and I keep hearing this irregular pulsing, ringing sound in my ears. I have tinnitus anyway but this is different and thank God it's not my pulse because I'd have serious heart problems if it were.

Last night before the incident with the pipe I was reading through this thread and finding all the common symptoms of withdrawal. Some of these are repeats but I think it's important to catalogue this, these are words used in previous posts in this thread to describe withdrawal from this drug please include any that I missed:

dizzy,
vomiting,
fainting,
shaking,
head ache,
panic attack,
blackouts,
hot flashes,
very sensitive to light,
sweats and chills
“tracers”
no appetite
I'm hot and cold at the same time
Delirious
Hallucinations
Exhaustion
feel like something is stuck in my throat
insomnia
sensitive to sudden sounds
goose bumps
depression
tightness in the chest
trouble breathing in and severe pain in my throat and chest
feeling like I'm floating
extreme anxiety
colors are brighter
paranoia
irritable,
facial tics
twitching
combative,
unable to control outbursts
Restless,
unable to stand still, sit still, or concentrate
Walking aimlessly in circles
Skin crawling
Convulsion
Uncontrollable sobbing followed by insane rage and urge to violence
slurred speech,
dragging limbs,
Shooting pain
Tremors
Parkinson's-like movements,
Jaw clattering,
eyelids twitching
Could not walk and talk at same time
had little appetite
unable to chew
diconnected feeling,
sense of unreality,
loss of time,
horrible thoughts in my head
very odd dreams
hypo-mania

so far I've got the urge to violence, the disconnection from reality, the jumpiness at sudden noises and difficultu talking and writing properly, and feeling like I'm cottonbrained, also tremors and chest pain. At least the swelling and hives have gone away.

I'm not sure what to expect, I've got no choice but to go cold turkey. I brought this on myself because I knew about all the side effects and all the withdrawal symptoms but chose to take a gamble anyway. I am not proud, I am scared, I am supposed to go out of town today until thursday for my wedding anniversary.

ugh.

I agree with the people on here who have said this drug should be banned I also believe that the people who designed it and the people who run the company which makes it should be brought up on charges this drug is pure concentrated evil. I have had schizophrenia for ten years and this is the worst thing since psychosis. if anyone on here can help me with support and encouragement I really feel I could use it right now.




Anarchy and Peace


Reply author: Chris
Replied on: 08/30/2009 03:09:07
Message:

I woke up at midnight and had only been able to get snatches of sleep since then and they've all been fever dreams, not good.

Then a little while ago I started tripping out seeing patterns and stuff when I closed my eyes, just like my acid days I got up to go on the computer because I was afraid of keeping my wife awake and I'm seeing tracers on the screen, the mouse is doing some really trippy things and it's difficult to make sense of the keyboard I'm still feeling cottonbrained and getting pulses in my ears (thank God it's not my pulse) but at least for now I don't have pain in my chest.

I'll Xpost this to the withdrawal thread and see what happens I hear this sh!t can last up to a week and a half, this is coming on day three. at least I'm not nauseus any more. I just wish I didn't have nightmares I would ove to have a deep dreamless sleep that lasts all night the past few have been really hellish. Also it's very difficult to type words on this computer. colour and shade are very exaggerated and it's making things difficult.

Anarchy and Peace


Reply author: Chris
Replied on: 08/30/2009 03:13:48
Message:

of the list I created above I am or have already experienced the following:

dizzy,
shaking,
head ache,
hot flashes,
very sensitive to light,
sweats and chills
tracers
I'm hot and cold at the same time
Delirious
Hallucinations
Exhaustion
feel like something is stuck in my throat
insomnia
sensitive to sudden sounds
tightness in the chest
trouble breathing in and severe pain in my throat and chest
feeling like I'm floating
colors are brighter
irritable,
combative,
unable to control outbursts
Restless,
Convulsion
Uncontrollable sobbing followed by insane rage and urge to violence
slurred speech,
Parkinson's-like movements,
diconnected feeling,
sense of unreality,
horrible thoughts in my head
very odd dreams

This is after 48+ hours, I'm going into day three as I write this.

I would also like to add clenched jaw to this list of horrors

Anarchy and Peace


Reply author: Chris
Replied on: 08/30/2009 03:16:33
Message:

I will continue to document the effects of this withdrawal in as much detail as I can let this whole thread stand as a 13 page warning to anyone foolish enough to think it can't happen to them.

Anarchy and Peace


Reply author: ctap
Replied on: 09/01/2009 18:50:21
Message:

Marilyn,
Have you stayed clear of Geodon? My wife has been on and off it and has caused "profuse swallowing" she calls it along with a feeling like "someone is choking me." And now that part is gone but feels like she is going to stop breathing she says. Helps all her pain when she is on it but then the tardive stuff starts happening. I actually called Pfizer and they said yes, they have had that symptom reported in 1 in 100... I guess the doctors and them are in ca-hoots and they know they will get sued sometimes. So they charge a fortune for the medicine to pay for the law suits... that's my take on it... well she is going to go on Seleguline now.. a 6mg patch MAOB inhibitor. Hope it works... Please write back... Pat

quote:
Originally posted by Marilyn

I was prescribed geodon in 60mg and have been taking it for a little over a month now. This drug is my ultimate nightmare. The side effects seemed to tear into my life after three to four weeks of taking it. I'm edgy, have a loss of facial control and severe slurred speech. It feels as though I'm having the bad effects of being drunk. I cannot balance well, I about busted my face wearing a pair of heels. I have problems with simple motor skills, pronunciation, etc.*it make me feel like an idiot, I have problems thinking clearly. I have difficulty swallowing, severe heat waves. I feel as though my flesh is disconnected to my body and crawling across it with the legs made of needles. I've almost crashed due to a horrid dizzy spell. After two weeks I developed swollen lymphnodes under my armpit. I actually felt like I was fine. I've blacked out the three times I've drank on this medicine. The second time I had two glasses of wine, got in a dispute and put two ciggarettes out on my neck. The third time I had two or three got in a dispute and punched myself in the eye five times. The next day my face was mangled. The whole time I've been told I couldn't control my speech, could barely stand and appeared to be an elderly drunk, I cannot recall a thing. I'm 23 folks, and I don't go around hitting myself.....the fact is you can't ****ing drink on it. I wanted to, tried, and about lost my boyfriend and several friends. I stopped taking it tonight. I've felt like throwing up all day, I have the sweats and chills, DEATH TO PSYCHIATRISTS. Just kidding about that, but seriously. Wise up with me and realize they are getting paid an amount for each single prescription they prescribe to us. They make ****ing commission off our mental health and put us through HELL. While they go and drink margaritas in the pool that costed us our sanity....I THINK WE SHOULD TAKE A DIP INTO REALITY. AND LEARN TO JUST ****ING DEAL WITH THINGS. And I know it sucks, I want to cry (due to the geodon...crying fits out of nowhere several times) right now about how sad it is that we just subject ourselves to this fake fix-all in a pill. How about next time we see the doctor....ask them if they take any pills themselves, or do their son or daughters. I'd rather face my demons than take a medicine like this ever again in my life. It wil be a horrible decision to take this drug. I'm sorry if you're currently taking it.

miranda



Pat


Reply author: ctap
Replied on: 09/01/2009 18:57:49
Message:

Keith,
Have you stayed clear of Geodon? My wife has been on and off it and has caused "profuse swallowing" she calls it along with a feeling like "someone is choking me." And now that part is gone but feels like she is going to stop breathing she says. Helps all her pain when she is on it but then the tardive stuff starts happening. I actually called Pfizer and they said yes, they have had that symptom reported in 1 in 100... I guess the doctors and them are in ca-hoots and they know they will get sued sometimes. So they charge a fortune for the medicine to pay for the law suits... that's my take on it... well she is going to go on Seleguline now.. a 6mg patch MAOB inhibitor. Hope it works... Please write back... Pat (p.s. i cut and pasted this because I am too lazy to type it again... are the symptoms listed common?)

quote:
Originally posted by jedimind

quote:
Originally posted by katie1

AMYA THANK YOU FOR RESPONDING. HOW LONG HAVE YOU BEEN ON GEODON? WOULD YOU PLEASE POST AGAIN I WOULD LIKE TO SHARE EXPERIENCES, I AM TERRIFIED. HOPE YOU SEE THIS POST.

Katie1, i just saw your posts and I'm hoping you're doing ok by now. unfortunately you have good reason to be terrified, Coming off geodon was the Worst experience of my life, i thought i was gonna die. if you need any advice let me know.

Keith A Parks



Pat


Reply author: Viktor
Replied on: 09/03/2009 14:48:04
Message:

I've been off Geodon completely since January. It's been a horror ride. The headaches, nausea, projectile vomiting, body aches, tremors, and insomnia have been unrelenting and even the pain pills didn't help any more. Then it seemed to reach an incredible peak where I couldn't even get out of bed. NOTHING helped the head pain, and the doctors didn't ~really~ think it was that bad. It was, but I think I'm finally coming through the other side of this.

I've had one month and one day of lessening symptoms. Lessening so much that I rarely get a headache anymore and if one comes, it's for a couple of hours, not too bad and LEAVES, and the nausea has stopped as well as the vomiting. It's like I've come out of a heavy rain and lightening storm to finally see dry land. I'm keeping my fingers crossed. I've weaned off the pain meds. I'm now only on the Seroquil and for the first time in a long time feel hope that this might be over.

A year and a half of headaches so severe they sent me to the ER time after time. Vomiting and nausea so bad I'm rail thin and have lived off sports drinks and liquid meal replacements.

My Psych doc wanted me to stop taking this poison cold turkey!! she said no big deal, but my instincts said otherwise. And now I know why the doctors know little to nothing about this horrible drug... the company that makes it (Pfizer) was less than honest in marketing these drugs and GEODON is one of the drugs targeted in the BILLION dollar fine the Feds have imposed (was in the news today! 9/2/09). PLEASE READ THIS:

http://www.businessweek.com/bwdaily/dnflash/content/sep2009/db2009092_913433.htm

THAT'S the reason this sh*t's been handed out like candy and why the doctors know no more about it than we (the guinea pigs) do!

If a BILLION dollar fine will help them stay straight, then good, but it doesn't EVEN BEGIN to cover the pain and suffering we've been put through taking this stuff!!











Reply author: daffygirl
Replied on: 09/05/2009 12:03:45
Message:

AMEN Viktor!! UN-believable!!!

Glad to see you finally posted again. Isn't it crazy how much crap this drug has caused people? I for one am GLAD I'm done with it. Sad that we have to find this thread after we started taking it or at least I did, but with the hope that someone will read it first before they pop the first one that starts it all. Take care.



Laurie :-)


Reply author: Viktor
Replied on: 09/06/2009 19:04:33
Message:

Thank you Daffygirl. I'm keeping my fingers crossed! Hard!!

It should be a drug of last resort for severe mental illness. In all fairness it worked very well for six years before the headache started, and even with the headache it still worked well stopping my symptoms! But the doctors (I've now had three doctors while on this stuff) don't know ANYTHING about it, they really don't. When the headache hit the general concensus was that it couldn't be the Geodon so I had test after test (which was good because it ruled out everything else including migraines). Then they HAD to see that it was the med. I started it two years after it was introduced to the public and was on one of the highest doses the entire six years.

My latest doctor and his staff seem to be very aware of the headache syndrome that Geodon causes and seem to know much more than anyone I've been around so far, but they aren't able to do anything about getting rid of the symptoms, just monitor the patient.

One of the hardest things was going to the ER and them basically thinking I'm there for a hit of morphine than anything else. Nothing I could do about it tho... beats taking a bat to your head, and that's been a serious thought.

So, if we can inform whomever comes across this website, at least let people know that there are OTHER meds out there effective to get sleep than to take Geodon, there are other meds out there to control symptoms and they aren't alone in this horror.

And to especially know that this medicine should only be taken as a last resort and a last resort only and ONLY for severe mental illness!

And I hope Pfizer gets their asp sewn shut with that lawsuit.

Please read the link provided.

Good luck and clear thinking to everyone~! Vik


Reply author: Chris
Replied on: 09/07/2009 02:58:12
Message:

has anyone taken steps towards a lawsuit against pfizer for damages caused by this drug? I want to sue and I also know my story is nothing compared to what I've read in this thread. Does anyone have any advice for legal action?

Anarchy and Peace


Reply author: Aria L.
Replied on: 09/09/2009 12:07:27
Message:

Hello! I'm really relieved to find this forum. It was nice (ironically) to find other people going through the same things I am. I am coming off of Geodone cold turkey right now. I was only on it for a few months but the withdrawal so far has indeed, been hell. I too was beginning to experience the early symptoms of the TD that Geodone can cause and was having numbness and tingling in my extremeties and twitches or muscle spasms in my face. Not wanting this to become permanent, I decided that the Geodone was out. I am now having complete dizziness, sound seems detached from everything around me and is accompanied by shocks in my head that also make me more dizzy as they pass. I hurt all over and have muscle spasms and I am really irritable. I have complete insomnia and yet I am determined to tough it out. I've come this far and it will get better, I know it. I was only at 80 mg. at night for a few months and this is what the withdrawal is causing at this stage and I can't imagine what others will go through coming off of this drug who have been on it for a long time. Just know that we're all in the same boat and it has to pass. Thank you all for posting here - it has made a world of difference in my morale. Here's my wish for good luck to everyone here!

- Aria L.


Reply author: Aria L.
Replied on: 09/10/2009 12:07:40
Message:

Thank you Anarchy and Peace for the symptom list for withdrawal from Geodone. It was perfect right down to the grinding or chattering teeth that I also experinced. I am happy to say that after about 24 grueling hours I am feeling better. I am just hoping that this is the light at the end of the tunnel and not the eye of the storm. I still have minor jaw tremor and irritability and my legs ache from all the spasms and jerking yesterday. It was horrible. And I do have a mild headache, but I'll take it. I had cancer once upon a time and I can tell you that yesterday dwarfed even the pain from that. Yesterday was one of the worst days of my life and for a minute I thought about simply stepping down instead of quitting, but I just wasn't going to cave or let a rotten pill have control of me. If I had had to hold out for much longer - I would have. I hope that I'm through the worst of this as I homeschool my daughter and I have to be able to function. I see my Psy. Doc next week too and we're going to have a little chat about Geodone. I am angry that he was simply upping my dose and juggling medicines around the Geodone which was prescribed to me for insomnia and NEVER helped me sleep. I want to know if he knows what the serious side effects of this pill are and what the withdrawal is. He was certainly eager to up my dose and I am glad that I followed my instincts instead of his orders to be on 120 mgs. by the time I came back. I cut back instead from 80 mgs. to 60 mgs. once a day and then stopped cold turkey. And as for the person here ranting about us stopping medicines without our doctors consent etc. - most of us have talked to our doctors about quitting and/or have the instructions from the company itself to cut back and quit. Go through what we are all going through and then post again. This has been a living hell that I think you have to experience to understand. I would beg anyone about to start Geodone to NOT do it. I really and truly hope everyone's symptoms pass quickly and I will pray for every one of you from now on. Take care and hang in there please, it will get better. I will update this again if I get ill again or this changes. Thanks to all who posted here and for your honesty - you really helped me through a dark place.

- Aria L.


Reply author: Chris
Replied on: 09/10/2009 17:16:07
Message:

hey Aria, I think the reason shrinks prescribe this is that they either don't believe there are withdrawal symptoms or that they don't care, you should direct your doctor to this forum thread so he can help make up his mind, after my doctor read through all this he told me he wasn't going to use this drug in his practice any more and he was pretty enthusiastic about it before I has to go on and off it.

As for the light at the end of the tunnel it is coming by about day four of cold turkey I started to feel better, it's been nearly two weeks now and I'm about back to normal. I would agree that going off this drug was bad, one of the worst experiences of my life I'd say as bad as the psychosis which made me need these drugs.

Anarchy and Peace


Reply author: Viktor
Replied on: 09/13/2009 14:57:13
Message:

Please read this!!!

DO NOT GO OFF GEODON COLD TURKEY~! Even if your doctor tells you it's okay. the withdrawals can be as bad if not worse than heroin. The shock to your system is serious. Wean off this drug.

DO NOT GO OFF GEODON COLD TURKEY!!!


Reply author: Viktor
Replied on: 09/13/2009 15:04:20
Message:

hey Aria, I think the reason shrinks prescribe this is that they either don't believe there are withdrawal symptoms or that they don't care, you should direct your doctor to this forum thread so he can help make up his mind, after my doctor read through all this he told me he wasn't going to use this drug in his practice any more and he was pretty enthusiastic about it before I has to go on and off it.


Please scroll back to the link I provided. It shows an article (last week) about the multi-billion dollar lawsuit that the Federal Government is starting on the company that makes Geodon (along with other drugs).

THE REASON the shrinks prescribe the Geodon the way they do is because the PHARM REPRESENTATIVES (from the drug company) LIED and MISREPRESENTED THE DRUG to the doctors in order to get more sales.

The doctors then prescribed the drug for everything not knowing (because they weren't told) that the side effects and withdrawals are so bad.


Reply author: Chris
Replied on: 09/13/2009 22:37:35
Message:

quote:
Originally posted by Viktor

Please read this!!!

DO NOT GO OFF GEODON COLD TURKEY~! Even if your doctor tells you it's okay. the withdrawals can be as bad if not worse than heroin. The shock to your system is serious. Wean off this drug.

DO NOT GO OFF GEODON COLD TURKEY!!!



I would agree with this but I would add that if you must go cold turkey (like I did) then do it in close communication with either your shrink or your GP. I had to go cold turkey because I became seriously allergic to it I had no choice. If you have a choice then ween off if you don't then do it the safest way possible and stay in touch with your doctor. The good news is that as frightening as it could be if you read this thread you will be prepared for whatever comes.

Anarchy and Peace


Reply author: Tawny
Replied on: 09/18/2009 15:45:07
Message:

I have read most of these postings. I have been on Geodon for eight years, 60 mg at night. It was hell getting adjusted to it, but after about three weeks it was wonderful. I really am having second thoughts about going off of it now. The only reason I am is that I have no emotions whatsoever and there are things that I really need to deal with in therapy. I am taking a *****tail of Geodon, Prozac, Trazodone, Klonopin, BuSpar and I think that is it. I own a multi-million dollar consulting firm and no longer need to hide under my desk. This is a miracle drug. But I want my feelings back. I have missed only one dose in eight years, and that was difficult. I am really scared. My psychiatrist who is also my therapist is completely supportive and agrees with my decision to come off all my meds and see what's really under there. I will write more after I begin the tapering. I am going to 40 mg tonight for a week.


Reply author: daffygirl
Replied on: 09/18/2009 20:51:00
Message:

Good Luck Tawny on your decision to wean off this drug. I wish you the best and am hoping you read most of this thread. There is a whole bunch of us out here that quit taking it and are GLAD we did! Even though it was hell getting there. Keep posting and let us know how your doing.

Laurie :-)


Reply author: Aria L.
Replied on: 09/19/2009 12:23:22
Message:

Ok, here's the update - I've managed to quit the Geodone and I am so glad I did! This thread is a scary one. I told my Psy. doc about it and about the Geodone withdrawal and what it was doing to me with the Dyskenesia and he literally laughed it off - with his sample man for Geodone coming in as I left! Ugh! I will be overseas soon and really glad to look for a new doctor. This was really hard and the residual effects were two weeks of off and on severe anger that I have had to ride out. It has tapered off and I am feeling a lot better - a lot more like myself. I am so glad that you all were here to see what was going on with you and Tawny - good luck and let us know how you are please. Chris - thank you for all the advice in here and again, the symptom list that made me feel like I was not alone in this. I wish you all luck here and I will keep checking back to see how you are.

- Aria L.


Reply author: cresudek
Replied on: 09/23/2009 00:45:57
Message:

I'm going off Geodon cold turkey tonight, so I'll update later on with whatever symptoms I have.

A month or so ago I didn't take my regular dosage and I felt cold and shaky, my teeth were clenched, I felt like I was hit by a bus.

So, I am expecting the same this time around.

I am currently on 180 mg of this stuff.


Reply author: Viktor
Replied on: 09/23/2009 14:21:00
Message:

cresudek - I was on 180 mg of Geodon for six years. PLEASE take my advice and do not go cold turkey getting off this stuff.

As was mentioned previously, cold turkey may be the only option for someone allergic to it, but if not, please taper down on this drug, the withdrawals are intense and at that mg dosage may even be dangerous.

It's parent company (Pfizer) is now being investigated by the Feds because of several drugs that were pushed without adequate information given to doctors AND pushed as being effective for symptoms it was not. GEODON WAS ONE OF THE MEDICATIONS~!!

PLEASE taper off this drug. At 180 mgs the shock to your system could be serious.

Also, this drug's after-life (once you've finally come off it) is a LONG time. For me, I'm still having symptoms and it's been 9 months!!
Thank God the headache is gone and the vomiting, but I still feel like I'm coming down with the flu.

PLEASE taper off!!!


Reply author: cresudek
Replied on: 09/24/2009 13:17:08
Message:

I couldn't take the withdrawals so I took the Geodon. I'll wait and talk to my dr about tapering me off of it.


Reply author: Viktor
Replied on: 09/25/2009 14:05:41
Message:

quote:
I couldn't take the withdrawals so I took the Geodon. I'll wait and talk to my dr about tapering me off of it.


I'm relieved!

It's hard enough tapering down a little at a time. Glad you're going to discuss this with your doctor. Don't be discouraged, hang in there. It really will get better.


Reply author: Viktor
Replied on: 09/25/2009 14:15:43
Message:

quote:
I told my Psy. doc about it and about the Geodone withdrawal and what it was doing to me with the Dyskenesia and he literally laughed it off - with his sample man for Geodone coming in as I left!


I'm not surprised. My own psych doctor (before the one I have now) told me to just quit, no problem. The doctor also was not concerned that the headaches were involved as a side effect. The doctor I have now is VERY aware of the headache syndrome, is very aware of the side effects, is aware that the after life to this drug can be up to two years! The doctor I have now has done his research!! Research that's above and beyond what the Pharm reps tell him. And there's about 8 years of patient history behind Geodon now. I was on it for six years.

He's extremely happy to see my headache, vomiting and nausea go away and told me he has two to three patients right now that are (his words) "in trouble" with Geodon.

Take it slowly. (Unless, as stated prior, there is an acute reason (like allergies) not to.)


Reply author: Diane C
Replied on: 09/25/2009 19:23:30
Message:

Hi all. I'm new on the group. I was looking up withdrawl symptoms for Geodon and here I am. I started taking this med 7 days ago. I was started at 20mg in the morning & 20mg at night. I knew with in 5 days that this med was not for me. It made be feel 'strange'. Can't describe it any other way. So, I decided not to take it any more but I know that you shouldn't stop most psych drugs cold turkey, I started to cut back two days ago. Took only 20 mg once a day for 2 days, then today I didn't take any. OMG. I have the shakes, I'm hot, then I'm cold. My heart is racing. I'm agitated and just feel like I want to climb a wall. I called my doctor & told him I did NOT want to take this med. When I finished talking to him five minutes later I felt like I was in the wrong for telling the doctor that I PAY that I wanted of this med. I felt like screaming at him that I'm bi-polar not an idiot. OK, sorry I just needed to vent. Does anyone know how long these symptoms will last? I was only on it for 7 days.

Diane Copenhaver


Reply author: Tawny
Replied on: 09/26/2009 17:00:48
Message:

I'm back and I have been completely off Geodon for three days. I had very few side effects, slight headache with occasional electrical flashes and totally screwed up sleeping. I am shocked that I had so few side effects since when I missed a dose I would go into withdrawal by the first missed dosage. I let myself sleep as much as I wanted, and I had scheduled my withdrawal date two months in advance.

This drug saved my life. It took me a long time to get the dosage right, but it was worth it. More than anything else, the excessive sleepiness was really difficult and I spent long hours sleeping on the side of I-95.

I look forward to seeing what happens next. I will be going off more meds in six weeks.

I wish all of you could have the experience I had. I hope those of you who have had such a time with withdrawal are not angry I posted here, because when I posted last I had no idea what would happen, good or bad.


Reply author: Viktor
Replied on: 09/26/2009 18:57:21
Message:

Tawny, all of us here are relieved that you are getting through the days without Geodon and didn't have a particularly hard time doing so. No one would be upset ~at all~ that you are doing great~! Your story gives so many others the hope that it won't be as bad for them so you input is extremely valuable.

BTW, as I've stated way back in this thread and repeat once in awhile, to Geodon's credit, it saved my life six years ago too.

I was getting to the end of the pile of drugs and nothing was working, that's why I tried it. But it was relatively new and the docs didn't (and still don't) know much about it (and now because the Feds are suing Pfizer, we know why). But it got me through those years and there was no problem until the crushing headache hit. I even stayed on the dosage (180 a day) for months while my physical doc tried to figure out what was wrong with me. My psych doc didn't think it was Geodon, told me Geodon didn't do what I was experiencing. So Geodon, at the time, saved me too. But when the headache hit, it was debilitating, never going away and too often bad enough to go to the ER. And now of course, 9 months after stopping the Geodon, the symptoms are finally going away.

I'm in an incredible place without the pain. I never thought I'd ever say this, but now ALL I have to deal with is the Schizophrenia! LOL, not a cakewalk, but sure as h*ll better than where I was.

My hope is that everyone who comes here for support and answers can get what they need.


Reply author: Sat80
Replied on: 09/29/2009 16:29:46
Message:

Does anybody know what actually causes the insomnia when coming off Geodon? I am coming off of it by tapering 25% at a time. It seems when I hit 80 mg the insomnia starts. Do you have any suggestions on how to get rid of the insomnia? Do you guys use sleeping pills? Or some other method?


Reply author: Viktor
Replied on: 09/30/2009 18:29:11
Message:

Insomnia is part of schizophrenia, which is my illness. It's one of the things I have to deal with. Geodon did not help me sleep, not much does. Many doctors give this med out for insomnia because it somehow works on that part of the brain that makes people sleepy, but it shouldn't be prescribed for insomnia. So going off it may trigger a hard response to not having it. I really don't know. But depending on your illness, or why you were taking the med may be one of the reasons why you have insomnia now. All I can recommend is to work with your doctor in trying to deal with it, it's all we can do.

Psychosis (being psychotic) is when someone is in state of impaired reality and can occur under a number of circumstances.

Psychosis is controlled with medications and the reason why we are able to discuss all this here with rational thought. Psychosis can occur with a number of mental illnesses, and it can also occur to people who aren't mentally ill, when under extreme duress whether it's mental duress or physical duress. Even patients who've been extremely ill and in the ICU, if kept there too long can develop psychosis.


Reply author: Sat80
Replied on: 10/08/2009 14:47:31
Message:

Is Seroquel the best answer to Geodon withdrawal? I have read many posts that Seroquel has helped people get through the long hardship.


Reply author: Viktor
Replied on: 10/09/2009 16:38:56
Message:

I've been on Seroquel since day one to try to help me sleep. I was on it in smaller doses. As I titrated down on the Geodon, the Seroquel was upped to a dose that would control the symptoms of my illness, not the symptoms of the withdrawal which are definitely different. I noticed no help from Seroquel in making the withdrawals from Geodon better. I'm still having withdrawal symptoms from the Geodon, including flu like muscle aches and I'm up to nearly the max dose of seroquel a day. But thank God the headache is gone and I'm not vomiting anymore, I can put up with this. It's all relative, isn't it? Good luck coming off Geodon and do it with your doctor.


Reply author: joba1982
Replied on: 01/11/2010 13:45:45
Message:

Hey Everyone, I thought I would write my experience with quitting Geodon. I'm now 27 and I was on Geodon for 7 years. It worked well for me for awhile and really helped me to get my life back in order. However for the last 2 years I have had liver problems that were linked to me taking the geodon. The issue that I was having was fatty liver and really high cholesterol. I am pretty active and not that heavy 6'3 235 but I was still having a ton of issues because of this. I spoke with my dr. and decided to get off the geodon. I was scared out of my mind because in the past if i had not taken it that day for some reason or another I would feel like I was dying and not in a mental way but physically. My dr. decided to decrease the doses. After awhile i was taking 2 20mg a day at different times and working toward getting off. So I spoke with my mom who is a nurse and she came up with a good idea. To push the doses back slowly to help to get to 1. first take the medicine every 12 hrs, after 3 days switch it to 13, then 3 days to 14 etc till i was only taking one 20mg a day. I decided that my quit date would be December 23 of this year because i would have off from work for xmas break. (i would suggest quitting while your not at work or in a stressful situation). needless to say I was very very scared but found comfort in reading this website. So I didn't take any on the 23 and the first 2 days I can't really keep food down. I would try to eat but would throw up most of everything i ate which wasn't too bad because it's just puking. Then i would also occasionally have headaches which i equated to being dehydrated so I drank tons of water. I also felt very very agitated by things. Like my skin would be itchy and i couldn't stop scratching and little things kept really bothering me to the point of total annoyance. However this subsided after a couple of days. Also during the beginning of quitting I would have little mood swings where at some point i felt ok enough and other times I felt really really upset. I found the best thing to combat that was to keep my mind busy with good people. As for sleeping it wasn't so great but for years i wasn't able to sleep so it seemed ok. I would just take .5 mg of ativan to help sleep and also 2 tylenol pm. I also took the ativan when needed with the anxiety and agitation. After about 4-5 days I felt pretty good and tried to keep a positive attitude. As for now I still feel pretty good and my headaches are gone for the most part. Hopefully when I got back to the dr.'s I will find out my liver issue is getting better, though i'm not sure on how long that will take.

I am writing this just to explain how it was for me. I was very very scared about quitting because I knew i was addicted to it both mentally and physically. I was very very fortunate to find this website so I knew it wasn't just me that felt this way. I made a plan that worked for me so that I could get off of it without too many issues. I pray that everyone else that will try to quit either because they need to or feel it is not working for them will have success. Thank you everyone who posted before with the great insight that helped me as well as others. Thanks


Reply author: Tawny
Replied on: 01/14/2010 16:32:36
Message:

I'm back. I haven't written since September 26th, when I said I was having no withdrawal symptoms coming off Geodon. I felt great, had actual emotions for the first time in nine years and though it would last forever.

However, I started binge eating around the first of November. I am in a weight loss program at a major hospital and my doctor said he could really see the difference in my personality since stopping the Geodon. Unfortunately, it has been recommended that I start taking it today. Has anyone ever stopped and started? Stopping wasn't hard for me but starting was hell due to the stupor it put me in. My mom is having surgery for lung cancer on Tuesday and I'm afraid I'm going to sleep through it.

Any advice?

Thanks for listening.


Reply author: zsk86
Replied on: 01/21/2010 10:27:20
Message:

Hi. My name is Zach. I'm 23 years old and I have been taking Geodon since April of 2007. I have gone from 40 mg in the morning and at night. I would fall asleep walking at work. I was then recommended to take it at night. It helped me for a few days with my racing thoughts and hallucinations. After about two years I was told to take 120 mg at bedtime. This caused me to sleep from 11:00 pm until 1:30 pm before I had to go to work. If I did not get enough sleep I would be stuck for hours with this high feeling in my head and twitchy eyes. I would be so disoriented I could not understand simple things. On a printout from the pharmacy it says a side affect is lack of response to surroundings. That's the best way to describe it. Driving is near impossible feeling like that. I couldn't tell if I as hungry or had to go to the bathroom. Fed up with this I was lowered back to 80 mg. I felt fine the first couple days. Then back to that. I spoke with my doctor and against his recommendation I am ceasing taking all medicine I was on. I have heard all the horror stories of Geodon and have a pretty good idea of how much this is going to suck. My doctor had no idea you would withdraw from it. That sickens me. I sat down with my mother (who now supports my decision after finding this site and seeing what other people go through) and we decided what we could do to help his situation. I have to take a medical leave from work just to try and withdraw from this properly since there is no medical way to do it properly. I'm on my own. I have decided to keep a log in a book for the three weeks I plan on withdrawing from 40 mg to 20 mg to nothing. I also have a video camera in which I would like to tape some of the withdrawl symptoms day to day. I plan on giving this website, a dvd of it, and my log to my psychiatrist, family doctor, and FDA. This pill should have never passed in the FDA and I hope with the examples of how bad it is will hopefully make them think about it. Although I have little faith, because money is more powerful than any of our well beings. If anyone has any other ideas I may have not thought of my email is [Sorry, we do not allow the posting of personal identifying information. Administrator] Just make sure the subject says geodon or something so I know it isn't spam. Thank you.

Zach


Reply author: daffygirl
Replied on: 01/24/2010 10:09:31
Message:

Hi zsk86... You are very wise for your age. I wish you the best in this endeavor. I agree, this horrible drug should have NEVER been on the market. I'm praying that all goes well for you. I have a 23 year old daughter and I would hope people would support her if she had this or anything like this to go through. You will get through this, it may take some time but with all the posts on this site, I hope even one of them will help you. I wish you nothing but the best, keep posting and let us know how you are doing. Take care Zach.

Laurie :-)


Reply author: amymoerbe
Replied on: 01/26/2010 09:17:30
Message:

I am being tapered off of 160 mg of geodon ( 80 mg twice daily). My psychiatrist has taken me down to 80 mg once a day and the withdrawals are horrible. so she prescribed 4mg xanex to mask some of the negative effects. However even the 4mg of xanex don't feel like their helping that much. I was wondering if klonopin might help better. My doctor said I have to be tapered off slowly but that it is a very hard drug to come off of and one should absolutely not quit cold turkey which could cause serious mania episodes and feelings of going crazy. I certainly don't want that. It has been one week since I have cut down to 80 mg day and I can't sleep at night unless I take 4 mg of xanex a night then I might get some sleep until the middle of the night. When I wake up I am anxious and nervous and overwhelmed but I have been taking this medicine for 15 months and was misdiagnosed with bipolar disorder 2 while suffering from post psrtum depression of which I still am suffereing from it even with therapy and medicine. Just the wrong medicine! The psychiatrist who I saw last week tested me for over 2 hours and said I was not bipolar but suffered from post partum depression, generalized anxiety disorder, and recurrent depressive disorder. So I haver been taking a bipolar medicine and am not bipolar. No wonder I'm not getting any better!!Pleae if anyone thinks klonopin might help temporarily instead of the xanex then I would appreciate any experienced advice. Eventually within several months I hope to be off of everything except my leapro - 40 mg.


Reply author: susanw
Replied on: 02/16/2010 10:25:02
Message:

I am so glad I found this website. I thought I was losing it. I've only taken a low dose (20 mg) of Geodon for a few weeks and I quit because the side effects were worse than any benefit. My doc gave it to me for depression. I'm also taking Lexapro. I don't know why he thought I needed Geodon but I took it on blind faith. The doc did not warn me about it. I will NEVER do that again. Although I was on a low dose, the withdrawal has been AWFUL - nausea, tremors, can't sleep, hot to cold, cold to hot in a matter of seconds, anxiety, feeling like I'm coming out of my skin - you name it, I've experienced it. I thought I would be over it by now. Then I did a search and found this site and found that my symptoms were typical.
For those of you that successfully got off this cursed drug, how long did it take to get over the withdrawal? I'm trying to work and I am so weak and I am going out of my mind. I'm wondering about taking medical leave.


Reply author: daffygirl
Replied on: 02/16/2010 11:21:07
Message:

Isn't it crazy how this drug if only taken for a short time can cause such horrific withdrawals? For me it took over a week for all the withdrawal effects to settle down, but I didn't "feel normal" for quite sometime. Sounds like you are on the right road, and glad you found this site. Good luck and remember...It will get better!!

Laurie :-)


Reply author: missLPS
Replied on: 03/09/2010 01:05:01
Message:

Hi everyone. I'm also new to the group, and I would like to share my story about being on this horrible drug. Back in December of 2009 my psychiatrist prescribed Geodon after the side effects of Invega, mainly lactation and weight gain, were getting worse. The dosage was 40mg twice a day while weening me off of Invega. This caused me to become extremely sleepy and could not function at work. Then one day at work I past out, having to go to the ER to only be told that I need to stop taking Invega and just take Geodon. Over the time period of December to now, I've had dosages of 80mg, 120mg, and up to 160mg with the symptoms of excessive sleepiness, irritability, tremors, extreme teeth grinding, headaches, worsting depression, crying every night, and suicidal thoughts. I never had these problems when I was on Invega. So yesterday, after my mom called my psychiatrist because she was deeply worried about me, switched me from Geodon to Abilify at 5mg. I'm also taking 200mg of Lamictal nightly - a decreased after taking 300mg to dissipate the effects of Geodon. Right now, I can't sleep (tried for hours), having hot and cold flashes, headaches, and feeling worst than I ever felt before. This drug has done nothing to help my symptoms of bipolar and I'm wondering if I should get tested by another psychiatrist to see if I'm really bipolar or misdiagnosed. There should be something done about doctors giving you medications and are not fully aware to the symptoms, even when you ask questions. I took some sudafed to help put me to sleep. I'm hoping that works or else I won't be able to go back to work and I'll have to buy sleeping pills.

Lauren


Reply author: kat2009
Replied on: 03/25/2010 06:49:36
Message:

Hello everyone! Just thought I would give an update incase anyone else was experiencing the same symptoms. My last post was May 2009. I'm still having symptoms of dystonia and tardive dyskensia. My psychiatrist and neurologist go back and forth w/the diagnosis. I'm currently on Valium at bedtime and Soma which is supposed to be take 3x a day but I only take it once daily. I am currently on these muscle relaxants for muscle spasms and for the pain they cause. I took Geodon for 8 months @ 60mg. I discontinued Geodon on 12/17/2008 and I am still having the painful muscle spasms. My doctors are convinced the spasms will go away. I hope they are right. My trust in doctors has greatly reduced because I was not warned about the side effects of Geodon when my dr put me on it.


Reply author: jenne06
Replied on: 04/08/2010 20:21:51
Message:

My D.r gave me Geodon for because eh believed I was bi-polar...he had me taking 80 mg twice a day (im 5.1 and at the time i weighed 125) after I almost died he knocked it down to 60 which would put me to sleep for a whole day only to wake up and take more then pass out again! When I was awake my hands and face where twitching like I had a seizure disorder, I couldn't form simple thoughts. I stopped taking it and was plunged into a nightmare, but only after another doctor realized I was NOT bi-polar and all I had was minor depression! 2 years later I still have lingering side effects, my hands twitch still so much so that sometimes I can't even hold a glass and my thought patterns are shot at times. Please becareful taking and getting off of this drug..it can screw you up!!


Reply author: Harri
Replied on: 04/18/2010 16:45:59
Message:

im 15 and ive been on geodon for almost three months now.
it is THE WORST DRUG EVER.
i absolutely hate taking it, but ive heard about the withdrawls....
hopefully im getting off it thiss week when i go to my doctor


Reply author: needless
Replied on: 04/18/2010 19:54:51
Message:

Im so freaked out reading this thread.I want to go on goedon cos the solian Im on is making me very fat.
I think I have changed my mind


Reply author: patty0405
Replied on: 04/20/2010 04:04:55
Message:

i have been taking geodon for over three years, i take 80mgs daily and now the time has come when i have to get off of it. I have terrible side effects, i have suffered facial paralysis and i have a permanent stiff arm and right leg since i have been taking it. Also i experienced involuntary body movements when i get up in the morning that i cannot control (like rocking back and forth with my body).. Geodon is been a nightmare for me and it has also affected the way I act like for example my speech is limited and i cannot remember things at all. Im afraid of the withdrawal symptoms you have described here..but i dont know which one i rather live with that or the side effects. Can anybody please share with me.. thank you.


Reply author: patty0405
Replied on: 04/20/2010 04:35:01
Message:

i can relate to you for taking geodon. I have terrible side effects as well i lost control of my facial muscles and i have experienced lock of movement of my right arm and leg...also i have uncontrollable body movements such as rocking back and forth specially when i wake up in the morning and my memory its been really bad for the last four years that i been on it , i take 80mgs of geodon a day. I really need to stop taking it but im really scared of the withdrawals symptoms. Can anyone help telling me if they have experienced anything similar to what happened to me while taking this medication. My email is pmonico0405@gmail.com. it would be greatly appreciated if you could respond. thank you


Reply author: Viktor
Replied on: 05/25/2010 13:05:39
Message:

The side effects you're describing should be discussed with your doctor asap. Tardive dyskinesia can be a side effect of any of these mental drugs. Look at Geodon as a drug that can't be tolerated forever, that at some point the patient must come off it. The only thing I can say is that everyone's experience is different, some have a bad and long withdrawal (like me) and others experience no problems. However, please talk to your doctor as soon as possible to discuss the side effects you are experiencing and if you're told to stop taking the Geodon, DO NOT STOP COLD TURKEY (I had an idiot doctor who told me to stop, after six years of use, no problem!!!). I came down very, very slowly on my own (and also got a new doctor).....

Good luck, take care, you'll be okay!

Take care


Reply author: patty0405
Replied on: 05/29/2010 08:30:06
Message:

i stopped taking geodon 4/20/10 completely and until last week i was doing perfectly fine with no withdrawal symptoms until the 10th of May when i started to feel as if i had a sinus infection so i went to the doctor and he medicated me with antibiotics and such meds to treat it only not to seem to be getting any better. I returned to the doctor with the same symptoms and he said it was my sinuses. I find it hard to believe that after all the time that passed by between the time i stopped taking it and now the withdrawals would begin now...because honestly I feel dizzy and like im gonna die from the headaches, but i do sleep. Can anyone tell me if they think i could be withdrawing after almost a month being off of it, could it start now??? thanks my email address is pmonico0405@gmail.com i can use the help...thanks to all


Reply author: patty0405
Replied on: 05/30/2010 18:33:43
Message:

If there is anyone that reads this and can help me i would really appreciate it. Seems as though i am going thru withdrawals eventhough i stopped taking geodon about three weeks ago. Suddenly i have these severe headaches and i wake up dizzy and anxious, frankly i dont understand why it took so long to hit me. Has this happened to anyone else im really scared and idk what to do. Could geodon have been stored in my brain till now? and thats why im experiencing withdrawals now?? can that be possible? please help....pmonico0405@gmail.com please write here or to my email address i will really appreciate it.
patty


Reply author: Viktor
Replied on: 05/31/2010 16:42:44
Message:

patti0405 it's hard to say why this is happening to you and unfortunately the doctors handing out Geodon don't know much about it. However, in my own research and experience, the half life (how long it stays in the body) is quite long. That means that *maybe* your body was still experiencing the Geodon even though you stopped taking it close to a month before. Now, after three or four weeks of no Geodon, your body is starting to notice that it's gone and is reacting with withdrawal symptoms.

I found out that the half life (how long it stays in the body) can be up to two years depending on dose and how long the patient takes the drug. In my case, after taking a very high dose for six years straight, I experienced severe withdrawal symptoms for a very long time.

That's my guess, and remember, it's a guess only, your best bet is still talking this over with the doctor that prescribed Geodon to you.


Reply author: Viktor
Replied on: 05/31/2010 16:54:06
Message:

BTW, sorry about all the crap at the top of my post, I've looked for a way to delete it and haven't been successful.


Reply author: patty0405
Replied on: 06/01/2010 09:48:47
Message:

Vikktor..thank you for responding to my post i really appreciate it. Unfortunately the doctors dont tell you much and for the most part they tell you not to worry that there are no withdrawals with geodon but i discovered that is not true.

I feel very dizzy and i have awful headaches, and suffer from anxiety attacks did any of this happen to you while withdrawing and does it get better or at least bearable?? if you can pls write and let me know what withdrawal symptoms u experienced so maybe i can understand what its happening to me. Please help thanks. patty


Reply author: Viktor
Replied on: 06/03/2010 18:49:37
Message:

My problems with Geodon started after 6 successful years of taking it at a very high dose (180 mg/day, 200 mg/day for a very short period). I started getting horrific headaches while on the drug. Headaches are a problem on and getting off Geodon. I started very slowly weaning down. Still had the headaches but then got body aches, chills, sweats, dizzy, extreme fatigue and eventually couldn't eat, sudden projectile vomiting, and the runs. I lived on Ensure, sports drinks and malts. For me, it lasted about a year and a half including the headache time while still on the drug. I was in and out of ER rooms, had an MRI, CAT scan and tried every migraine treatment around. Saw a neurologist. But mostly the ER, and they were suspicious I was after pain meds. Well... YES, I was, I was in extreme pain with the headache, usually a 5 out of 10 on the pain scale, sometimes as little as a 3 and as much as a 9. It never went away, all day and all night day after day. Frankly I don't know how I got through it, but one day I woke up without a headache. It came and went for awhile then went away. The throwing up slowed down and stopped, as did the rest of the symptoms.

I don't want you to be scared because I was on it a long time and at a dose most people are not taking. I think my extreme experience with it is unusual. It was an effective drug while it lasted, but I would rather have breakthroughs on other meds than to take Geodon ever again.

No, the doctors do not understand this drug. I am finally with a doctor that has done a lot of research on it and is aware of the headache syndrome. There is a class action suit against the makers of Geodon because in their hysteric glee to sell this drug to the public, they did NOT disclose all side effects or warnings to the doctors they distributed it to. One of the reasons they do not know what they need to know about this drug.

One last bit of advice to anyone reading, do not attempt to go off this (or any drug) cold turkey. Especially do not go cold turkey off this drug, there is just too much we do not know. Take your time coming down off it, give your body time to adjust to less and less and keep in mind that it stays in the body for a very long time.

Stay connected to your doctor regardless. Tell him/her about your symptoms. Good luck, you'll come through this and believe me, the sun shining on the other side of this is worth fighting for.


Reply author: tinker00
Replied on: 06/06/2010 13:51:57
Message:

Viktor, I am currently at 40 mg but wish to go lower but there is no 30 mg capsule or 10 mg capsule. The lowest capsule is 20 mg. So, what do you suggest I do? My doctor doesn't have an answer to this question.


Reply author: Viktor
Replied on: 06/06/2010 15:33:48
Message:

Your doctor should be the one to suggest what you do at this point and frankly I'm concerned that he doesn't have an answer for you. If he doesn't know, perhaps you can suggest to him that he find someone to help him! I'm not in the position to make dosage recommendations to anyone, sorry.


Reply author: patty0405
Replied on: 06/09/2010 19:55:27
Message:

i want to thank Viktor for all of his help here. And i wanna add that geodon is the worse drug ever, i wish that doctors wouldnt prescribe it because i was never told of the things that were gonna happen to me as a side effect of this medication. The only thing that im thankful for is that im off of it now eventhough im suffering the withdrawals still but i should have never taken this to begin with if i only would have know how dangerous it is.


Reply author: ColinDuffy5923
Replied on: 06/13/2010 11:41:37
Message:

Hello all,
This forum has been a real eye opener for me, as I can see that I'm definitely not the only one feeling the effects of this terrible drug. I started taking Geodon because my Bipolar disorder had gotten so bad I had to leave my wife and move in with my Mom. I'd already been on Prozac for a year and a half (which is the only drug I've ever been able to tolerate), but I felt I needed something extra to help me deal with my marital separation. At first the Geodon was great, but then the side effects started: dizziness, insomnia, indigestion, shaking limbs and finally intense feelings of mania and depression. And this was after only taking 20 mg for five days! Last night was the first night I didn't take it, and I was up all night with hallucinations. This morning I had diarrhea, nausea and could barely walk straight. I've felt a little better as the day continues, but I am still shocked at the strong reaction after taking a low dose for a short period of time. In general, I'm sick of all these medications. Paxil did nothing. Lexapro did nothing and was a complete NIGHTMARE to wean off of. Effexor was all side effect and no benefit. Same with Abilify, and now this nightmare with Geodon. Maybe my body is just sensitive, but I think these drugs are just way too powerful. Surely there must be some other way.


Reply author: chislev
Replied on: 06/14/2010 06:32:34
Message:

This information is very interesting. I have been taking Geodon for about 3 years. I have independently cut down from 100mg a day to 20 over the past year and half. I discovered that it does cause insomnia, but if you take it with a meal that is high fat, you won't have a problem with sleeping. I am very interested in getting off of the medication as I have been stable and my bipolar disorder has been in remission for over 2 years (ever since I stopped taking my anticonvulsant medication for seizures). From what I see I think it would be wise for me to purchase a milligram scale and gradually cut out the medicine so to minimize the withdrawals. When I get a chance and can find a cheap scale online I will give it a try. Some things that have helped my bipolar disorder go into remission is completely cutting caffeine and alcohol and eating a very healthy, almost raw diet. It is very helpful to have a supportive and stable family. I also started going to church which helped a lot with discipline.

Kathleen


Reply author: hercules21
Replied on: 06/17/2010 00:33:11
Message:

quote:
Originally posted by tinker00

Viktor, I am currently at 40 mg but wish to go lower but there is no 30 mg capsule or 10 mg capsule. The lowest capsule is 20 mg. So, what do you suggest I do? My doctor doesn't have an answer to this question.



Geodon comes in capsules so you can't cut them in half. What you can do is open the capsule and pour it into a glass of juice - mix thoroughly and then drink half of the glass.

I havn't tried this myself as I would be scared that the geodon would settle in the bottom of the glass.

On the odd occassion when I have wanted to take half a capsule - I have opened up the capsule and have poured out the powder into a teaspoon and then just swallowed half of it.

For the people who make one our two posts in this thread. I encourage you to check out the rest of this web site as you may find it therapeutic to tell your personal story in other threads as well.

Either way thanks for posting your stories here and helping others.


Reply author: chislev
Replied on: 06/26/2010 12:15:47
Message:

You should take the medicine with milk or yogurt instead of juice. Juice will not aid in the absorption.

Kathleen


Reply author: BEN_N
Replied on: 07/09/2010 19:23:46
Message:

Thank you all for your input on Geodon. I took it one time, one pill, and almost had to dial 911. Skin crawling, panic attack..

I was trying to be supportive of my girl friend when I heard she was taking it, but after three months, she developed ALL, almost word for word the symptoms you all described. She has been looking up ways to kill herself for a full month, and has come close to doing it. That stuff((*&%$#) is nasty. I don't know who could tolerate it?

I think it should be discontinued, except for the few who are doing better on it. Of course, I think this country should legalize all drugs, and let us medicate the way our ancestors did for years..

People kill themselves with alcohol and tobacco everyday, why not opiates or cocaine? If your going to be stupid anyways, why not let them get it over with? Just more B.S. in our 'free' countries book of broken rules..

Sorry for the attitude, Im just outraged that my girlfriend almost dies because some doctor has so much faith in this lab made garbage, that he actually thought she needed more.

If I could do opiates legally, I could throw all my psych meds away, and work hard and be happy, and take care of my family. But I had to 'clean' it up, for certain legal matters I'm going through, and it's killing me.

What ever happened to 'ALL NATURAL'???????

Peace


Reply author: turion
Replied on: 07/31/2010 20:09:09
Message:

Hello everybody. I was on Geodon for about 2 months @ 160mgs (80 morning, 80 night). My doctor took me off the med cold turkey. When on the Geodon I would shake like crazy and my ears started to ring and pop very loud and all day long. This medicine should be banned. After coming off the medicine my side effects got worse. I completely stopped sleeping (can't sleep). I've been off Geodon for about two months and get this. There was no sleep for the first month and after that I bought OTC sleeping pills and that allows me to sleep for about half to an hour a night and sometimes still no sleep at all. It's like I am constantly awake and never get tired. Thanks Geodon. The doctor tried putting me on Seroquil XR 150mgs, tried Trazadone 100mgs and those had no effect whatsoever for sleep. Before Geodon I slept 8-10hrs a day. Another symptom I had was super sensitive to sound like others. The ear popping was just loud and annoying and I couldn't be around anybody without shaking intensely. Please don't take Geodon it's just not good for you. I will keep you guys posted on where my sleep goes. I wonder how long other people who took Geodon have not slept?


Reply author: jwd1980
Replied on: 09/29/2010 09:30:38
Message:

I was recently diagnosed with Bi Polar disorder and my doctor prescribed Geodon. I was started out on 60mg once daily and after a week I was told to go to twice daily. This has been very difficult for my family and I because this medication goes in like wine and comes out like sewage. I have had such a severe reaction to this medication that my doctor has had to lower the dosage four times. He (my doctor) told me that because of my weight I could start out on a high dose but this was a very bad idea. Can anyone tell me if there is ever any relief from the lack of energy? I am afraid I will lose my job because I cannot function.


Reply author: hercules21
Replied on: 10/02/2010 19:46:18
Message:

I have posted in this thread about 5 or 6 times. The first time was feb of last year. My story is that I reduced my dose from 80mgs at night to 40mgs adn that was enough to fry my brain and make it so that I couldn't sleep some nights. Slowly but surely my sleep has been getting better. For the past three weeks I have slept every night and within 45 minutes of going to bed. That is a record for me.

I am sad that it has taken 18 months to show solid improvement. I am also trying to not get my hopes up because I could easily slip back to not sleeping. Would feel better if it was 6 months in a row of good sleep instead of 3 weeks.

What helped me with my sleep was Olanzapine. It seemed to quiet down my thoughts. I took just 1.25mgs as required at night time. It is non addictive and doesn't stop working like sleeping pills do.

Strangely each time I took Olanzapine it seemed to heal the damage that the Geodon had done somewhat. And I saw improvements to my sleep overall after taking it.

You may like to try it. If you can't sleep at all I don't think it will help. But if you are getting 5 hours a night it might help you get eight hours.






"Mrs Morel always said the after-life would hold nothing in store for her husband: he rose from the lower world into purgatory, when he came home from pit, and passed into heaven in the Palmerston Arms.".


Reply author: kaycejo
Replied on: 10/04/2010 16:41:39
Message:

I have been on Geodon for two years, and I have to disagree with most of the posts on this site. It's proven to me that people only go on the internet to complain and rant and never to produce anything helpful or insightful.

Other than the withdrawal symptoms I am having from switching my 160mg dose of Geodon from being taken at half twice a day to all be taken at one time, Geodon has worked very well for me. I have had a few complaints, sometimes I hold my face in weird positions or move my mouth unknowingly, and sometimes I get this very foggy feeling. It made me completely pass out several times the first week that I took it, but once I leveled out and started taking Provigil and the sleepiness went away. I now take Adderall instead of Provigil which seems to work just as well.

This medicine is not perfect, we know that, nothing is perfect. But I'm in a whole lot better place now being on it than I was off of it. I have Borderline Personality Disorder and I would generally have my mood swing about three times a day. Since I have started taking the Geodon, although it makes it a little harder to learn, I am making okay grades in college and have held a full-time job since I've been on the Geodon.

If you are being prescribed Geodon for the first time--trust your doctor. There's a reason he went to school for ten years and you didn't. I know that drug companies are profiting from us and blah blah blah, but that doesn't matter.

Just know that coming off of it or switching the doses to less or around sucks, but it's manageable. I'm at a point in my life (about to be 21!) where I can deal with an incredible amount of annoyances before I really start to consider that there might be a problem.

Right now my head aches and I can feel all the food in my stomache, but if it's going to end up making my life better in the end then it is ALL worth it.

I'm not planning on having any kids for fear of passing my disorder down, so I don't have to worry about getting pregnant and giving my baby a birth defect. If this is an issue, I would not take it because they don't know enough about the drug yet to even know what it would cause in the fetus.

So all in all, Geodon has worked well for me paired with Zoloft and Adderall/Provigil (stopped taking the Provigil because you can't take birth control with it, it simply doesn't work) and it has made my life worth living. I am scared for when the time comes that I will need to come off of it, but that's another problem for another day. And that's what they make mental hospitals for.

My doctor originally prescribed me Geodon because I was cutting myself to relieve my own emotional stress, I do not experience the extreme highs and lows that I used to. I used to think that I had lost all my joy, but I realized that was just my mania. My mom always says, "as much as you would like to live on Planet Kayce, it's not practical", and as always, she is completely right.

So yeah, if you're taking it for the first time, take it at night because it will make you very sleepy and probably take a few days off of work. Then I would suggest to get started on something to keep you awake--I had to push my doctor for this, but it was worth it. I just take an Adderall (about to switch to time-released) in the morning and I'm all set for the day. Sometimes I need a nap, but hey, who doesn't?

I wouldn't say that my case is special, but it is very well-managed. It is good to do research, but just remember what I said in the very beginning. People only come onto the internet because nobody else will listen to them complain.

Thanks for reading! Let me know if it helps! Where my BPD girls and boys at?


Reply author: oblivionxxz
Replied on: 10/14/2010 06:46:16
Message:

Geodon is a strong antiphsycotic pill and i know some of the withdrawl effects from cold turkey are major deppression, you can possibly suffer of insomnia and more. Its best to slowly stop it, geodon is a slight addictive pill on the other hand because of the high that you get from it. Talk to your phsychiatrist and get off. unless you think its helping you. Whatever you mind tells you i guess


Reply author: Viktor
Replied on: 10/14/2010 14:56:46
Message:

Geodon is a relatively new product on the psych market (2002 or so?).

The new products are introduced to the medical community by the drug manufacturers and their representatives who are here to promote it's benefits, show the doctors the company's test results, their blind side studies, and whatever else they can to give that product a good promotion. These are sales people doing their job after the product is developed, researched and studied.

Samples are left with the doctor, and the doctors do their own research. Unfortunately there wasn't much on this product in the beginning at all. I should know, I was put on it about 8 years ago now and was on it continuously for 6 years at 160, 180 and even up to 200 mg a day. But there is information out there now, good and bad, thanks to people like us who have actually been using this drug over many years.

You will find in this thread many mention of the fact that most of us believe that there ARE people that this drug is well suited.

However, there are many, many side effects, and many of us have experienced a ton of them (while taking the drug and even during its afterlife) and some of us don't think the trade off is worth it. But that's for you to decide. But without an Internet thread to go to for information, and without the medical community really understanding what's going on with these drugs, where else would you suggest we go to disseminate information?

One more thing. Be very careful of muscle stiffness, uncontrolled facial or limb movements (tics), and continual headaches. Although some of these side effects can be part of the side effects of the powerful drugs we are given, they can also be a sign of tardive dyskneia. Also, be aware that some of these drugs can contribute to Parkinson's Effect, which is also serious and should be seen by a doctor immediately.

To blindly take a medication from a doctor simply because he's had ten years of education is foolish. Always research your medications. Always research your doctors. Always ask questions, dig for answers, talk to people and yes, even complain in a chatroom on line. We have that right as a consumer and should never lose sight of it. Our health depends on it.


Reply author: kaycejo
Replied on: 10/17/2010 10:39:22
Message:

My mother is an internet nut and did all the research you possibly can for a drug that barely anyone has ever heard about. I understand that doctors don't have all the information on a drug, but what do you expect them to do when you're curled up in a corner with a shaved head and razor blade slices down your arm? Tell you it will get better naturally?

I understand that trusting your doctors in some cases could be perceived as naive, but my doctor kept a close watch on me for quite some time before she prescribed me this drug.

Don't tell me I don't know about idiot doctors, my grandmother went to the doctor for chronic tiredness and stomach problems over and over and wasn't diagnosed with colon cancer until she was in stage five. My mother did tons of research and put my grandmother on this diet and actually got rid of my grandmother's cancer cells. She died from other complications, but that's a different story.

I suppose it's not only my doctors that I trust, but my mother also. I know about tardive dyskinesia, and maybe if you did as well you could bother to spell it correctly. My therapist also checks with me every two weeks to make sure I'm not having any muscle problems or that my arms aren't acting funny like they do with other complications of taking Geodon.

My point is that these people who are posting haven't taken the drug long enough to reap the full benefits of taking it. I understand that the drug has been prescribed willy nilly by some doctors, but what other way do you expect them to find out if the drug works for you?

With mental problems there is always an ebb and flow of the way you feel without the medicine and the way you feel with the medicine as well as dealing with life's problems that pop up here and there. All I am saying is that this medicine works for me, I know the risks, and I'm not saying it's perfect. But it makes my own problems manageable enough to deal with.

People who have written in all caps or misspelling words on this forum, I do not trust. These are probably teenagers begging their parents for attention and the doctor prescribes the medicine simply to get the parents to shut up and then the kids don't take it like they're supposed to and screw it all up. I believe this medicine should only be prescribed if a person is smart enough to know the risks, as well as the doctor.


Reply author: Viktor
Replied on: 10/19/2010 19:01:03
Message:

Look. By your own admission you are very young. You say that this drug works for you. That's great, we all want meds that will work. But do NOT put down those that frequent forums trying to find information. Some of us have spent our entire lives living this life. I'm in my 50's. I have used Geodon for SIX FULL YEARS. Plenty of time to make my own assessment. Try not make broad general sweeping statements about sites and the people who post in them. You'll find that absolutes are never absolute.

You state: I believe this medicine should only be prescribed if a person is smart enough to know the risks, as well as the doctor.

And yet in the post prior to your last one, you say that people should just trust the doctor dispensing the meds, after all he's the one with ten years of school.

That's why I spoke up. That's why this site is here. That's why we all try to participate so we can give our experiences and try to help.

This medication is working for you and that's a joyful thing, something for us all to celebrate!

It worked for me very well until the fifth year and I got debilitating headaches. After two years of tests, doctor's appointments, doctor's, psych and neurosurgeons conferring, CAT and MRIs, you name the test and I had it, it was concluded that Geodon was the culprit. Unrelenting headaches are the one thing that Geodon has as a constant side effect and they can start at any time. And the HALF LIFE of Geodon can last up to TWO YEARS. That means for nearly two years after I stopped taking Geodon, I STILL had the headaches. Geodon worked brilliantly for me.... and then it didn't.

So instead of complaining about some of the posters here, what they say and how they type, or the pitfalls of Internet chatting, why not just simply share your Geodon story? We're all pulling for you and we want you to feel well.

But a quick question: If Geodon turns on you one day, would you have the courage to come back here and share that story as well?


Reply author: readytofacethemirror
Replied on: 10/28/2010 09:21:55
Message:

I'm going to start my withdrawal process from Geodon after the completely hellish experience I had.

I have been unofficially diagnosed with Bipolar Disorder, I believe type II, rapid cycling. But, part of me doesn't believe it. Part of me believes that I just went through a stressful period, had a breakdown, bought into a diagnosis and tried to fit it to somehow find some meaning. I was hospitalized (willingly, I checked myself in) after possibly having a bad reaction to Lamictal.

10 weeks ago my doctor put me on 20 mg of Geodon to be taken at night. I took it pretty regularly, missed a dose here or there, but about two weeks ago, I had some sort of break. I went to see my doctor where he made me take 20 mg of Geodon. That night I was supposed to take forty. By mistake (thinking that the two sample pill packet TOTALED 40 mg, I took both pills. Which means that within about 24 hours I was working on between 100 - 120 mg of Geodon (if I count the night before everything's dose). Then I realized what I did, didn't feel like it was that big of a deal, so I continued to take just forty at night. I believe that I have been going through withdrawal from my semi-overdose. Panic, fear, spontaneous crying, feeling like I can't feel anything, nausea, loss of appetite, I've experience all of this. At first I thought it was my fault. That I was going crazy. Now, I realize it's the drugs, after reading all the things that you people have said.

I don't buy into my diagnosis any more. I think I moved to college and had a stressful shock. When I look back on things, they weren't that bad. I don't know why I let them put me on these drugs, but I'm going to gradually ween myself off of them.

I've decided starting today I'm going to take 20 mg at night for a week. Then lower it 10 for two weeks, and then 10 every other day for two weeks, and then none.

The last two weeks have been hellish, if only I hadn't accidentally taken so much I feel like I would be fine.


Reply author: talvi
Replied on: 11/08/2010 08:25:58
Message:

Hello everyone!

First of all I want to thank everyone who contributed to this thread. During the terrible ordeal of my Zeldox withdrawal, this thread was a major consolation for me. It showed me I wasn't alone.

I'd now like to share my experience to keep this thread going...

A little background:

I was diagnosed with bipolar 7-8 months ago and went on Lamictal almost immmediately. I titrated it up to 250 mg/d. It didn't relieve all of my depression symptoms, so my doctor prescribed Cipralex (escitalopram) to me, which I then started. After a couple of weeks things took a turn for the worse as Cipralex was overly stimulating for me; I suffered from insomnia and hypomanic symptoms, and started having severe mood swings. I was put into a hospital and discontinued Cipralex almost immediately. I was also put on Zeldox, which is the same as Geodon.

I started Zx at 20 mg taken twice daily. Things went pretty well at the beginning - it killed my depression-, but then I started suffering from insomnia and agitation, and akathisia-like symptoms. My doctor told me it was probably temporary and the side effects would go away after we titrated the dose up. So I went up to 40 mg taken twice a day and suffered the most severe panic attacks, tiredness and akathisia I've ever had in my life. Very quickly we decided to drop the dose back down to 40 mg/d (20 + 20), and we now come to the point more related to this topic - the withdrawal process.

Discontinuing Zeldox:

So I dropped the dose to 40 mg/d and despite being only a couple of days at 80 mg, I suffered withdrawal effects such as dizziness, "brain shivers", slight nausea and anxiety. It wasn't too bad and the symptoms relieved after a couple of days at 40 mg. I kept taking 40 mg for a couple of days more. At that point me and my doctor had decided to end Zx altogether, but I had read about how difficult the withdrawal process can be, wanted to discontinue the drug gradually. I have to say my doctor was accommodating but offered little help, just basically said it was ok to cut the capsules in half, which I did.

I started taking 20 mg/d (10 + 10) and after only one day started suffering from mood swings, anxiety and weepiness. Strangely enough I didn't get brain shivers or dizziness at that point. I held that dose for a couple of days, until I became frustrated with the withdrawal symptoms and said "the hell with it" and quit taking Zx altogether.

I took one last 10 mg dose one Thursday morning and after 5 hours started feeling very agitated, anxious and began shaking. It felt a bit like being hangover. That lasted for 2 hours. THEN the **** really hit the fan:

I became extremely emotional, depressed and anxious at the same time. I had never felt as bad at point as I did. The worst depression and despair in my life, and it lasted for a couple of hours. After that, things kept going worse and the withdrawal symptoms changed from psychological to sheer physical terror.

1st day: severe depression, anxiety, tearfulness - had to go to my parents (where I stayed the whole time). I thought I was going to die.
2nd day: uncontrollable shakes, feeling cold all the time, the worst anxiety of my life - I was pacing back and forth counting seconds praying the feeling would end, didn't get much sleep, I was crying hysterically, body aches like hell. I thought I was dying.
3rd day: pretty much the same as 2nd, only more physical pain and it was followed by the worst night of my life. I had eaten quite a bit of ibuprofein because of body aches. My body couldn't take it. I began shaking uncontrollably and sweating profusely, I sweat a gallon atleast and my whole bed, the sheets, everything were soaking wet. I was hypothermic and couldn't stop sweating. I felt hot and cold at the same time. I was almost sure I would die. The shakes were otherworldy. Needless to say I didn't sleep much.
4th day: Things felt slightly better. I went for a walk. Bad mistake. I walked half a mile and felt I was going to die. My blood sugar dropped really low. I had to drink lemonade and rest before I could walk back home. It was shocking how physically weak I was. I had to keep eating every 2 hours despite having no appetite whatsoever.
5th day: I felt much better than on previous days, but still very weak and problems with blood sugar and aches. I had a headache and took one pill of ibuprofein. Bad mistake. The sweats and shakes came back, although less severe than before.
End of 1st week: Kept feeling better and better physically, emotionally a wreck, crying every day, bad blood sugar issues

It is now almost 4 weeks since I went off Zeldox. The first week was the worst time in my life easily. It was sheer terror. I thought I was going to die and that it would never end. My doctor couldn't help at all. She just said it would pass and that she was surprised how bad withdrawal symptoms I got. Apparently she had never seen anything like it before with other patients discontinuing Zx (although they might have been on other antipsychotics). During this time things have gradually improved, and physically now I feel almost normal. Psychologically however, I am still far from ok. I've stayed with my parents this whole time, and every day I've cried. I get anxiety attacks which resemble post traumatic stress disorder. Apparently I am now traumatized by the horrific failure of my treatment. Some of it is rebound of my basic illness though.

I am getting better, although the psychological recovery seems to take a long time. I have good and bad days, and during days good and bad moments. I try to cope and identify the triggers that trigger my anxiety attacks and depression. I notice talking with my parents really helps a lot. I get these weird physical symptoms like aches on different parts of my body and wonder what is going on. Then I get anxious. Then I began crying. Then I talk with my mom and dad and the awful feeling goes away.

I'm sorry this is such a long post. I just wanted to share my experience. I do have some tips for those who know they're going to discontinue Geodon/Zx:

-Cancel all appointments for the first week, take a sick leave etc
-Go to your family if possible or atleast have people you can call to help you
-Don't go cold turkey from a high dose, discontinue gradually
-Stock up on food, atleast 5 days worth of easily digestible food (you won't have any appetite)
-You can use painkillers, but don't od on them like I did
-Benzos help a lot apparently. I didn't take them at all though, because I was stubborn.
-Rent videos, have internet on hand, listen to radio etc whatever to pass time. If you're like me, you probably won't be able to read anything.
-DRINK a LOT of water and make sure you get enough sodium, potassium, magnesium etc. Mineral water is good. Eat chips or anything salty to replace your body's electrolytes after sweating
-If sweating profusely and shaking at the same time, measure temperature to know whether hypothermia or fever is the problem
-Warm showers helped me
-Don't be afraid of asking help
-It might take weeks, even months to get back to normal, but the first 4-5 days are by far the worst. I'd say after 4th day you won't get any worse. At points I almost went back on Zx, but now I'm glad I didn't.

Good luck everyone.


Reply author: wilsondm83
Replied on: 02/25/2011 00:41:14
Message:

I had a allergic reaction to this medication I was forced to drop it cold turkey I was only on 20mg, twice a day. I was only on it for 17 days. I now currently am going through withdrawl from this drug. I done a lot of illegal drugs in my past. THIS DRUGS WITHDRAW is worse than heroin, coke, crack, and crystal meth. DO NOT Take this drug. ANd if your going to stop it be warned. Even though the side effects I am facing only happen in 26% of ppl with bipolar. I may current suffer tremors..aka shakes...like someone with turrets for the rest of my life. be warned


Reply author: JuniorTerran2
Replied on: 03/09/2011 13:19:21
Message:

Hi i am JuniorTerran2, i have found there is a way Off of klonopin, and any Anti-Depressant specifically, Zoloft, i have yet to find a sufficient way off of Geodon, and i am here for advice, and the wisdom of long term users, and how they got off of it. Thank you. for all of you Klonopin users out there, or maybe even xanax, you can Taper yourself off of the pill, u dont need to take it everyday like i did, i found a way off, and now im tackling the subject of Geodon. Bare with me.

yo


Reply author: chelle25
Replied on: 03/12/2011 16:41:33
Message:

Hello everyone, been a long time since I have posted here. I am still trying to wean off Geodon. Currently taking 20mg twice a day and I take them both in the evening. Prior to this I was at 80mg a day so I was able to wean myself down to 40 a day. It was not easy either!! Everytime I try to wean down to just taking 20 mg a day the withdrawl seems to get stronger. Last time I did it for 6 days. The first 3 days I felt great but then I started getting excruciating headaches and I even lost track of time while at work. Thankfully no one noticed. At one point my boss was sitting at my desk and talking to me and I could not make out a word he was saying. I just kept nodding as if I did. I did not want to wait to see what else was going to happen at that point so I started taking the other dose again. Defeated!!! Thats how I feel! I am at my wits end with this!! I think I may call Pzitzer and see if their pharmacist can help me with suggestions. I feel as if I just would have rode it out the withdrawls may have just went away eventually but I have to go to work and I have to be able to function at work and that is what is making this weaning down so difficult. If I did not have to go to work I could maybe do this!! So in the meantime here I sit still on 20 mg twice a day and gaining weight from the med. So far I have gained 40 pounds on Geodon and that is depressing!!! I think Pzitzer needs to step up to the plate and start offering 10mg and 5 mg pills!! Really!! I am going to call them and try to get someone in the top and tell them what they are doing to people and how they need to fix it!!!! Sorry Venting!!


Reply author: chelle25
Replied on: 03/12/2011 17:44:41
Message:

I was doing a little research and found this. I thought may be helpful to some of us:





From Medscape Nurses > Ask the Experts > Primary Care for Advanced Practice Nurses



Posted: 04/18/2006

MEDSCAPE

Question

I have encountered severe withdrawal effects when discontinuing ziprasidone HCI (Geodon), even with a very slow taper of the drug. I'm wondering whether others have seen this in their patients.
Response from Wendy L. Wright, MS, RN, ARNP, FNP, FAANP


Wendy L. Wright, MS, RN, ARNP, FNP, FAANP
Adjunct Faculty, University of Wyoming, Fay W. Whitney School of Nursing, Laramie, Wyoming; Family Nurse Practitioner, Merrimack Village Family Practice, Merrimack, New Hampshire

Titrating and discontinuing antipsychotics and selective serotonin reuptake inhibitors (SSRIs) can pose significant challenges. Patients who abruptly discontinue one of these medications can suffer serious adverse events such as dizziness, lightheadedness, nausea, tremors, insomnia, sedation, electric shock-like pains, and anxiety.[1] Clinicians are frequently reminded that a slow taper is the best prevention for these symptoms, but is that always true?

The literature abounds with references to a phenomenon known as "SSRI discontinuation syndrome." Less frequently reported, particularly with newer antipsychotics such as ziprasidone HCI, is a similar effect known as "antipsychotic discontinuation syndrome." While the actual incidence of antipsychotic discontinuation syndrome is unknown, it is a documented phenomenon, even in patients who have been weaned from their medication slowly. As one patient reports, "I have had unbearable physical responses to tapering Geodon -- even very, very slowly."[2]

Antipsychotics can be associated with untoward effects upon withdrawal; the more abrupt the withdrawal, the more profound the symptoms. Even with slow tapering, patients may experience symptoms such as an anticholinergic withdrawal reaction, which can last for days after discontinuation. In addition, withdrawal dyskinesia may occur for 2-4 weeks and rebound dystonia for several days upon discontinuation of the drug.[3]

Numerous theories have been proposed to explain these symptoms. Three neurotransmitters might play a role: dopamine, serotonin, and histamine.[4] Dopamine, serotonin, and histamine receptors are found in the medulla of the brain, the area that, when stimulated, triggers nausea and vomiting.[4] In addition, dopamine and serotonin also affect the autonomic control system within the brainstem.[4] When neurotransmitters are withdrawn from these regions, a discontinuation syndrome results in autonomic dysfunction with nausea, vomiting, and a variety of other troubling symptoms.

Strategies to prevent antipsychotic discontinuation syndrome include:

* When planning to introduce a new antipsychotic, try titrating up the new agent while slowly titrating down the older agent, provided that both medications may be safely used together. Unfortunately, very few guidelines exist to aid the clinician with this strategy, particularly with regard to the newer antipsychotics[4];
* If complete discontinuation of an antipsychotic is indicated, taper the medication over 4-8 weeks;
* If symptoms develop, even during a slow taper, temporarily increase the dose slightly temporarily to reduce symptoms. Once the patient is stable and the symptoms have abated, the taper may be resumed; and
* When medication discontinuation is essential and symptoms occur despite a slow taper, prescribe an additional medication in the interim. For instance, anticholinergics, beta-blockers, prochlorperazine (Compazine), or benzodiazepines have all been used for this purpose.[4]

Antipsychotic discontinuation syndrome does occur in patients even with a slow medication taper. Numerous prevention strategies have been proposed; regardless of strategy, the patient needs to be reassured and supported during this very difficult period.[3]


Reply author: daffygirl
Replied on: 03/23/2011 14:04:51
Message:

Yes but does one want to increase Geodon?? Not me! Stopping that crap was enough for me.

Laurie :-)


Reply author: chelle25
Replied on: 03/26/2011 16:04:44
Message:

Laurie, that article is not suggesting to take more geodon. It is talking about the effects of getting off of antiphycotics.


Reply author: leftysteph
Replied on: 04/01/2011 03:03:03
Message:

In response to Geodon. I started Geodon when in the hospital partially due to my doctor taking me completely of Seroquol and starting me on a large dose of Geodon. While in the hospital, I was put on 60 mg in the morning and 60 mg at night and hydrozine for anxiety. This was at the beginning of March. After getting out of the hospital, I found that the hydrozine made me lethargic and I couldn't drive anywhere so my doctor switched me to xanyx. During this transition, I found I had severe anxiety so my doctor moved me to 40 mg in the morning and 40 mg at night. Yesterday, I called because I am still having anxiety problems even though I take a xanyx before each dose. I am now being moved to 20 mg of Geodon in the morning and 20 mg of Geodon in the evening. Is this too little of amount or too quick of a move from 60mg at the beginning of the month to now 20 mg? I also have weird sleeping hours. I go to bed at 8:30 and get up at 4:30 a.m.. Should I try taking my night dose later? I currently take it at 6:00 when I eat?


Reply author: chelle25
Replied on: 04/01/2011 16:25:54
Message:

The big drop in milligrams MAY give you withdrawl syndrome but everybody's body is different you may be just fine with the drop in dosage. Work with your doctor if you get withdrawl symptoms they can always up the dosage and drop you a little slower. The medication does work better if you eat with it per my doctor. As for the times you take it, you will have to find what works best for you and your situation. As in my case I took 20mg twice a day but I had to take them both at night or I could not function at work cause it makes me tired. But that's what worked for me. You will have to do whats best for you and your situation, again work with your doctor on that. Currently I am trying to get off of this medication with my doctor's approval and I get severe withdrawl symptoms each time I decrease the dosage. Right now I am at 30 milligrams a day taken at night. I literally have to cut the one 20 milligram capsule and take half of the powder to equal 10 milligrams and then take a 20. I then put it in a glass of water and drink it. As in the past I was trying to drop 20 mg at a time and the withdrawl was just horrible. I actually started at 80 mg a day 3 years ago and it has taken me this long to get to 30.


Reply author: chelle25
Replied on: 04/03/2011 18:01:15
Message:

I'm moving to 20 mg a day starting tomorrow.....Wish me luck!!


Reply author: chelle25
Replied on: 04/09/2011 14:11:38
Message:

Day 6 at 20 mg. It's been a rough week had mini anxiety attacks all week and I noticed coffee would trigger them off. I had to call the doctor, he prescribed me Nuerontin 100mg capsules and that I could take as needed for anxiety. The Nuerontin did the trick!!! I took one every night before bed that seemed to level me out. I decided to not take a Nuerontin last night to see how I'd do and I had a good day, felt great. So happy to finally be down to 20mg. I think I'll stay here for a while at the 20 to give myself a mental break from withdrawl. When I feel it's time and that I can handle it I will drop the last 20mg. Just wanted to update in case this info can help someone else.


Reply author: chelle25
Replied on: 04/25/2011 17:37:29
Message:

Just so you all know, My taper did not go well at all. I had anxiety attacks all day long on and off and the nuerontin was becoming too sedating for me. The doc and I decided to go back to my 40mg a day regimne. In that 3 weeks I did manage to lose 11 pounds. And when I started taking my other dose again it hit me like a truck!!! I literally cried because I could not get down to 20 and stay there. It took a good week to get back to normal again. I tried!


Reply author: MAY321
Replied on: 05/16/2011 18:09:33
Message:

I was on 120 mg (2 x 60 mg) of Geodon for a year and in that time I went from 105 lbs to 85 lbs! I also had mouth movements so I tapered down to 60 mgs on my own. Now I am back up to 105. I was on Zyprexa (10 mgs) before Geodon but I went up to 120 lbs and would rather be paranoid and normal weight than fat and not paranoid!

Anyways in that time I tapered down to 60 mgs, I tried to go down to 40 mgs, but I would wake up at 4:30AM or only get 4 hours of sleep.

Since Geodon is expensive and I am unemployed, I signed up for the Pfizer indigent program and get 120 mgs (even though I only take 60). I just read the patent is going off in March 2012 and I have enough medication to last until then. So I really don't need to taper off.

But I have become addicted to Geodon to go to sleep. If I come home late one night and take the medication at midnight, it takes me 2-3 hrs to get to sleep. I always take the medication around 6-7pm so I can sleep around 10-11pm. Anyways, since I am not working full-time I might try to go off the Geodon in a few weeks. I haven't been feeling paranoid for 3 years now and my one hospitalization was in 2007!

Anyways, if anyone can give me tips on how to taper down, that would be great.

I only have 20 mg tablets (like about 25 of those). I was thinking I can take 40 mgs for 10 days and then 20 mgs for 10 days and then alternate taking 20 mg one night and none the following night. I can afford some insomnia now because I am not working full-time anymore.

Let me know what others who have successfully weaned themselves off.

I was on 100 mgs of Zoloft and I was able to stop taking it immediately and had no signs of withdrawals.


Reply author: chislev
Replied on: 05/20/2011 05:38:42
Message:

It is very hard for me to see all of the people here suffering. I posted a long time ago here to say I would try to taper off Geodon. Well, I have done it successfully. It took me more than a year to go from 20mg to ZERO. When I decided to completely come off I had just had a baby and was sleep deprived anyways. I had no problems whatsoever. Since January of 2011 I have been completely medication free. My psychiatrist has posted on my health record (I have Kaiser so I can read it online) that my bipolar disorder is in remission. I am so sorry for all of you still suffering. I am sorry that I cannot post advice since I am not a physician. I can tell you that you must think about and meditate on the quote by Hippocrates, "Let thy food be thy medicine and thy medicine thy food".

I have studied extensively on natural "cures" for mood disorders. What I have found is astounding. There are books you can read, such as, "Never be Sick Again", by Raymond Francis; "The Sugar Blues", by William F. Duffy (it's old, but still applies to us today); and check out Dr. Mercola's website at www.mercola.com.

YOU are your best physician! You must learn what your body is trying to tell you. If you have anxiety after drinking coffee- you must not consume caffeine. See a nutritionist. Record what you consume everyday, including meds, alcohol, tobacco, etc. Do you eat breakfast? Do you eat 3 meals a day? Do you eat lots of processed or fast food? These things can play a significant role in how you feel.

I wish peace and happiness for all of you- WITHOUT MEDICATIONS.

Kathleen


Reply author: chelle25
Replied on: 05/21/2011 16:03:17
Message:



Kathleen,

It's not that easy to come off of Geodon. I still struggle to this day to have to take this poision!







Reply author: PraiseKidz
Replied on: 06/03/2011 17:37:50
Message:

Super grateful to find this thread.

Was initially prescribed 160mg of Geodon back in 2004 and continued with that dosage until Sep/Oct of last year. Managed to decrease to 80mg a day on my own, but it was pure hell. However, with doctor's supervision starting late Nov 2010, I am have now been officially weaned off it as of 3 weeks ago (mid May 2011). Not completely hellish, but very difficult at that.

My biggest concern with the Geodon was that I didn't like how dependent I was on it. If I missed a dose, just ONE dose, I could not sleep. At all. As in, I'll be awake 36hrs or more, completely exhausted, unable to sleep. Other severe side effects include electrical-like impulses shooting from my brain throughout my body, excessive sweating, horrific hot and cold flashes, being so sick to my stomach that I could barely walk, dizziness/light-headedness, vertigo, and sluggish speech.

A slow wean wasn't so bad until I went from 40mg to 20mg. That took about 6-8 weeks for me to feel normal again. Having now gone from 20mg to nothing, I'm encountering many of the same problems. Sleep in now a irregular, but it isn't as excessive as before. I do get a lot of headaches and often have vertigo and a general light headed feeling (this is being off the drug completely for 3 weeks). That being said, though, mentally and emotionally I feel better than I have in years.

One thing that has been a HUGE help to me has been changing my diet. Since I have removed a powerful chemical against my brain, I've been trying to "feed" my brain more to help it "heal". Certain food combinations, particularly if I eat when I wake up first thing in the morning, make a HUGE different in clarity of thought and the overall feeling of well being.

Been very thankful to hear all these stories - it reminds me that I'm not alone and that my symptoms are (unfortunately) very typical.


Reply author: me_Kimmie
Replied on: 06/11/2011 20:06:50
Message:

I got off Geodon a couple of years ago after being on it for a year or so. The worst was uncontrollable muscle shaking but after a couple of days it went away. It was good that I had a doctor to call during hard times. I wouldn't recommend getting off Geodon without doctor's supervision.
The other thing is that once you're off Geodon or maybe even before if your doctor recommends it, it's good to be on anti-psychotic medication. It takes a very long time to find a right medication (it took 22 years in my case) but it is well worth it. There are better medications than Geodon out there. The tendency usually is to get off the medication and not take anything else which leads to many problems and might also be very dangerous.
Wishing you success with your medications and with your health!


Reply author: chelle25
Replied on: 06/17/2011 17:06:20
Message:

Me Kimmie, what you said makes alot of sense about the tendency is to get off the medication and take nothing else. That is what I was trying to do. I wanted to be just like I was before I ever had a breakdown. When I was weaning down I have to admit that I was getting paranoid thoughts again and Anxiety from hell. I felt like I was going to lose control and go crazy again. That is what prompted me to just go back onto my last dose that worked for me. I have came to the conclusion that I need to be on medication and that Geodon was working for me.

They say that time changes things, but you actually have to change them yourself.




Reply author: Aeon01
Replied on: 07/02/2011 23:35:03
Message:

My experiences with Zeldox (AKA Geodon, actual drug name ziprasidone).

I have a condition that requires me to take anti-psychotics. One of the drugs recommended by my psychiatrist was zeldox.

When I researched the drug online I soon came across forums such as this one, which gave me great cause for concern. I told my psychiatrist I would like to start on a low dose of zeldox and she recommended 40mg morning and night, stating that this was similar to a low dose of solian. I again got online and researched the dose: the consensus seemed to be that the starting clinical dose for disorders needing zeldox (such as schizophrenia) was 40mg bi-daily. So I took the drug.

I took it for 4 days. Initially it seemed to have little effect apart from a feeling of light-headedness and sedation for some hours after the dose was taken. My husband remarked that I seemed to be "staring into space" sometimes and this made him uneasy. I hoped that the symptoms would pass, as they had with other drugs, and kept
taking the medication, ensuring that I did so as prescribed ie. with food to enhance the absorption.

Day 4. Shortly before lunch-time, at work, I experienced the onset of a severe, crushing headache. So I went to a nearby chemist, bought some nurofen, and took two. While walking back to work I noticed that I felt extremely dizzy and light-headed, almost drunk. The nurofen kicked in shortly after I returned to work and killed the headache but I still felt highly sedated. Without knowing it, at my computer, I fell asleep. Suddenly a male voice with a clipped British accent penetrated my fogged state: "Are you still with us?" it asked.

I awoke to find one of my senior managers staring at down at me quizzically. I forced my sluggish body to my feet and pointed to the nurofen on my desk. "I've got a cracker of a headache," I said, shaking my head in mock disgust (I have not told work about my condition). My manager smiled and told me a light-hearted story about the headaches he experiences during sunny days when playing golf. "So I do understand," he said gently as he exited from my cubicle. I breathed an internal sigh of relief and went to find some coffee to pep me up.

That night I took my last Zeldox. My experiences so far in going cold turkey have been, thankfully, much milder than the horrors some people have reported - though still scary:

* The first 24 hours: racing heart, mild shakiness and nausea, cold extremities, insomnia (though I did manage to sleep for 3-4 hours), feeling "wired" (as though I'd had 50 cups of strong coffee), muscular aches and pains.
* The second 24 hours: mild lethargy and shakiness, mild headache. Thankfully, the racing heart has now largely stopped, as have the aches and pains, and my sleeping patterns seem to be returning to normal. I took one tylenol simply sleep last night and slept for 8 hours.

In conclusion:
Though a few people have stated that this drug worked for them, the majority have had serious issues with it. Unless you are very ill and have no other choice of medication, this is one to avoid, particularly if you are working.


Reply author: monique94550
Replied on: 07/15/2011 09:57:54
Message:

Is this for real, or is this some kind of horrible nightmare? I'm trying not to curse here. What in God's name did my "doctor" do to me? I started out with just bad depression, and went to a new shrink. She put me on Abilify, which kicked me right into mania, then I began to have suicidal thoughts. I had never been diagnosed with bipolar disorder before, and suddenly now I'm bipolar I. (Although in thinking back I've had manic episodes in the past, just didn't know that's what they were, and I enjoyed them!) So she stops the Abilify and puts me on Geodon 20 mg at night. OK. Then 40. OK. Then suddenly 80 in the morning and 80 at night. The morning one was horrible. Confusion, antsy (like restless leg syndrome through my whole body), my lower legs felt like lead when I was trying to walk, headache, my tongue felt thick, I felt like constantly grinding my teeth like I was on some sort of speed, and diarrhea. I called my doctor at 3 p.m. and left a voicemail, but no one called back, so I didn't take last night's dose.

Horrible night. Was awake all night, runny nose, very shaky, like I could jump right out of my skin, like I was tripping on LSD, frequent urination, and I had gained 6 pounds in 2 days! Luckily I have neurontin, and I took 600 mg, and then later another 600 mg, which seems to ease the shakiness a little bit. I called my doctor again first thing this morning and got voicemail, and then called an hour later and left an urgent message with the receptionist. 3 hours later and no return call. I was able to sleep a little bit, but when I did, scary and difficult hallucinations, still very shaky, pupils dilated, bad taste in my mouth, urinating frequently, hard to breathe in my chest, nose stopped up, sore throat, dizziness. This is a bad trip. WTF is going on? This is the worst "solution" I've ever had to a real or imagined problem. I'm praying for God's help, and I'm going cold turkey and get this crap out of my system.

Glad to find this forum.

Monique


Reply author: starg8t
Replied on: 07/21/2011 17:03:29
Message:

It all began about three months ago (in the middle of June, 2011) when I was prescribed 80mg Geodon 2x daily for bi-polar depression. It wasn’t until mid-July, 2011 when I moved to Texas with my two beloved dachshunds (both twins, 7 years old), when suddenly I suffered the worst panic and anxiety attack I ever had in my life. I was filled with fear beyond belief, and it wasn’t attached to anything. It “just happened.” The anxiety was so paralyzing that I could not think clearly. I was in such a panic that that I didn’t know what to do. All I could think was, “hospital.” But, because I had my two dachshunds, I could not go to a hospital. There was no one available to watch my two dogs for me. So, in a paralyzing fit of absolute panic, anxiety and fear, I quickly placed an ad on the Internet in the hope of finding a loving home for my two dogs. Within a few hours someone called me about my two dogs, and I ended up giving them both away to a loving family with two children. My dogs will never come back to me. I lost them forever. They’re gone. Instead of going to a hospital, I packed up my car and moved back to Michigan where I could get medical help. In Texas, I could not get into see a medical doctor for ongoing care for at least two months, unless I went to an emergency room. So, I did the next best thing and headed back to Michigan where my actual doctor is located. I am now supposed to slowly taper off of Geodon, but I am not waiting for it to slowly get out of my system. I want it out now.

Geodon is responsible for the anxiety, panic and fear that I experienced. It is because of Geodon that I lost my beloved dogs. As I stated, I am currently not taking Geodon. I am supposed to take 20mg 1x daily to slowly get myself off of it. The fact of the matter is, I want this awful drug out of my system immediately. Therefore, the fastest way to get it out of my system is to just stop taking it and deal with the withdraw symptoms. It is now July 21, 2011 and it has been three days without any Geodon. I am suffering with anxiety and panic, but not anywhere near what I experienced in Texas when I lost my two dogs.

When I was taking Geodon back in June, I noticed that I began experiencing an irregular heartbeat and heart palpitations. I didn’t really make the connection, nor did I give it much thought. Not only that, but from mid-June until mid-July, I lost 15 pounds. I used to weigh 133 pounds, and my weight went down to 118 pounds. My appetite was completely gone, and even now it is difficult for me to eat, but I know that I must. Now that I am off of Geodon, the heart palpitations are becoming less often, and the anxiety and panic is becoming less, but it is still persistent. I am taking two to four Benadryl each day to help with the anxiety from Geodon withdraw.

I am posting this strictly for others who might also be experiencing anxiety and panic from taking Geodon. I was told that it is a “miracle drug” by my doctor, and I believe her. But it was not a miracle drug for me. It was a disaster. When I told her that I think Geodon is causing anxiety, she told me she never heard about Geodon causing anxiety. Then I looked up the side-effects on the Internet, and I also came across other people who, like me, are writing about Geodon anxiety and panic attacks. My doctor is either misinformed, or she isn’t up-to-date on the possible side effects of Geodon. Therefore, it is important that I write this and post it for others who might also be experiencing the same thing that I experienced while taking Geodon.

I want my dogs back, but that can never happen. I lost them forever, and that, too, is very difficult for me to cope with. But, I am managing, somehow. I went out and purchased another dachshund (7 years-old just like my other two), and I am working to bond with him, and to love him equally as I loved and cherished my other two dachshunds. They were my best buddies for 7 years! Now they live 1,400 miles away from me, and that’s that. I have no way of ever getting them back. I want this awful Geodon out of my system.


Reply author: hercules21
Replied on: 07/21/2011 18:09:30
Message:

quote:
Originally posted by hercules21

I experienced Geodon withdrawal by only decreasing my dosage from 40 in the am and 80 in the evening to 40 in the am and 40 in the pm.
I experienced insomnia on the second day after the decrease and missed an important day at work. I wish I had been warned so that I could have reduced more gradually. That happened three weeks ago. To this day it now it takes me nearly three hours every night to fall asleep but after reading some of the posts in this thread I guess I should be counting my blessings that at least I get some sleep.



It has been 2.5 years since I made that post. My sleep has never returned to normal although it is better now. About once every two weeks I am up until 2am trying to sleep the other nights I am ok.
For a while my insomnia was chronic - chronic means that for 3 or more nights per week you take more than 2 hours to fall asleep.

To treat my insomnia I take 2.5mgs of olanzapine when needed and that seems to quiet my racing thoughts.

I can't really sleep in any more. I used to be able to sleep to noon if I wanted to - and I can't turn into bed early if I have a big day the next day.

I am thinking of decreasing my dose from 60mgs to 40mgs at night - will make sure I do slowly.

Best Wishes to you

Hercules




"Mrs Morel always said the after-life would hold nothing in store for her husband: he rose from the lower world into purgatory, when he came home from pit, and passed into heaven in the Palmerston Arms.".


Reply author: marq
Replied on: 08/14/2011 13:17:47
Message:

I was lying in bed and thinking about my experience from last year when I went through Zeldox withdrawal and what has happened since. I just had to get up and write about it, to encourage others. There is hope people!

It's been almost a year since I stopped taking Zeldox. Went from 40 to 0. The following week was a nightmare. I'm not going to repeat all the symptoms I had, since they've all been mentioned here in this thread. Sufficient to say I had enough of them.

The recovery was initially very fast, then leveled of to a slower pace (2 steps forward, 1 back): 1 week and I could stand on my own two feet and sleep, aches stopped. 1 month and I didn't get anxiety attacks and could excercise. 5 months and I could continue my studies in university. Now it's been 11 months since withdrawal and I'm overall in better condition than BEFORE taking the medicine.

For some reason when I was biting my pillow I thought to myself that if I ever made past the ordeal, it would be a turning point in my life. It's silly, I have no idea why I thought that while shaking and sweating GALLONS, but it turned out to be true. It was like resetting my brain. I regressed to the level of a baby, completely dependent on my family and especially my mother. Then I learned to crawl, stand, walk and now I'm almost running. I was left with a deep connection to my family and sense of gratitude and purpose. All suicidal ideations which I had suffered from stopped, as did depression. I think initially I felt too horrible to be depressed, later I realized if I could take on Zeldox withdrawal, I could take on ANYTHING, including depression. And I started working on it systematically.

It was definitely a life changing experience for me. I don't wish that miserable withdrawal to anybody, but if someone here has to go through it, I just want to say to you that the misery will pass. And it might even lead to better things.

Two things I have to mention here:

1. Take benzos. I didn't and I'm 99% certain it would've been MUCH easier if I had.
2. AVOID CAFFEINE!!! It triggers anxiety/panic attacks. It took me a month to realize the connection between caffeine and my mid-day hysterical crying fit. I've stopped ingesting caffeine completely, including cola drinks.

Stay strong!


Reply author: Emma46
Replied on: 08/25/2011 21:25:26
Message:

I can recommend a reputable pharmacy (Geodon) - http://securetabstock.com/order-geodon-online-en.html/?a=7093&t=all I received the order and it was on time and the pills work great.
P.S. 5% discount coupon code: 9sh73h


Reply author: chelle25
Replied on: 09/03/2011 17:00:41
Message:

It's amazing to see people keep posting here as they are searching geodon withdrawls. For now I am stuck on this drug but it is working for me. God help me the day I ever have to try to get off of it for some reason.


Reply author: Needsupport
Replied on: 09/10/2011 08:28:24
Message:

I was wondering if anyone could offer me some guidance regarding coming off Geodon. I am a 24 year old female, engaged and looking forward to marrying a wonderful and supportive man next year. We want to have children and I understand that Geodon may not be safe to use during pregnancy. I have been on the drug for 9 years and started taking it during HS for adolescent BPD (along with Depakote). While the circumstances of my life have changed a lot (was in an abusive relationship, smoked marijuana all the time, had an awful group of friends), I feel as though I am dependent on these medications. When I do occasionally miss a dose, I get a debilitating headache (but I get headaches almost daily anyway), but no real manic symptoms. I was wondering if anyone had any thoughts on the feasibility of me ever being able to get of these meds? Thank you


Reply author: AbbyNormal
Replied on: 09/10/2011 17:15:42
Message:

4 years ago I was diagnosed with Bipolar mood disorder and was prescribed Geodon and a carbamazopine as my therapy. Recently I have been discussing my symptoms with my new mental health care professional and was diagnosed with PTSD. Upon my investigation in to my diagnosis of PTSD and Bipolar Mood Disorder I have discovered that although I have some symptoms of Bipolar Disorder and most of the symptoms of PTSD the few symptoms of Bipolar that I actually have all of which overlap and are symptoms of PTSD I have taken upon myself to with out recommendation from my Psychiatrist to stop taking Geodon as I have stopped taking the carbamazopine as of 2 years ago and have had no reprocussions emotionally or psychologically. I continued to take the geodon for fear that I would have Bipolar symptoms. None the less, it has been 14 days since I have stopped taking Geodon. The first 11 days were horrible with withdraw considering I had extreme, constant and unatural unsubsiding Anxiety. I came close several times to just taking geodon again and my husband reassured me that my brain chemistry will go back to what ever condition it was in before I started taking the medication eventually so if I am bipolar I will begin to have bipolar symptoms and the anxiety should eventually go back to what ever it was before I started taking the meds. on the 12th day the anxiety was worse and unbearable for the first 5 days all I did was cat nap no real consistant sleep and for 12 days all I could do was limit my stimuli by laying in bed ignoring everything and everyone. completely disfunctional. by the evening of the 12th night I noticed remarkable relief from the extreme anxiety and was able to feel more relaxed. Today is day 14 and although I feel anxiety periodically through out the day the anxiety seems to be more naturally occurring and subsides when I use my technique learned from my rape counselor. I seem to be more back to normal and although my husband and I are watching for the symptoms and signs of Bipolar mood disorder and the PTSD symptoms are present at the moment life seems to be getting back to normal. I am not currently taking any antipsychotics to mask the symptoms of the withdraw or control symptoms of mental illness. I realize that it could be up to a few months before symptoms may be noticeable and will if the time comes will indeed consider going back on an antipsychotic if I indeed show sure symptoms of bipolar disorder. I am lucky that I have a healthy and knowledgeable support system who will direct me with care and in my best interest. In other words if I need medication they will tell me I need it and if I dont they wont ask me to take it. My husband is someone I trust completely with my mental health and my physical health enough to give him complete authority to make decisions on my behalf. I do not suggest that anyone just stops taking any antipsychotic with out discussing it with their doctor and if you do stop taking geodon you will have a long and horrible period of extreme discomfort because how these medications work is by altering the chemistry of your brain. With my anxiety I also experienced uncontrollable shivering. from what I can tell for at least 12 days my Serotonin level was most likely High creating the anxiety shivering and other physical sensations such as tightness in the chest and difficulty breathing. I assure you it does pass and you will go back to however you normally are. that means if you had mood swings, delusions or audio or visual hallucinations they will resume and you will begin to have them just like you did before the medication.


Reply author: chelle25
Replied on: 09/11/2011 12:51:11
Message:

quote:
Originally posted by Needsupport

I was wondering if anyone could offer me some guidance regarding coming off Geodon. I am a 24 year old female, engaged and looking forward to marrying a wonderful and supportive man next year. We want to have children and I understand that Geodon may not be safe to use during pregnancy. I have been on the drug for 9 years and started taking it during HS for adolescent BPD (along with Depakote). While the circumstances of my life have changed a lot (was in an abusive relationship, smoked marijuana all the time, had an awful group of friends), I feel as though I am dependent on these medications. When I do occasionally miss a dose, I get a debilitating headache (but I get headaches almost daily anyway), but no real manic symptoms. I was wondering if anyone had any thoughts on the feasibility of me ever being able to get of these meds? Thank you



The best guidance I can offer to you is to tell your psychiatrist everything that you just explained here. Best to work with the doctor on this.


Reply author: Wilcofan
Replied on: 10/24/2011 05:49:12
Message:

I have tapered down from 120mgs to 20mgs. I dropped 20mgs every 2 weeks and I have not experienced any withdrawal symtpoms at all. I will update this forum when I have made the drop to 0mgs.


Reply author: Wilcofan
Replied on: 11/22/2011 16:59:49
Message:

I have been off for 5 days now and I am fine. Don't believe all of the horror stories online and in this forum. Just take it slow....20mg every 2 weeks and you will be fine.


Reply author: Jack3
Replied on: 12/27/2011 06:04:55
Message:

A doctor put me on Geodon thinking that I may have tendencies of bipolar. I've never formally been diagnosed so it was news to me. I had severe fatigue, so bad that I could barely get through the work day. Horrible upset stomach and if I ate everything went right through me. My husband is concerned because I am so thin. I'd couldn't sleep at night and would be up until 2 or 3 a.m. Difficult to function the next day. I also find myself getting upset at simple little things that aren't a big deal. I did have two panic attacks. The worst part has been the teeth grinding. My jaw is so sore and my head constantly hurts. All these side effects were a surprise to me.

Many of the side effects seemed to taper off except for the teeth grinding and lack of being able to eat a whole lot. I never got to the dosage prescribed-60 mgs. I would switch off between 20 and if I didn't have to work I'd take 40 thinking that it might work. After a long talk with my husband (whose also a dr.) I am going off the medication. It's been a horrible few months. I just want to be healthy. I'm scared of the side effects of going off Geodon.


Reply author: chelle25
Replied on: 12/27/2011 07:41:46
Message:

Don't be afraid Jack3. Everybody is different. In this thread your mostly hearing from those that had problems getting off of Geodon. Myself included. Go slowly and work with your doctor on it. Hopefully you will be one that has an easy time getting off of it.

I'm still taking 40mg a day but hope to try to reduce again one day.


Reply author: UptownParkMom
Replied on: 01/05/2012 11:16:03
Message:

Hey! My name is Katie. I'm on day two of going cold turkey off Geodon. I gained 54 pounds while taking it + I'm coming off all medications to try to conceive. Day 1 was OK. Day 2 has been different. I was taking 160 mg. Day 2 is like my eyes are open to things I've been dazed about for months. My appetite is back to normal almost. I feel confident I can beat the withdraw symptoms due to coming off Ativan cold turkey a few years back. I was taking up to 30 pills a day. My doctor at the time kept refilling my prescription which led to an out of control addiction which I see as my fault and his. I've also cut 80 mg. of Prozac down to 40. Tomorrow I plan to take 20 mg. I take 1 mg. of Klonopin every other day. I'm on 400 mg. of Trazodone for sleep. Tonight I plan on taking 300 mg. I fear the worst, but I'm really wanting to lose weight + get pregnant, so my daughter will have a sibling. I still plan to see my psychiatrist and psychotherapist during the potential pregnancy + be hospitalized if need be medicine free. I will report back in a few days.


Reply author: mark01970
Replied on: 01/09/2012 10:09:03
Message:

My son is 22 and has a number of neurological issues as well as a blood disease called S.C.A.D.D. which, in a nutshell, causes his body to turn most types of fat taken in into ammonia. It is very rare, but very dangerous. My wife is not home right now so I can't ask why it was originally prescribed for him, but he has been taking Geodon for several years. He is on disability now and because of a computer issue with them and medicare being out of synch they will not pay for his meds for up to 3 weeks. We can not get his Geodon or other meds for that matter. His prescription is over $700 a month. I would pay for it if I had the money but I don't. He is 22 now so he is not on my insurance anymore. His Doctor says he does not want him going without the medication because of his health issues, but we have no options. I am very worried about him withdrawing from this medicine and the more I read about it the more scared I am getting and the more angry I am getting at them for prescribing this junk to him in the first place and at myself for not checking into the medication better when my wife told me what he was getting back then. He has severe adhd and a bunch of other issues like tourettes syndrome, rage seizures and others stuff all brought on because for the first 12 years of his life we did not know his body was full of ammonia from a normal diet and the ammonia was destroying his chemical balance, harming his organs and especially causing all manner of brain related problems. I am very very worried. I have tried various charities and what not, but no luck. Must be the economy no one can help. How bad is this going to be for him? What else can be prescribed that does not cost $700? He is out of meds as of today and I don't know what to do. I have a couple hundred in the bank for groceries, but I will buy meds that will make it easier for him if I need to. This is so frustrating.

Please contact me if you have first hand knowledge or proven advice of some kind?

Very Worried Dad,
Mark
bigdaddyecig@unexpected.beastnode.net


Reply author: chelle25
Replied on: 01/09/2012 12:29:13
Message:

Mark if you live in the united states pfizer (the makers of Geodon) have a patient assistance program where they will give him the medication for free if your son qualifies. Here is a link with a number you can call

http://www.pfizerhelpfulanswers.com/pages/misc/Default.aspx

You will need to fill out an application and sometimes it can take 6 weeks to get approved but call them and explain your situation. I get my Geodon from them and they send it to my doctors office every three months. So in other words they send 3 months worth at a time. In the meantime maybe you can get samples of Geodon from the doctor.

Also I would ask his doctor if there is an alternative that is cheaper. Your going to have to consult with his doctor.


Reply author: MrLill
Replied on: 07/10/2012 22:54:21
Message:

I don't know if this will be read, but I hope it will help. I was on geodon 60mg a day for 4 days. It wasn't for me because it turned me into a zombie and I had bad side effects. I cold turkeyed it and even after 4 days the withdrawals were severe. I was pale, I felt like I was going to die several times, my blood pressure was very high and beating 150 a minute through my chest. My tongue was swollen and I had every single symptom listed on here. The worse has passed after 36 hours from missing my last dose and I couldn't be happier to be off it. As long as there is no swelling, chest pains, or trouble breathing, your safer than you think. You can get off it and you will be happy you did. Move slow and easy, drink plenty of water in small doses as it will help the most, even though you'll want to throw it up. It's just ridiculous such poisons like geodon exist.


Reply author: chelle25
Replied on: 03/28/2013 06:19:42
Message:

I finally found the golden ticket for me to withdraw from geodon with very little or no withdrawl. I quit smoking and around the 4 th month of quitting I decreased my dosage and to my surprise I had no withdrawl. Tried to do it in the past 4 times while I was smoking and had horrible withdrawl effects in which ran me right back to the higher dosage again.

I am now at 20 mg after 4 years of trying! For those of you that smoke, try quitting before you withdraw it worked for me.


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